Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Noticed Something Odd


polarbearscooby

Recommended Posts

polarbearscooby Explorer

So, I've always had fairly clear skin right? I'm 20 and I've only had a dozen pimples in my life :P But I've noticed that whenever I get glutened I can expect to get a few of them within the next couple of days. Does anyone else have this issue?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Yes, I do. I often wonder if the pimples are related to DH. What do you think, folks?

I also often get a canker sore, as well as a migraine.

On its way down (after a couple of days) my body gets sore and sometimes I get painful lumps on my old hip injury.

I often too get depressed/anxious say a week later...

Lovely, eh?

Bea

Marz Enthusiast

Yeah, I'm close to 30 and really struggling with monster zits the last couple of months while I've been gluten-free (and getting accidently glutened now and then). Really,really annoying having pimple breakouts when you're not a teenager... :/

YoloGx Rookie

When I was in my twenties I had much pimples in my scalp and running down my neck and onto my back. It was dangerous really--I ended up getting kidney disease and the beginnings of skin cancer. Avoiding gluten and other allergens changed that. I didn't fully recover my heath til more recently by finally discovering I have to avoid all trace gluten, as well as a host of other allergens.

Meanwhile, detox herbs helped considerably...

As said, even now if I get glutened, sometimes I will get a pimple or two as well as a bunch of other symptoms.

I do wonder if this isn't related to DH. If this happens to you a lot, you might want to get this possibility checked out.

Bea

rosetapper23 Explorer

DH begins at the average age of 20, so your outbreaks would be consistent with having it. However, you may simply have pimples. Both my son and I were 19 when we developed DH for the first time, and my dermatologist treated it as an extreme case of acne. Of course, the medications burned and peeled my sensitive skin, and I was tortured for four years until I made the connection to iodine (not gluten, though). I removed all iodine from my diet, and I was fine thereafter except with occasional flare-ups. It wasn't until I was 47 and learned that I had celiac that I was able to put two and two together. Because I now take thyroid medication (which contains iodine), even the slightest gluten contamination causes a small outbreak of DH on my face and neck. At least for my DH, it takes BOTH gluten and iodine to cause an outbreak. My son, who was diagnosed with celiac at one month short of age 16, developed DH at 19 when he cheated on his gluten-free diet. Because of the DH, he stringently follows a gluten-free diet now.

MelindaLee Contributor

I noticed the same thing. Also the "zits" are always at my jawline. Not like the acne I had when I was a teen (I'm 42 now)

polarbearscooby Explorer

At least I'm not the only one, that's good to know :)

I don't think this is DH because I recently had my first bought of DH last summer....it was awful. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

At least I'm not the only one, that's good to know :)

I don't think this is DH because I recently had my first bought of DH last summer....it was awful. :(

At this point I think I have DH light since I rarely get it any more. The detox herbs and eating lots of veggies plus exercise really helps...and of course, avoiding gluten!

I still get very itchy eczema however from eating tomatoes/potatoes/peppers--in my ears and crotch. And am also just discovering I can't tolerate coconut oil etc. at all...from the point of view of my skin or my nervous system (including sleeplessness due to on fire sciatica at night). Without all that I sleep fine. With these items I get scaly, puffed out red areas that can crack and bleed not to speak of driving me crazy itchy.

In my twenties I had terrible skin, whereas now everyone comments on how clear and young looking it is.. My hair too has so much more body. It used to be straight and lifeless, falling out all the time. In fact I used to think that was "normal"--for me that is. Now it looks great. I never have to set it at all--it waves naturally. I guess these are some of the benefits to figuring all this stuff out, besides feeling so much better.

Bea

srall Contributor

I had rosacea clear up when I went gluten free, but that may have been because I also dropped dairy, and greatly reduced the processed foods and sugar I was eating. I still get a pimple here and there but i haven't tied it to gluten. Right before I went gluten free for good I got the DH rash and I still have scars from that, but they could not possibly be mistaken for pimples or acne.

