Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Now? What Can I Eat?


revenant

Recommended Posts

revenant Enthusiast

I originally thought I only had problems with gluten, lactose, eggs, soy, corn, nightshades, and potatoes (wait, are potatoes nightshades??)

As time progressed, I gradually started having symptoms (less extreme, but nonetheless, obvious and lurking symptoms) with all types of sugar (including fructose), fish, chicken, and any grains including rice.

I don't eat redmeat... I don't eat it because I just don't like it. I haven't tested it

I. Am. Stumped. What the heck do I eat now? Vegetables and seeds? I am really stuck here...

All advice appreciated and very badly needed...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Yes, potatoes are nightshades and are killers for me too. With the exception of lactose which I can now eat I am the same as you, except I cannot eat legumes. I do, however, eat red meat. You will have to start eating legumes, which I cannot eat - beans in all their forms, and peas, dried and fresh. Most vegetarians combine beans and rice to make a complete protein. Legumes can be eaten as salads, as baked beans, as hummus for a dip - you will have to explore them because I can't eat them....

cahill Collaborator

I originally thought I only had problems with gluten, lactose, eggs, soy, corn, nightshades, and potatoes (wait, are potatoes nightshades??)

As time progressed, I gradually started having symptoms (less extreme, but nonetheless, obvious and lurking symptoms) with all types of sugar (including fructose), fish, chicken, and any grains including rice.

I don't eat redmeat... I don't eat it because I just don't like it. I haven't tested it

I. Am. Stumped. What the heck do I eat now? Vegetables and seeds? I am really stuck here...

All advice appreciated and very badly needed...

Have you tried quinoa Open Original Shared Link

or amaranth Open Original Shared Link

My understanding is that they are not actually grains but seeds.Both are gluten free. Both are high in protein and are a complete protein.

missy'smom Collaborator

I originally thought I only had problems with gluten, lactose, eggs, soy, corn, nightshades, and potatoes (wait, are potatoes nightshades??)

As time progressed, I gradually started having symptoms (less extreme, but nonetheless, obvious and lurking symptoms) with all types of sugar (including fructose), fish, chicken, and any grains including rice.

I don't eat redmeat... I don't eat it because I just don't like it. I haven't tested it

I. Am. Stumped. What the heck do I eat now? Vegetables and seeds? I am really stuck here...

All advice appreciated and very badly needed...

Well, I am free of many many things(soy, grains, fruit, casein, etc.) due to diabetes and multiple food allergies. Major categories off limits to me so I survive on a limited diet(in comparison to most people), but still enjoy good health so it's doable.

Let's see...

No...

MEATS/PROTEINS

red meat

fish

chicken

eggs

That leaves you with turkey. Costco sells turkey burger patties that are just turkey and the "natural flavoring" is rosemary oil. I called. Applegate Farms have some pretty clean turkey products. As for the fish, I tested pos. for many of the white fish and mackerel and haven't successfully re-introduced any of them yet but I can still eat salmon without problem. If you can figure out just one variety that you can tolerate that would help. What about shrimp? Some of these other proteins are not ones that most people eat everday but we who are restricted need to work these things in to keep some balance for our health. Looks like you can still have pork? Ground turkey or ground pork are useful.

VEG AND GRAINS

NO...

soy

corn

nightshades

potatoes

You can still have all those green veggies. So many veg. I won't list them.

Grains-buckwheat(Kasha) Birkett Mills sells whole grain buckwheat that can be used in pilafs. Have you tried it?

NO FRUITS

What about dairy?

Yes, nuts and seeds are a good addition if you tolerate them! Coconut?

Herbs for flavor and single spices, coconut oil, flavored olive oils(I'm enjoying some lemon infused olive oil these days.

Start by listing all the things you CAN have and then figure out what you can do with them, how you can combine them. Start you meal plans with a meat and veg. meal, maybe paleo or low-carb inspired.

RiceGuy Collaborator

As was mentioned, amaranth and quinoa aren't actually grains. Neither is buckwheat, which is a seed, and related to rhubarb. However, legumes are even better when it comes to protein, fiber, and many other nutrients. Lentils are especially good, and the red/yellow ones cook in about 20-30 minutes, no soaking required.

Sunflower seeds are also a good protein source, and when toasted and made into butter, taste remarkably like peanut butter. Sesame butter (tahini) is also tasty and versatile.

In place of potato, try taro root. It is white inside like a potato, and can be used in all the same ways as potato, including boiled, mashed, fried, baked, and even chips. The taste is very similar. I think it is more flavorful.

