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Self Elimination Diet - Risky?

Bobbie Jo

By Bobbie Jo
in Coping with Celiac Disease

Recommended Posts

sandsurfgirl Collaborator
sandsurfgirl
Posted

Yes, that's true, but before going gluten-free and despite my pizza slice comment I was eating pretty darn healthy anyway. But I missed the point that even if I am missing out on vitamins and minerals from the bread, when I was eating it, they were probably getting cancelled out by the gluten!!

When your villi are damaged you aren't absorbing nutrients and you are malnourished no matter how healthy you eat. So when you quit eating gluten and the small intestine heals, you actually absorb what you eat!

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concernedlady Rookie
concernedlady
Posted

Hi Bobbie and all,

I first learned about Celiac Disease, from a very nice guy---friend of my hubby, and this friend was told by a doctor, 20-30 years ago, to just stop eating gluten (the friend had all the usual symptoms of Celiac Disease). This friend soon got well, and has stayed well, as long as he doesn't accidentally get "glutenized". He never had any endoscopy done--no biopsies--he just listened to the wise doc, way back then, who I personally suspect also had Celiac Disease, and "recognized" that possibility in this friend!

Fast forward to a few years ago:

I learned about the existence of non-Celiac gluten sensitivity, from a gal Cara, who frequented a peripheral neuropathy forum that I was on (I had peripheral neuropathy, probably from a Vitamin B 12 deficiency, probably from lack of enough stomach acid).

Cara had learned about gluten sensitivity from Dr. Kenneth Fine, MD (gastro doc in Dallas, TX) who has "EnteroLab", at www.finerhealth.com

My hubby had enough health problems, that I finally said, "Let's both of us have the non-invasive stool sample tests done, by EnteroLab". He finally said OK, and HE came back positive for gluten sensitivity, while I came back negative. My hubby was annoyed, but, he tried going gluten-free, and it has helped him A LOT! He hardly ever gets sick anymore, etc. He does pay a price, if he cheats, or accidentally gets glutenized.

I loved everything that you all said in this thread!

What I feel is this: Whether one has Celiac Disease, or a non-Celiac form of gluten sensitivity, the "cure" is the same: Avoid gluten!

I recommend this good forum, and a few other good Gluten-free forums, to all who find my website about VCD (vocal cord dysfunction). Several people have told me they couldn't cure their VCD (short duration "laryngospasms") until they stopped having severe reflux, and they couldn't decrease their reflux significantly, until they finally tried my advice, which was: try going off gluten for several months, and see if it helps.Carol (concerned lady)

Bobbie Jo Rookie
Bobbie Jo
Posted
  • Author

Hey You all - That response was from my Colorado friend Carol, a retired nurse who helped me realize I was gluten sensitive. She's awesome!

Loey Rising Star
Loey
Posted
On 11/25/2010 at 3:17 AM, concernedlady said:

Hi Bobbie and all,

I first learned about Celiac Disease, from a very nice guy---friend of my hubby, and this friend was told by a doctor, 20-30 years ago, to just stop eating gluten (the friend had all the usual symptoms of Celiac Disease). This friend soon got well, and has stayed well, as long as he doesn't accidentally get "glutenized". He never had any endoscopy done--no biopsies--he just listened to the wise doc, way back then, who I personally suspect also had Celiac Disease, and "recognized" that possibility in this friend!

Fast forward to a few years ago:

I learned about the existence of non-Celiac gluten sensitivity, from a gal Cara, who frequented a peripheral neuropathy forum that I was on (I had peripheral neuropathy, probably from a Vitamin B 12 deficiency, probably from lack of enough stomach acid).

Cara had learned about gluten sensitivity from Dr. Kenneth Fine, MD (gastro doc in Dallas, TX) who has "EnteroLab", at www.finerhealth.com

My hubby had enough health problems, that I finally said, "Let's both of us have the non-invasive stool sample tests done, by EnteroLab". He finally said OK, and HE came back positive for gluten sensitivity, while I came back negative. My hubby was annoyed, but, he tried going gluten-free, and it has helped him A LOT! He hardly ever gets sick anymore, etc. He does pay a price, if he cheats, or accidentally gets glutenized.

I loved everything that you all said in this thread!

What I feel is this: Whether one has Celiac Disease, or a non-Celiac form of gluten sensitivity, the "cure" is the same: Avoid gluten!

I recommend this good forum, and a few other good Gluten-free forums, to all who find my website about VCD (vocal cord dysfunction). Several people have told me they couldn't cure their VCD (short duration "laryngospasms") until they stopped having severe reflux, and they couldn't decrease their reflux significantly, until they finally tried my advice, which was: try going off gluten for several months, and see if it helps.

Carol (concerned lady)

Welcome Carol and have a wonderful Thanksgiving!!!!!

Loey

concernedlady Rookie
concernedlady
Posted

Hi Bobby! Thanks for your kind words! Thanks, Loey for your welcome, too!

If anyone sees anything needing clarification or corrections to my gluten-free info in my website, let me know! I have some gluten-free info in Appendices B & E, on webpage 10 of my website.Sincerely, Carol (concerned lady)

Loey Rising Star
Loey
Posted

When our body is constantly exposed to something that disagrees with it, even though it produces antibodies toward it, it tries to maintain a state of what I would call homeostasis, whereby it can continue to function as well as possible. It doesn't like the gluten, but with a constant stream of it it has to handle it the best it can. Once the gluten is withdrawn, the body draws a deep breath, Aaahhh!! and says, now I can recover. So it stops making the antibodies and sets about the healing process. But if suddenly confronted with gluten again, all the antibody soldiers, who have been waiting in the wings all this time, come charging forth with bayonets drawn and attack those little gluten monsters before they can re-establish :lol:

So the danger lies not in the withdrawal of something that does not agree with you, but in trying to reintroduce it. If it does not disagree with you, you can start and stop it with impunity.

Shroomie, what would we do without your knowledge and wit? Hope we never have to find out!!!!!!!!!!!

((HUGS))

Loey

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