Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Blood Tests More Accurate If Done More Than Once?


Ox on the Roof

Recommended Posts

Ox on the Roof Apprentice

Hi, all. This is my first post here. :)

I've been sick for 1 1/2 years. My first symptoms were neurological but soon turned into both neuro and gastro. I was sent down the "must be anxiety so try out about six different anti-depressants and make her even sicker" road until it was discovered eight months later that I was deficient in vitamins D and B12.

After starting on high doses of D and bi-weekly shots of B12, the neuro symptoms finally went away. WOOHOO! But the gastro symptoms still persist. In September, they told me that my gallbladder was only functioning at 11%, so I had that pulled; felt good for a while, but it came back again.

This whole time, the most persistent symptom is BELCHING. (If you've seen the movie "Elf," I often want to say, "Did you HEAR that?!?!") Of course, with all that air in my stomach, I don't want to eat and I get nauseated. If one more doctor tries to tell me I am swallowing air....BLAH!

I also suffer from fatigue, and I just FEEL BADLY in general, especially in the mornings. Again, the doctors all start trying to tell me it's because I have three small kids (8,5, and 3). I think if you don't go into the appointment acting like you are dying, they don't take you very seriously. Sorry if I seem jaded towards the medical community. It's hard to be nice when twelve different doctors can't tell you what's wrong, and the bills are rolling in.

ANYHOW! Back to my original question. I've apparently been tested two or three times for Celiac, by three different doctors. No one has been forthcoming about which tests were run, or what the values were. But they all said my results were negative. I've read on this website that the blood tests aren't as reliable as a biopsy (they did an upper endoscopy when I first became ill but apparently did not check for Celiac). So my question is, does the reliability of the blood tests go up if you've been tested more than once?

Thanks for any information/stories/empathy you can provide!

Jenny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It depends on the person. I was tested over and over and never came back positive. Some of us just show false negatives on the tests. Have you tried the diet yet? Also if you are in the US you have a legal right to copies of those test results. If you post the results here someone might be able to help. Sometimes tests are not as negative as doctors fell they are. Do be sure to include the labs reference ranges.

Ox on the Roof Apprentice

Thanks for the kind reply, Ravenwood. I will try to get my labs after the holiday. I haven't tried the diet yet but it's worth a try. I guess today might not be the best day to start! LOL!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,040
    • Most Online (within 30 mins)
      7,748

    Cindy415
    Newest Member
    Cindy415
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Marie
      Is it worth it to remove gluten before they potentially do an endoscopy & biopsy? I thought I read it’s best to be eating gluten for 3 months prior to it. So hoping they have a cancellation and call us in sooner. 
    • LCO
      Thank you very much!
    • Aleda D
      Thank you for the warning. I get blood tests twice a year to check where I stand with the vitamins I regularly take, so I appreciate the extra reminder. I know some vitamins don’t build up but now I will watch the B6 for sure. 
    • trents
      I think you would do well to take a high potency B-complex such that you get more balanced dosage across the spectrum of B vitamins. They work in concert.
    • Scott Adams
      Around 5 years ago I visited Tokyo, and luckily had my sister in law with me who is from there, otherwise it would have been more difficult. The bottom line is that there are tons of naturally gluten-free food options there, but you need to be able to communicate your needs to restaurant staff. Here is a gluten-free restaurant card for American visitors in Tokyo. It includes a request for a gluten-free meal and mentions common gluten-containing ingredients to avoid, like soy sauce and miso. English: Thank you. Japanese:   You can also download the Google Translate app, and besides being able to help you speak with people there about this, it has a camera app that translates Japanese text to English in your camera, so you can use it when shopping in a supermarket.
×
×
  • Create New...