Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergy Testing


Roda

Recommended Posts

Roda Rising Star

I was hoping to hear from anyone who has experience with food allergy testing. I am having my almost 6 year old retested for allergies since we switched allergists. He has had chronic rhinosinusitis since about two months old and had horrible reflux till about 10 mo. He also had reactive airway problems as a baby due to the reflux and was on nebulizer meds till age 3. He was allergy skin tested and blood tested at 14 months with all results negative. The allergist at that time said at that age it was not all that reliable. We got him better and had him restested (skin) at age 3 1/2 with the skin testing negative. Allergist still felt he had significant allergic response but we were managing it with nasal steriods and zyrtec. I changed doctors in July and he went over his history. I'm having him retested next week. Should I also have them to the ELISA blood testing also? I like the new doc he is very much down to earth approach. They are going to draw blood anyway for venom allergy(bees specifically) so would the blood testing for food allergies help? He was my problem baby and I had to eliminate lots of foods while I was breastfeeding. Dairy would aggrivate his reflux and would cause him abd pain, oats and rice would cause eczema on his head, and pecans once caused hives so I didn't eat those things. He does eat all those things now with no rashes, belly aches or hives but his sinus problems are continuing and he has those nice little raccoon eyes. He is moody and it affects his behavior. I don't think it is celiac, but more of an allergy going on. The new doc believes that he probably didn't "outgrow" those problems just that the reactions are different and could possibly be causing most of his chronic sinus issues. He also is going to prescribe us an epi pen (ped refused) for his potential yellow jacket allergy. He has been stung twice once around a year old and had a normal reaction that went away in a few hours, to last year getting stung and had his entire foot/ankle swell up and last for over three days. He feels that there is enough of a risk that he could have a worse reaction next time. Did I say I like this guy? :lol:

I may have put this in the wrong place. It maybe would be better in the "other intolerences" section. Sorry!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Have you had him tested for celiac or tryed him on the diet? Sometimes the inflammatory reaction from celiac can cause problems like he is having. If you haven't tested him yet it might be a good idea and then when testing is done give the diet a try with him.

Roda Rising Star

He has been tested for celiac in 2008 after my diagnosis. They only did the tTg. I can't get hubby on board to do gluten free with the kids without a diagnosis! :( I think I will ask for all the tests again just to be sure.

missy'smom Collaborator

I'm not sure what kind of advice you are looking for but I would still pursue those food allergies. Sounds like you've been through a few allergist's already but it makes a difference when you find one that you can be on the same page with. We are told that food allergies can be ditched with avoidance. Not always, but sometimes they can be re-intriduced and tolerated again if they are strictly avoided for a year, 2 yrs. something like that. Our allergist re-tests the food every year. We are up for re-testing soon so we'll see if we are still reacting after a short period of avoidance with some and longer for others. Then we can reasses the situation and leave some out for a longer time and see if we can ditch some.

When I re-intoduced the food I had tested pos. to last year, after a period of avoidance, the vast majority of my symptoms were GI, and the most noticeable improvement when I had all of them out of my diet, was GI. With a few I had classic allergic symptoms, like tingly lips, mouth.

Hope that helps. Keep advocating for what you think is right.

I'm adding this on because I re-read you post and something stands out. The sinus issues and dairy-in my experience,GI symptoms or not, dairy really fills up my sinuses. Knowing what I know now, that would be and was enough for me to ditch dairy and keep it out. At one point, I went dairy-free for a year and to my suprize I could breathe SO much better, that was motivation to keep it out. However I played around with it several times until recently. I've had issues with it my whole life and symptoms varied and sometimes seemed to be absent. Had multiple tests to figure out what part of the dairy is bothering me but recent allergy test came back pos. for casein. I would keep you little one off dairy.

Roda Rising Star

I think dairy would be hard for him. He does not drink much milk and never did like it when I weaned him. He so does like cheese though. As for cooking/baking that's no problem since I like almond milk. He does do milk on his cereal but won't drink what is left. He goes tommorow for his appointment. I just hope we can get some answers. I will do whatever I need to to get him some relief. I've had him off his allergy nose spray and the zyrtec since last week and he looks pitiful. The bags under his little eyes look terrible and the sinus drainage is making him cough.

missy'smom Collaborator

I hope the testing gives you some answers and direction too. We've found that so many things contribute to our nasal issues. We seem to be wired to react that way in this family. We both are latex allergic and that causes nasal congestion too. Very dustmite allergic and that contributes to the load too, or diminishes it when managed well. I always seem to get stuffed up when I'm allergy tested too.