Rowena Rising Star

I ain't no expert, that's for certain. But I certainly see a connection with my acne and glutenings etc. Like someone above me mentioned, I had always been treated with a fairly severe case of acne. But I have a high sensitivity to a lot of topical products, so the treatment had to be very careful. I can't use most of the heavy creams used to treat acne. I always associated that with benzoyl peroxide, clindamycin, and other such ingredients. They turned my face red and I felt by the end of the day that I had no skin left on my face. That's how much it burned. I could never wait to wash my face because for that brief moment my face felt... well normal. (I gotta admit though, the burning and peeling did do a good job of clearing up my acne.)

Well anyway, since my miscarry in the spring of 2009, I have had the worst acne, and of course it went untreated because I feared doctors would give me the very medicines I am sensitive too. Plus we had no money. It correlated with my horrible health that I have had since my miscarry. It took doctors so long to figure out what on earth was wrong with me. Finally this october, my new doctor tested me for celiac. (I of course did a bunch of research on what it was, and discovered gluten was in nearly everything that made me feel the worst.) Of course my results, like everything else turned out to be negative. But I had already determined that I would try the gluten free diet. After a year and a half of being nonstop sick, I was determined to do ANYTHING to make me feel better.

But along with the gluten free diet (which has been working quite well for me by the way, I feel like a whole new person), I have noticed my acne clear up. And I certainly don't have as much of a problem with shampoos and soaps hurting me anymore, a problem I have had for years.

Bella001 Explorer

So, I've always had fairly clear skin right? I'm 20 and I've only had a dozen pimples in my life :P But I've noticed that whenever I get glutened I can expect to get a few of them within the next couple of days. Does anyone else have this issue?

I break out really bad around my jaw line when I get glutened. The lady who does my facials said that the jaw line is your digestive system, guess she is right!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,915
    • Most Online (within 30 mins)
      7,748

    Nana Lonnie
    Newest Member
    Nana Lonnie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
    • Jack Common
      My old results (almost a year ago) are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   I didn't have any symptoms now except tiredness but I think it's just work. I'm not IgA deficient as you can see so I don't need to do this Deamidated gliadin peptide IgG test. But I do because it's sometimes not in the normal range. What do you think this time? I think I don't have celiac disease. But this test... 
    • Wheatwacked
      @plumbago, I found a good PDF on cholesterol:  Unlocking the mysteries of VLDL: exploring its production, intracellular trafficking, and metabolism as therapeutic targets I just started it, but it may have answers for us, with whacky cholesterol.  The pharmaceuticals don't seem to be interested in anything but statins.   "The nicotine in tobacco causes a decrease in the HDL cholesterol level. " Maybe you should start smoking? 🤪 I have high LDL and low HDL.  It is genetic mutations in the LDLR, APOB, PCSK9, or LDLRAP1 genes. My whole family is on statins for Familial Hyperliperdemia except me.  December I had ultrasound and cat scan for Carotid Artery blockage and both sides are above 85% blockage.  I started on Atorvastatin and that made me weaker than ever, even with CoQ10.  I asked for and got prescription for 2000 mg/day Nicotinic Acid B3 and in the 3 weeks my numbers changed. I am feeling realy good lately.  Stronger and more flexible.  Sleeping better.  Getting roto router (TCar) as soon as I get clearance from a cardiologist.  I expect that by my next blood panels in April to be even better. I am beginning to believe that like vitamin D where the RDA only accounts for preventing Rickets, the RDA for B3 is way underestimated.   From Oct 22 to Jan 17: A1c from 13.5 to 10.2 eGFR from 55 to 79 Triglyeride from 458 to 362 Total cholesterol from 245 to 264 HDL from 27 to 44 VLDL from 84 to 68 LDL from 134 to 154
    • plumbago
      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
    • trents
      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
×
×
  • Create New...