Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are You A Celiac?

Lisa

Recommended Posts

Lisa Mentor
Lisa
Posted

After many years on this forum, I have seen many personal references. What do you call yourself?

For example:

"I am Celiac"

"I have Celiac"

"I am a person who has Celiac Disease"

"I am a Celiac"

...just curious :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

I don't use labels. I say "gluten makes me very sick". I wouldn't say "I am a psoriatic", although I might say "I have psoriatic arthritis", but more commonly I say "corn makes my skin blotchy and my joints hurt".

ravenwoodglass Mentor
ravenwoodglass
Posted

I usually say 'I have Celiac'.

Lisa Mentor
Lisa
Posted
  • Author

I don't use labels. I say "gluten makes me very sick".

I get that and I use that when dining out, too. I throw in "very sick" as good insurance, or assurance. :P

But chatting on the forum here, or interviews in magazines or TV interviews...I've heard it all. Just curious how people refer to themselves.

Skylark Collaborator
Skylark
Posted

Either "I'm celiac" or "I have celiac disease". And for what it's worth, people saying "Celiac's" drive me batty. It's not a name, it's an ancient Greek word. :ph34r: Sorry, had to get that off my chest. :P

Salax Contributor
Salax
Posted

Either "I'm celiac" or "I have celiac disease". And for what it's worth, people saying "Celiac's" drive me batty. It's not a name, it's an ancient Greek word. :ph34r: Sorry, had to get that off my chest. :P

Hehe, I hear ya...people who say I have celiacs drives me nuts...it's not celiacs, it's celiac. There is no plural, unless your saying "a group of celiacs", otherwise it's singular. As: I am a celiac or I have celiac disease. It's not, I have celiacs. :blink:

Unless you are collecting a group of celiac people....then I guess I have celiacs would work..

Gets off soap box.

:D

Emilushka Contributor
Emilushka
Posted

Hi, my name is Emily, I am Celiac, and I have a confession: I USED TO SAY "CELIAC'S" BECAUSE I DIDN'T KNOW BETTER.

I stand so very, very corrected.

I usually say "I am Celiac" or "I have food allergies" (people understand that better) or "I can't eat wheat or dairy" or "I don't eat like normal people" (for the people who really don't honestly care and are just a little confused).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hawkgirl98 Newbie
hawkgirl98
Posted

I usually say I have a gluten allergy - as Emily said, I think people just understand the idea of a food allergy better.

I personally don't like saying Celiac because it usually requires additional explanation (most people I meet don't know what it is so when I was originally diagnosed I'd end up spending 10 minutes explaining it all). And I don't like using the word "disease" - I feel like that makes it sound scarier than it is, like I have a contagious disease or something.

Lisa Mentor
Lisa
Posted
  • Author

And I agree...there was no Doctor Called Celiac, who discovered the disease. AND I don't like the label as as "disease", either. <_<

I rather prefer, that I am a person with Celiac Disease.

RideAllWays Enthusiast
RideAllWays
Posted

I say I have Celiac Disease.

cassP Contributor
cassP
Posted

im so glad you girls mentioned "Celiac's" & "Celiacs"... so i didnt have to initiate ... i didnt want to be rude, but it does annoy me

Mari Contributor
Mari
Posted

I often say "I can't eat gluten". Sometimes I add "it can make me very sick"

I think that 'Celiacs' is rather cute - younger people using their own terms to both convey that this is a limiting problem and that their generation is dealing with it in their own way.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

After many years on this forum, I have seen many personal references. What do you call yourself?

For example:

"I am Celiac"

"I have Celiac"

"I am a person who has Celiac Disease"

"I am a Celiac"

...just curious :D

I say "I have celiac" although I don't really tell very many people that since I'm self-diagnosed. Mostly I start out by saying I have food allergies (which is true, I'm allergic to shellfish, pork and mushrooms) and only explain further if I need to or they ask. I don't like to add the word disease on at the end and I think if I were talking about several "people with celiac" I would be tempted to say "celiacs" as in more than one person with celiac disease. I know that's probably bad, since several of you said it was annoying and impromper, but I see this as a cute short-cut to describe a group. What do you call a group of people with celiac disease when discusing celiac? It sounds very cumbersome to always have to say "individuals that have celiac disease".

anabananakins Explorer
anabananakins
Posted

I say, I don't eat gluten because it makes me sick. Then people either (a) ask me if I have celiac and I say the tests say no but since I have to be strictly gluten free, it doesn't matter much either way or (B) they say what is gluten? and I say that it's in wheat, barley and rye and give them a brief run down on what it does to me. I find a lot of people take the opportunity confess that they didn't really know what gluten free meant and since I didn't really either before it's nice to be able to explain so they don't feel stupid next time.

Wheat is my country's biggest crop and it still feels a bit odd that I'll never eat it again. Wheat as an ingredient I'm used to thinking of as evil nastiness, but those fields of waving grain are supposed = wholesome goodness!

lynnelise Apprentice
lynnelise
Posted

It really depends on who I'm speaking with. I usually say I have food allergies or that I cannot digest gluten. If the person has some type of medical background I will go ahead and say I suffer from celiac disease. It was not diagnosed by biopsy but it is just easier because somehow medical people don't take you seriously unless you name a diagnoses.

