I have recently been diagnosed with Celiac disease. I also have RA & Interstitial Cystitis.  I have tried many meds & treatments for the cystitis without relief & now wondering if the inflammation in my bladder could be related to my Celiac. I have started a gluten free diet hoping that this may relieve my symptoms.  I’m just getting started in this disease & would appreciate any comments & advice. Q

Wheatwacked, did you mean to say, " . . . and not eating gluten is probably the biggest mistake of our lives"?

Hello @Dhruv, My 16 year old nephew was diagnosed two years.  That's not an easy age. This year the whole family has been diagnosed. You might consider getting yourself tested.  When my son was diagnosed his doctor suggested my wife and I should also get tested.  We declined and not eating gluten free is probably the biggest mistake of our lives. Keep up with the cricket.  My son, diagnosed in 1976 at weaning, was on a swim team since 5.  Peer pressure will be a problem with the gluten free diet but his teammates can be supportive. I think this article will help you understand the test results. Are You Confused About Your Celiac Disease Lab Results? While it may be 'silent' there are many symptoms of Celiac Disease that are mistakenly assumed to be 'growing up', or 'normal'.  They are not.  When I started gluten free diet at 63 I wrote down a list of 19 different symptoms that went away with just no gluten.  The rest was undoing vitamin and mineral malnutrition that developed over my life.    

Thank you so much for this info. I won't know my levels of anything until my next appointment, but I am saving this info and will contact you if I'd like to get more detail. I'm so happy you found some real help!

I also did not have the so-called typical Celiac symptoms, my main complaint was always getting sick, asthma, loss of sense of smell, and kidneys were failing. My GFR was in 40's - 50's and docs saying "Kidneys don't get better, we can only slow the decline" also "We don't do anything for kidneys until you are ready for dialysis." I was blown away, so decided to go to a naturopath who diagnosed me with Celiacs rather quickly. After the Celiac diagnosis and lots of improvement overall on gluten-free diet, kidneys came back a little, but not great like I'd hoped.  I had improvement in asthma and other issues with benfotiamine (b1), metylcobalamin (b12), and flush niacin (b3), but kidney improvement remained elusive. Ok so I'll admit I became an internet doctor and searched and read everything to get kidney function up. I happened across someone on Twitter who touts natural immunity and supplements for healing. So I tried what she recommended for CKD:  Nettle seed extract, silymarin (milk thistle), and Cordyceps mushrooms. I started at the end of April of this year, and got my kidneys checked in mid-September. In 4 1/2 months, GFR went up to 70!  All other numbers looked fantastic. I can't say it will help you, but worth investigating. I believe dosage amounts are important, so let me know if you want more information.