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Biopsy Is Tomorrow!

Bette

By Bette
in Meet Up Room

Recommended Posts

Bette Explorer
Bette
Posted

Hi everybody. I'm new to this place, my mom goes on the site. I'm only eleven. Has anybody here ever had a biopsy done? If so can you tell me how it went, I'm pretty nervous for tomorrow. :(

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Bette Explorer
Bette
Posted
  • Author

Hi ,

Just to clarify, this is not Bette, that's my mom, she also uses this message board and told me about the teen section. I posted this message under my moms user name, I still need to set up my own-- whoops.

KK :P

jenvan Collaborator
jenvan
Posted

Hey there... no worries about the procedure. It is pretty easy--the hardest part is not eating until its over ! You should be out for the procedure, and not notice anything. You shouldn't feel any pain either. The worst might be that you have a bit of a sore throat afterwards. Good luck!!

Bette Explorer
Bette
Posted
  • Author

Gee thanks. :D That makes me feel better. Im just kind of freaked because knowing that your'e going to get a tube shoved down your throat, although they tell me they are going to completely knock me out.

pmrowley Newbie
pmrowley
Posted

You won't feel a thing. When I did the procedure 25 years ago, I was fully conscious, and the only unpleasant part was getting sick as the tube went down. The biopsy itself is painless, as there are no nerve endings in the lining of the intestine.

Cheers,

-Pat

jenvan Collaborator
jenvan
Posted

Yeah, I've had 3 and no issues with any of them :)

Bette Explorer
Bette
Posted
  • Author

Wow, well I guess I have nothing to really worry about now except for the part of not eating or drinking liquids.

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jenvan Collaborator
jenvan
Posted

Yeah, my biopsy was at like 2 pm, so I was s-t-a-r-v-i-n-g ! :P

Bette Explorer
Bette
Posted
  • Author

Mine is at 11:30, But I have to be there at 10.

(I wonder if I'm the youngest on this board?)

DragonQueen Explorer
DragonQueen
Posted

Yay :lol: Finally I got my own account with my own avie! I'll tell you all how my biopsy went.

mommida Enthusiast
mommida
Posted

You kind of freaked me out, because I private messaged with your mom a few times.

Good luck and my thoughts and prayers are with you.

Laura

DragonQueen Explorer
DragonQueen
Posted

Thanks B) This is of course my first time getting a biopsy. Now I won't have to worry. Thank you all for being supportive.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hi there,

I wish you good luck tomorrow. And I just wanted to say, I like your name and Avatar. :lol:

scotia Newbie
scotia
Posted

DQ: Hope your biopsy went well.

It's a piece of cake...Gluten Free cake of course. ;-)

Scotia

DragonQueen Explorer
DragonQueen
Posted

I juat got back from the hospital. It went great!!! It was no biggy :D

DragonQueen Explorer
DragonQueen
Posted

The only bad part was not being able to eat or drink. I was soooo thirsty.

celiac3270 Collaborator
celiac3270
Posted

Congratulations! :) I bet you're sleepy now, right? :P

DragonQueen Explorer
DragonQueen
Posted

ya...zzzzzzzzzzzzz. I slept all day!!

Carriefaith Enthusiast
Carriefaith
Posted

I'm glad it went well... when do you hear about your results?

DragonQueen Explorer
DragonQueen
Posted

The doctor will call on Friday.

jenvan Collaborator
jenvan
Posted

Glad it went well!

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

I'm glad it went well :lol: . Keep us posted about the results.

DragonQueen Explorer
DragonQueen
Posted

I got the results today, the doctor says i'm not Celiac now but maybe in beginning stages. He's putting me on the gluten-free diet for 3 months. No pizza, etc.,etc. :(

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Just because the biopsy is negative, doesn't mean, you're celiac. The damage to your villi is just the tip of the iceberg. It's not clever to wait that long, just to see the prove in the biopsy. If you feel better on a glutenfree diet, you might still be a celiac :o . I hope you feel better soon on the glutenfree diet :) . And don't be sad about the pizza. With the development of the glutenfree food we've come a long way. You can make really good glutenfree pizza meanwhile :lol: .

jenvan Collaborator
jenvan
Posted

wow--well, let us know how the diet goes !

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  • Posts

    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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