Lisa Mentor
Lisa
Posted
  • Author

When I make reference to my diagnosis, I say that I am a person who has developed Celiac Disease. I don't say I am "A Celiac" or "I'm Celiac". I'm not quite sure what "a celiac" is :unsure::)

SaraKat Contributor
SaraKat
Posted

I say I have celiac disease. I have noticed that no matter what I say people have no clue about it anyway. I still have to do further explaining. No one I talk to knows what exactly gluten is either- some think it is rice, some bread, some people say I can still eat white bread, just not wheat bread.

I wish more people knew what it was, I don't mind educating my friends/families, but the restaurant thing annoys me. I have yet to go somewhere unless they have a specific gluten-free menu that has an idea what it is without further explanation.

I wrote my first letter to a manager at a restaurant about the cluelessness of the waitstaff there. She wrote me back and told me she was going to do a training on what celiac/gluten is at their next staff meeting. So, that was good.

cassP Contributor
cassP
Posted

it's refreshing when you talk to someone from europe- my 2nd cousin is british, and my coworker is irish- and before i could even finish the sentence saying i cant eat wheat or gluten.. they were like- "Oh Cassie- do you think you might have Celiac??"... its a shock to hear people so knowledgeable

Takala Enthusiast
Takala
Posted

Depends on the situation, but I usually say I have auto immune disease and I'm gluten intolerant, but by being careful with what I eat, I can control the symptoms very well and I'm partially recovered, other than the arthritis.

If it's a restaurant, if they don't know, I will say "food allergy" I am allergic and cannot tolerate at all any wheat rye, barley. But I've also had some nice waiters and waitresses quiz me, and say, oh, you mean celiac or gluten intolerant ? and I really don't mind going into the details, but I'm the one who gets the neuro symptoms first, and had all the kidney problems before, so I am probably sounding sort of exotic or just weird. The more I can educate people the more likely we can eat out safely..... :P

summerteeth Enthusiast
summerteeth
Posted

It all depends who I am speaking to - if I am at a restaurant, I say "gluten allergy" (and sometimes the server will say "Oh you have Celiac?"). If it is someone I come in contact with often, I will explain it - I usually say "I have celiac disease" and go into a long, detailed, often TMI description of it :blink: . On the other hand, my fiance just says "Monica is a silly" and leaves it at that.

kareng Grand Master
kareng
Posted

I usually say " I have Celiac Disease". I usually say that an allergy to wheat, rye and barley. I have found people don't know what gluten is.

The word I hate is " sprue". My PC doc always says , " you have Sprue". Now that I am gluten-free, rarely does anything " sprue". :P

cap6 Enthusiast
cap6
Posted

depends on where I am. If in a restaurant then I say "extremely severe food allergies" cause that people understand. Otherwise "I have Celiac" is enough.

Marz Enthusiast
Marz
Posted

Either "I'm celiac" or "I have celiac disease".

I'm glad to see you and Raven refer to yourselves as celiacs (Edit - lol, hopefully that's the correct place to use the plural!) - I want to do that too, but since my tests were negative I felt bad referring to myself as having celiac disease. Although in my head I think of it as such.

I find saying "gluten-intolerant" doesn't convey the serious of the situation, it's too similar sounding to lactose intolerance - I don't do it because I get a bit of a tummy uppsy, it makes me feel like I'm dying and I'd rather not up my chances on colon cancer, thanks very much! And it's a bit of a fad at the moment to be "gluten-free" or "low-carb"...

Add to that, several people at my work are "gluten-intolerant" and they happily chow down on the cafeteria food, muffins etc. My colleagues are figuring out that I'm very serious about it though - they even ask before they grab some snacks for me, if I can eat this or that chocolate :)

I find that I need to do a short description at restaurants regardless of what I say, because "gluten" is not a household word, "wheat allergy" usually conveys the information nicely I guess.

bincongo Contributor
bincongo
Posted

I guess I am a little different. I say I have to be on a special diet when they ask me why I can't eat something. If they ask for more information then I say I can't eat wheat,rye or barley because it makes me sick. If they are still curious then I explain further. At resturants I say I need to eat gluten free or I have a wheat allergy.

jenngolightly Contributor
jenngolightly
Posted

The word I hate is " sprue". My PC doc always says , " you have Sprue". Now that I am gluten-free, rarely does anything " sprue". :P

My doc also says that I have "sprue." Every time I hear it I imagine that I have a tree growing inside of me. :-)

It also depends on company: "I have Celiac" to most. If they look confused I just add that I can't eat wheat, rye, or barley; in restaurants I always use the word "allergy" - they pay real close attention to that word.

I don't know if any of you are in a similar situation, but I have my own office and when someone comes in to work on my computer I always make them wash their hands. I'm high maintenance!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,728
    • Most Online (within 30 mins)
      7,748
    Patti Kolb
    Newest Member
    Patti Kolb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Marie70
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Marie70 · Posted

      Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously.   Thank you for all the articles.  I appreciate you all so much!! I’ll keep you posted in this post.  I will encourage her to get tested.  I feel a little better!
    • DayaInTheSun
      Shortness Of Breath (the "sighs")?

      By DayaInTheSun · Posted

      It was gradual, just not being able to catch my breathe like I always had to take a deep breathe even taking a few steps I would be winded.
    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
×
×
  • Create New...