In place of tomato sauce, try a product called Nomato. The taste is very good IMO.

Last but not least, you might find it beneficial to take digestive enzymes with your meals. This may help you digest more foods without issues (as long as it's not an actual sensitivity).

dilettantesteph Collaborator

One issue is are you reacting because you are intolerant to these foods, or is it trace gluten contamination?

For example, I ate tomatoes all summer from a particular supplier at the Farmer's Market. Before that I found that certain provider's tomatoes from the grocery store bothered me and certain others didn't. When my supplier stopped coming to the Farmer's market, I went back to the store tomatoes and started reacting again. I had some green tomatoes ripening in a bag from my home garden and I could eat those no problem. With tomatoes, I don't believe I am intolerant to them, I just need to find a safe source.

Another example, I couldn't find a soy yogurt which I didn't react to, yet if I buy edamame in the pod, shell and eat those, I don't react.

Grains are another example. To be able to eat them, I sort them, remove grains which don't belong, triple wash with soap, and rinse well.

I haven't found sugar which I can tolerate yet, but I did find a honey.

I eat eggs from pasture raised chickens. I get my dairy from a farmer who pasture raised his cows and supplements them with non gluten grains.

It is possible that methods like these will work for you too. It takes a lot of careful eating and gradually adding foods that are carefully sourced and cleaned.

I don't like red meat either. Too bad because it has a good amount of calories, and is a lot more economical than seafood.

With seafood, I buy wild, not farmed and I ask them to get it out of a new container with fresh gloves. That has been working well, I just can't afford to do it all that frequently. The first time I got it from the display case like everybody else and it made me have glutening symptoms. They sell various breaded seafood as well and there may have been some cc.

I hope this helps. It is no fun not having anything that you can eat.

GFinDC Veteran

Sweet potatoes are another option. I can eat them fine but I can't eat nightshades, (tomatoes, peppers, white potatoes, eggplant).

Cucumbers, broccoli, bananas, parsley, brown rice, mushrooms, leeks, onions, beans, there are lots of other veggies to consider also.

I get gassed up big time if I eat peas, but I can do them if I take a digestive enzyme with alpha-galactosidase in it. Same stuff as in Beano, but Beano has gluten, so look for another enzyme product. Bean-zyme is supposed to be good but I haven't tried it yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



revenant Enthusiast

Thanks guys :)

How cheap is quinoa/amaranth? I'm currently in a money situation, but i'll look into that

I had sweetpotatoes and yams for lunch and with no ill effects :) yay! All this time thinking they were a nightshade.

Also will try turkey

GFinDC Veteran

Yeah, sweet taters are good for making soup too. Put a couple in a pressure cooker with water and give them about 20 minutes and they turn to mush when you stir it up. They add a nice flavor to soups or stews. I just started eating beans again and they seem to be going ok for me. Of course you could have some other veggies and some meats in there too.

missy'smom Collaborator

The buckwheat is sold in the Jewish/Passover section. Can't remember the pricing but if I remember te Birkett Mills, which is a common brand is in a gluten-free facility. Check their website. They have lots of recipes there too.

Take ground pork, add your own seasonings and make sausage patties to have with those sweet potatoes. You can add in some cooked quinoa instead of the usual fillers.

Since turkeys are abundant this time of year, if you roast one. Take the leftover carcass and instead of tossing it, add it to a large stockpot with water, carrots, onions, peppercorns etc. and make your own stock for soups. Makes alot. Very cheap. Soy-free etc. Tastier than any storebought. Instructions can be found anywhere. Very easy. You can add the turkey meat later when you make soup or you can form little meatballs with raw ground turkey meat, a bit of herbs, salt etc. and gently simmer them in the broth.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    2. - Scott Adams replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    3. - KDeL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      diagnostic testing variance

    4. - Peggy M replied to louissthephin's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Does Kroger Offer Affordable Gluten-Free Options?

    5. - Scott Adams replied to Sunshine4's topic in Related Issues & Disorders
      4

      Neurologic symptoms - Muscle Twitching and Hand Tremors


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,278
    • Most Online (within 30 mins)
      7,748

    Pinkwells19
    Newest Member
    Pinkwells19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Kroeger has quite a few Gluten free items.  Right now they are redoing my Kroeger store and are adding everything into the regular sections.  Since this was done some new ones have been added.  Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
    • Scott Adams
      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
×
×
  • Create New...