Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pediatric Selective Igm Immunodeficiency


Roda

Recommended Posts

Roda Rising Star

Found this article interesting and it references celiac quite a bit. Found it researching information for my youngest son.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Found this article interesting and it references celiac quite a bit. Found it researching information for my youngest son.

Open Original Shared Link

that's really interesting.. how come it's not standard practice over here to screen for such things?? oh, because the drug companies would lose money if we were all healthier :angry:

and how come we never hear of this Igm? it wasnt till the past 2 years i even knew what Iga & Igg were... and my docs only tested my Iga which was low. how come they didnt test Igg or Igm?? it probably doesnt matter now that im gluten free and fairly healthy-> but it could have helped decades ago before i had a tonsilectomy .. before i had bronchitis for 6 weeks every year in my teens (while on a food pyramid diet w/ extra wheat germ on my morning cereal because it's "healthy fiber") :angry::angry::angry:

oh, and before i developed hypothyroid (which im assuming will turn out to be hashimotos)

ok, sorry for the rant... thanks for the interesting link

Roda Rising Star

I found the article while looking up IgG, IgA, IgE, and IgM. My youngest went for skin allergy testing last week (his third time and is almost 6) and everything was normal. I had him off his zyrtec for a week prior and he looked like crap when we went. He had congestion, red swollen eyes and the lovely raccoon eyes. Since then his symptoms have progressed, (has been taking xyzal, nasocort, singulair and astepro since last Wed. after testing) to more of the same, post nasal drip and a horrible cough. He was there Mon. for blood work for venom allergy testing and the celiac workup. The NP, upon hearing his symptoms wanted to check his IgG, IgA, IgE, and IgM to see if he had enough to fight whatever he has. I told him that given another week he would have a full blown sinus infection. So I am unsure if they are checking the total of all of those or using them for blood allergy testing which was also mentioned. We go back in two weeks. I did some other reading of case studies of Selective Igm Immunodeficiency and I swear it sounded like I was reading about my own son. It seems alot of people with this have alot of sinus, and upper and lower respiratory manifistations. My poor child has battled recurrent rhinosinusitis, reflux, RAD and MARSA in his tonsils. He started having issues when he was around two months old. The lingering thing has been the rhinosinusitis. It just keeps him down and I don't like having him on so many antibiotics. It seems also linked to autoimmunity and me being celiac really rang a bell with me. I'm going to inquire more about it when I talk to the NP. I think if any part of his celiac tests come back positive I will forgo the endo and go straight gluten free. However, I told the NP that I am seriously consdering putting him casin and gluten free regardless to see how he does. If I do that with him I am going to trial my oldest gluten free at the same time. He has alot of IgE allergies that he does allergy shots for and was diagnosed with asthma. The good thing about his asthma is that he doesn't take any meds for it and only mildly acts up upon extreme exercise. He is so active and loves to exercise that I think it helps control it and by managing his allergies with his injections.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,105
    • Most Online (within 30 mins)
      7,748

    annhil
    Newest Member
    annhil
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This might be helpful to you at this point:   
    • cristiana
      Thank you for the update.  So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy.  Glad you know where you stand.  As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further.
    • trents
      But isn't it easier to just take a D3 supplement? Is the D light somehow a superior source? Links?
    • Scott Adams
      So the way it should be used is to take it before possible gluten exposure, so right before a meal at a restaurant take 1-2 capsules. Unfortunately taking it 1 hour or more after an exposure is too late.
    • Scott Adams
      Welcome to the forum, and thank you for sharing your detailed experience. It sounds like you’ve been through a lot over the past several months, and it’s understandable to feel frustrated after navigating unclear diagnoses and conflicting advice. Since you’ve found relief with a gluten- and corn-free diet, it might be worth continuing that approach for now, especially given your current commitments to culinary classes. You could consider working with a knowledgeable dietitian or a gastroenterologist who specializes in food intolerances and celiac disease to explore potential intolerances or other conditions without immediately reintroducing gluten. If confirming celiac disease is important for your long-term health management, you could plan for an endoscopy during a less busy period, ensuring you follow the gluten challenge protocol beforehand. In the meantime, prioritizing your well-being and avoiding known triggers seems like a practical step. Always advocate for yourself with doctors, and seek second opinions if needed—your health concerns are valid. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...