As for the milk, I love my cheese too :( and miss it. Coconut milk works well as a dairy substitute. I use it in pumpkin custard that I make for kiddo. The So Delicious coconut milk beverage is very neutral in flavor so would work well with your kiddo's cereal-it's not coconutty flavored, at least the unsweetened version that I've tried.

Just be aware that dairy allergy in young ones is thought to possibly trigger autoimmune diseases. I'm investigating the possibility that I may have autoimmine diabetes and if so, my dairy allergy, which has been ignored most of my life, could be a culprit. Google T1 diabetes and casein if you re intrested.

Roda Rising Star

Well all of his skin allergy testing was negative again. I am happy, but still no answers. The new allergist did say that maybe he still has an intolerence to something and also wants to recheck him for celiac. He was going to research and find out what the latest and best tests to order. He mentioned the Deamidated Gliadin Peptide (DGP) Antibodies so he does know that he needs not just one test. He never had the AGA tests in 2008. He wants us to see how he does on a new antihistimine and singulair combo to see if there is any improvement. He wants to try and keep him from developing the allergies. He told me if we don't keep things under control then eventually he would have an allergic response. He is also wondering if he is even absorbing the meds to begin with. There isn't any problem with his growth, just the occasional complaint of his tummy hurting. He has complained off and on since June about that. One minute he is complaining his belly don't feel good, and the next he is playing like nothing was bothering him. So who knows.

To any moderator who may read this topic it may need moved to a different category. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Went Mon. for blood work for venom allergy testing and the celiac workup. The NP, upon hearing his symptoms (his symptoms have progressed and has been taking xyzal, nasocort, singulair and astepro since last Wed. after testing. Having more of the same, post nasal drip and a horrible cough) wanted to check his IgG, IgA, IgE, and IgM to see if he had enough to fight whatever he has. I told him that given another week he would have a full blown sinus infection. So I am unsure if they are checking the total of all of those or using them for blood allergy testing which was also mentioned. We go back in two weeks. My poor child has battled recurrent rhinosinusitis, reflux, RAD and MARSA in his tonsils. He started having issues when he was around two months old. The lingering thing has been the rhinosinusitis. It just keeps him down and I don't like having him on so many antibiotics. I think if any part of his celiac tests come back positive I will forgo the endo and go straight gluten free and hubby is on board with this. He also does not want him to have the biopsy if his tests are inconclusive. He agreed to trial him and see how he does! If I do that with him I am going to trial my oldest son at the same time. He has alot of allergies that he does allergy shots for and was diagnosed with asthma. The good thing about his asthma is that he doesn't take any meds for it and only mildly acts up upon extreme exercise. On a side note, my 5 year old still occasionally asks for some help after using the restroom. Today he asked for some help and I noticed fat floating in the water. I noticed this once before several months back and just thought he ate alot of "fatty food." Hmm, now I'm not so sure, especially since he has been complaining off and on since June about random tummy aches.

Roda Rising Star

He is officially going gluten free in the morning. He had a positive tTG.

Here is a post of what we found out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,412
    • Most Online (within 30 mins)
      7,748

