Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Women Only - Mensuration Symptoms

lolarose

Recommended Posts

lolarose Newbie
lolarose
Posted

Hi

I am a brand new celiac, who is actually still waiting for confirmation from test results

What I'm wondering about is symptoms with mensuration

When my typical celiac symptoms started to become severe I also started to have a constant period. I mean I am always menstruating, it's so heavy, but it never stops!

Is this a symptom of celiac disease? Or do I have something else too?

I have done every test, changed pills and even gone off hormones, nothing changes. It's been about 2 years now.

I've gone gluten free for around one month now and my period stopped for 3 days and then started again.

I know that celiac disease can have an affect on fertility and I've read that some women stop getting one or have a very irregular period. So what about the opposite.

Is a constant period a symptom?

and what can I do about it.

I'm desperate, this has been by far the worst symptom I've had and it has been disrupting every single part of my life, including what I get to wear everyday to my yoga practice.

Any insight would be great!

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SaraKat Contributor
SaraKat
Posted

I think a constant period would warrant a trip to the GYN. I noticed about 16 months ago my periods were acting up- like it would come early and last longer. I've always been super regular too so this was very alarming to me. I was dx'd with celiac 3 months ago and I am wondering if the weird periods were part of celiac. My GYN said no, but I find it coincidental.

Have you had a pelvic U/S?

India Contributor
India
Posted

I don't have the same problem but I can confirm that gluten definitely affects my menstruation - hello gluten, goodbye periods, like clockwork.

The main reason for my reply though is to suggest that your doctor should keep a close eye on your iron levels, because I expect that with constant periods you're at a high risk of anaemia.

Mama Melissa Enthusiast
Mama Melissa
Posted

I am celiac and dont have the same problem,but i have heard of alot of celiacs also having endometrosis maybe you should see if you have that goodluck with everything hun!! xoxo

txplowgirl Enthusiast
txplowgirl
Posted

I don't have the constant bleeding, but i do have heavy painful periods due to endometriosis. Don't have ins or the money for surgery so I just have to deal with it. I had the test that shows i inherited this from both sides of my family. My mother is 69 years old and she has all the symptoms of celiac. But she refuses to go gluten free or get tested even though she lost 4 brothers, 1 sister, her father and 3 of his sisters to cancer. She bled constantly from the age of 10 until she had my brother at the age of 30. She had about 3 days out of the month that she didn't bleed. She said she had all sorts of tests and the dr's told her that it was due to endometriosis. A few months after my brother was born her thyroid went out of whack and they had to totally remove it plus she had to have a hysterectomy at the same time.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,159
    • Most Online (within 30 mins)
      7,748
    Elaine Gilbert
    Newest Member
    Elaine Gilbert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Testing

      By trents · Posted

      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Testing

      By Scott Adams · Posted

      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or Addison's complications? Can someone share their experience?

      By Scott Adams · Posted

      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
    • Kj44
      Testing

      By Kj44 · Posted

      Hello I received this in a genetic lab test I requested from my provider.    The patient is positive for DQA1*05, one half of the DQ2 heterodimer. The celiac disease risk from the HLA DQA/DQB genotype is approximately 1:1842 (0.05%). This is less than the 1% risk in the general population. Allele interpretation for all loci based on IMGT/HLA database version 3.55 HLA Lab CLIA ID Number 34D0954530 Greater than 95% of celiac patients are positive for either DQ2 or DQ8 (Sollid and Thorsby, (1993) Gastroenterology 105:910-922). However these antigens may also be present in patients who do not have Celiac disease.   Some background, I have been eating gluten free for about 10 years now. I have never had an official celiac diagnosis due to endoscopy and labs tested after I had already been eating gluten free for over 1 year. I was constantly sick and told you slowly remove foods and see what effects my symptoms. I have also come to realize that I have other symptoms of celiacs and recently requested the genetic testing shown above.    I am looking to see if anyone has other recommendations for testing or just to clarify the results for me as I feel the official diagnosis could be helpful but I am not positive that it is even true for me. 
    • cvz
      Celiac or Addison's complications? Can someone share their experience?

      By cvz · Posted

      My daughter, age 48, has Down syndrome, hypothyroidism, Addison's disease, and Celiac disease, which was diagnosed based on blood tests last July.  After a small intestine biopsy last fall, we were told that she has severe celiac disease.  She is taking both levothyroxine and leothyronine for her hypothyroidism and both hydrocortisone and fludrocortisone for Addison's disease.  She also takes Folic acid, magnesium, vitamin B-12, DHEA (DAGA), and a multivitamin.  In July, she started on a gluten-free diet and is very compliant.  She has had constipation and diarrhea issues all her life and now controls the constipation with Miralax, prunes, and apricots.  Shel has only very occasional syncopes or vasovagal events and muscle aches in her upper back and neck.  She drinks 4-6 or more 12 oz bottles or of liquid per day.  Her doctor has just suggested adding electrolytes to one of those bottles daily.   We are sorry to learn about the issues you are having and would like to stay in touch.  We do not know anyone else with both Addison's disease and celiac disease.  So far, she has no recognizable symptoms.  We are doing our best to keep her gluten-free, but have no way of knowing if she has had an exposure to it unless we catch it ourselves.  For example, a few weeks ago, a restaurant mistakenly breaded her fish, and I did not notice it until she had eaten most of it.  She had no identifiable symptoms of the exposure then or days later. By the way, the reason she was screened for Celiac disease was that her blood lipase levels were unexplainably high.  They still are.  We have no idea why.    
×
×
  • Create New...