Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac, Genetic Or Bacterial


junevarn

Recommended Posts

junevarn Rookie

Hi all,

I haven't written in a while since I have been going to a new doctor who validates my gluten intolerance. I was diagnosed with three infections, received medications and am on the mend. :D

I was on another support site at the yeast connection and a person there didn't believe that this is a genetic disorder. She thinks that it is caused by the wrong bacteria in the gut. There is an article on celiac.com that addresses this but its only one article. All of the information I have read says its genetic.

I said that its very important to be gluten free and she basically said that because I'm a nurse thats why I think its genetic. :huh:

I just want your input on this. Needless to say it upset me somewhat .I know that not everyone with the gene has intestinal damage but my understanding is that other immune diseases could manifest.

PLease let me know your thoughts and feelings on this subject. I think she said that she and her child had antibodies in the blood.

Thanks.

Sincerely,

June


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

It's a genetic autoimmune disorder and requires a life long gluten free diet to control it.

Some people with the gene do not have the celiac activated but they still have predisposition to it.

Celiac can be activated by things such as childbirth, viral & bacterial infections, surgery, stress, etc.

Carriefaith Enthusiast

Where does she get her info? Unless she can back up her statements with scientific proof ie. scientific journal articles or credible websites... then I wouldn't believe her statements.

Here are a few good articles that say that celiac is genetic:

Open Original Shared Link

Open Original Shared Link

tarnalberry Community Regular

There may be other causes of intolerance to gluten than celiac disease, but the genetic cause of celiac disease, and the variation in the immune antibodies it produces, has been well researched. There's a reason there's a genetic test for it.

junevarn Rookie

Thank you. I knew I was right. If someone has positive antibodies in the blood thats a conclusive test for celiac, right?

June

KaitiUSA Enthusiast

Depending which tests were done(some are more specific and reliable than others) but yes

Carriefaith Enthusiast

The tissue transglutamase test is highly specific for celiac disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



junevarn Rookie

Thank you so much for answering my questions!! I have one of the main genes for celiac so I'm staying away from gluten no matter what anyone says! I don't want to run into more problems in the future. :(

Thanks,I just needed some validation. Sometimes its hard out here. Its hard enough to deal with this problem ,never mind people who challenge you. :angry:

Sincerely,

June :D

Carriefaith Enthusiast
Its hard enough to deal with this problem ,never mind people who challenge you.

Yea... it's usually not worth arguing with people about stuff like that, there's not much you can do to change people's minds sometimes. Even when there is evidence that you are right. Oh well that's life ;)

nannyb Rookie

Hope this is not too late to chime in to the discussion. I think your informant was only partially correct. Of course celiac is genetic. Yeast intolerance is I believe genetic as well. (or at least the propensity toward it) From what I have read in some people the candida reaction often comes first before the celiac is triggered. The wrong bacteria in the gut sets off the reaction that ends in a celiac state.

I know that is what happened to me. I have been yeast intolerant for 20 + years, then diagnosed with Colitis six years ago and the yeast intolerance problem normalized somewhat. The timing of the two events was too coincidental to not be related. I think that the celiac was triggered at that time.

After all they are all autoimmune disorders of the gut. Why would anyone say they couldn't be related. When the body misfunctions in one manner it certainly can in another.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,548
    • Most Online (within 30 mins)
      7,748

    Christy tr
    Newest Member
    Christy tr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
    • Jordan23
      I would stop Xanax. It will eat away at your DAO enzymes needed to break down histamine . No energy drinks will do the same. I use to have all reactions in stomach now it's changed and started in my chest , which completely sucks and bummed. Maybe your reacting to high histamine foods. But it's hard to avoid cross contamination.  I would get pea milk made by ripples .it's a blue bottle . Ru getting cross reactions? Corn gets me. If it says gluten free it's probably not. Nibble at new foods and wait for reactions. Could be sudden or take 2 hours but some people think it hits 2 days later no way. Avoid coffee. Stick to free range chicken and steak or fish . Do lentils package by kroger works for me it doesn't even say gluten free but works for me just rinse well. Make big soups with sweet potatoes, cauliflower,  brocoli,  cucumbers, and add lentils or cook lentils separate taste better. If you can do potatoes add those inn huge plus. If you can do dairy yogurt try Noosa or a certified gluten free one. Don't smoke I had to quit creates heat and acid in your stomach which lowers your vitamins to break food down. Your reactions are in your chest . Do smoothies everymorning with apple.  🥒 cucumbers, arugula , oranges or add what you can tolerate with water. Try a peppermint tea certified gluten free that works for you. Watch out for spices like turmeric they add flour fillers to prevent caring. I got hit hard by that.  If you have a huge attack get the pin or eat oranges quick. If quinoa works for you get certified huge plus. I could go on and on . Just nibble first wait and see then continue eating it.  It's hard to find nuts that work for you. Maybe try nuts.com..... enter with caution
    • TerryinCO
      I haven't been on the site for a while and I have some update info.   Genetic tests show I have the Celiac markers and high risk for Celiacs's  (10X it shows).  Immoglobulin A and G are low - just below the 'green' range; immoglobulin M is in the 'green'.  Zinc, Iron, magnesium, ferritin, and b12 are all in the 'green' range. I've been off the PPI for two weeks now and no real problems...minor heart burn and OTC antacids fix that.  So that's good to be off of that for good. I switched to a b complex sub lingual vitamin. I was surprised about the genetic results on Celiac markers. To my knowledge no one in my family had it or were diagnosed with it.  But they could have had and never been diagnosed.  And at 76 this has come up for me. Gluten free diet is going well and I do feel better on it - nothing major in changes - just better. I appreciate all the advice I've gotten on this site - lots of experience knowledge to draw on here. So thank you, all.
    • ALBANICKAP
      Thank you Scott, I will try what u suggested. 
    • pplewis3d
      Does anyone know if Citracal Petites supplements for Calcium and Vitamin D3 are gluten free?
×
×
  • Create New...