    Morgan969
    Newest Member
    Morgan969
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Since lectins occur in almost everything, it's pretty unrealistic to avoid them all.  I didn't understand the rationale behind Dr. Gundry's lists either. Many fruits either contain high histamine amounts or are histamine releasers.  Histamine is made by our body, but we can also consume it in foods, because plants and animals make histamine, too.  Histamine is a neurotransmitter, that results in alertness.  That cup of coffee in the morning?  Releases histamine, so we wake up more.  But histamine is released as part of the immune response in Celiac and other illnesses, causing inflammation.   Our body can clear histamine, but if the body can't keep up with the histamine we are making ourselves as well as the histamine we're eating, we can have serious problems, digestive problems, insomnia, depression.  Some fruits can have high levels of fructose, one kind of sugar in fruits.  Some intestinal bacteria can ferment fructose, resulting in gas, bloating, diarrhea.  So, yes, Fructose Malabsorption can occur in Celiac.   Your dont list...Honey, maple syrup, lectins (and their attached carbohydrates), sugar... ....bedridden...These are all carbohydrates, sugars.  We need Thiamine to turn carbohydrates into energy.  Without sufficient thiamine, we can develop Gastrointestinal BeriBeri which has the classic digestive symptoms, nausea, diarrhea, abdominal pain. Tannins in tea and coffee cleave thiamine in two, making it nonfunctional.   Your do list...hazelnuts, pistachios, pressure cooked potatoes, and yogurt, butter, cheese.... These are foods that contain thiamine.  Pressure cooked mashed potatoes have more thiamine than boiled potatoes.  Those nuts are high in thiamine.  Dairy products are a good source of thiamine.   I can't diagnose, I'm not a doctor.  You read these articles and let me know if anything rings a bell with you.  Yes, I see thiamine deficiency everywhere because it is unrecognized by doctors.  I recognize it because I had it. Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/ Refeeding Syndrome (a different article...) https://pubmed.ncbi.nlm.nih.gov/33232094/
    • knitty kitty
      The AIP diet restricts carbohydrates for the first few weeks.  Excluding carbohydrates changes your microbiome.  The bacteria that live in the intestines that feed on carbs get starved out when you don't eat carbs.  Small Intestinal Bacterial Overgrowth (SIBO) occurs frequently in Celiac Disease.  SIBO can cause gas, bloating, and diarrhea, symptoms similar to Celiac symptoms.   When the digestive system is feeling better, then additional foods are added back slowly to look for reactions.  I did not consume carbs for a several months because I felt better without them.  Currently, a "Modified AIP diet" has allowed rice, but doing this won't starve out the SIBO that occurs in celiac disease. I took vitamins and minerals throughout the day and felt great improvement because those essential nutrients were finally being absorbed. Thanks for letting me share what made my celiac journey better.
    • knitty kitty
      Hello there!  Just wondering how things are going for you.  Did you try the Benfotiamine?  I'm always curious how others fare after taking thiamine.  Hope you can post an update. Hope you're doing well!  
    • Liquid lunch
      @knitty kitty maybe I’m a little out of touch with fashion having been pretty much bed ridden for so long but this seems ridiculous to me.. ‘As a result of their potential for toxicity and their “anti-nutritional effects” it is almost inevitable that lectin exclusion could well become a big food fad‘ I just can’t imagine anyone avoiding lectins if they didn’t have to. When I first looked at the gundry avoid list I couldn’t understand why so many things were on it that are not high lectin (fruit ect.) and assumed high sugar items must’ve been added because people use the diet for weight loss so I tried eating them and got sick. He’s recently added honey and maple syrup to the approved list by popular demand but I can’t eat them. For me it seems to be almost all lectins, sugar, and possibly tannins because I can’t have tea and not sure what else could be causing the nausea. I’ve had some luck with pressure cooked mashed potato but pressure cooking white rice as gundry recommends didn’t help. The aip diet doesn’t match the foods I can tolerate as well as the gundry list and it seems to be mostly the high sugar things, also some of the aip avoid foods I’m fine with, hazelnut, pistachio. Yogurt and butter is on the aip avoid and again my guts agree with gundry on this, cheese yogurt and butter fine, milk not so much. Now it’s possible to get an igg test it seems an unnecessarily painful and slow process to attempt aip or total lectin avoidance and reintroduction, I wish I’d known about these tests before, it’d have saved me a lot of bother.  
    • knitty kitty
      @Liquid lunch, I prefer the AutoImmune Protocol Diet, developed by a Celiac, Dr. Sarah Ballantyne.   I would be interested on your point of view about the AIP diet compared to the Lectin Free diet.   Here's some research on both.... Dietary Lectin exclusion: The next big food trend? https://pmc.ncbi.nlm.nih.gov/articles/PMC6603809/   Autoimmune protocol diet: A personalized elimination diet for patients with autoimmune diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC11755016/ An Autoimmune Protocol Diet Improves Patient-Reported Quality of Life in Inflammatory Bowel Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6892563/#:~:text=The AIP dietary intervention consisted,week maintenance phase%2C during which Effects of Autoimmune Protocol (AIP) diet on changes in thyroid parameters in Hashimoto's disease https://pubmed.ncbi.nlm.nih.gov/37772528/
×
×
  • Create New...