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- trents replied to kim-d's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Postponing seeking a diagnosis?
Although the gluten challenge guidelines suggest at least two weeks of at least 10g of gluten daily, I would go for 4 weeks to make sure - if you can tolerate it, that is. When you go in for the blood draw, make sure to ask your physician to order not only the tTG-IGA test but the total IGA test. The tTG-IGA test result cannot be trusted if you are IGA... -
- trents replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18
Daughter waiting for appointment
She carries one of the two primary genes that indicate the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. So, the gene test cannot be used to diagnose celiac disease but it can be used as a rule out measure. Having either one of... -
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- kim-d replied to kim-d's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Postponing seeking a diagnosis?
Thanks, @trents. That was what I was thinking of as well, but I'm a huge worrier and keep doubting if it was right thing to do so it seemed better to ask more experienced people. My diet won't be 100% gluten free unfortunately, but I'm thinking of using it as an opportunity to keep a food log and try to see what makes things worse. -
- jjiillee replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Daughter waiting for appointment
Her Dr gave her meds for the ulcers and recommend the genetic blood test to rule out celiac. Got those results and the hla-dq2 is positive the hla-dq8 is negative. So I’m not sure what this all means. Waiting to hear from the Dr again. She has been eating gluten and did say she got bad stomach pain again the other day but it hasn’t happened in a few weeks so ...
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By pmarklesparkle · Posted
After seeing 2 doctors for a rash on my elbows and forearms, that did NOT get better with steroids or creams, I was directed to a dermatologist. She took a biopsy from one of the lesions, September 3, 2024. A week later, the result was dermatitis herpetiformis, positive for celiac. She prescribed Clobetasol Propionate USP, 0.05% cream. This is the only thing that helped with the rash. The dermatologist then took a second biopsy from an area that was near the rash that was clearing up. That biopsy came back negative. Meanwhile, the dermatologist referred me to a gastroenterologist PA. The battery of bloodwork was mixed, some showing weak positive for celiac, but my IgA was considered normal. The PA told me I may have mild Celiac and should just monitor my gluten intake. I knew she was wrong. There is NO SUCH THING as mild celiac. So, I saw another practice's gastro NP. The bloodwork actually looked better, but she ordered an endoscopy biopsy. the only way to get a conclusive diagnosis for celiac. (In order to get an accurate result for this biopsy, one must be consume gluten for a minimum of 14 days before the endoscopy.) Finally, I had my celiac disease diagnosis. As I continue to navigate a gluten free diet (so far unsuccessfully) now including shampoo, conditioner, toothpaste, lip balm, sunscreen, body lotion, soap, make up etc... my dermatitis herpetiformis pops up. The Clobetasol Propionate USP, 0.05% cream helps keep things at bay. I hope this helps you! -
Although the gluten challenge guidelines suggest at least two weeks of at least 10g of gluten daily, I would go for 4 weeks to make sure - if you can tolerate it, that is. When you go in for the blood draw, make sure to ask your physician to order not only the tTG-IGA test but the total IGA test. The tTG-IGA test result cannot be trusted if you are IGA deficient. The total IGA test checks for IGA deficiency. Many physicians will order only the tTG-IGA. So, at the minimum, the doc should order the tTG-IGA and the total IGA. There are other celiac antibody tests that can also be ordered for a more comprehensive panel, especially in the case of IGA deficiency. Here is an overview of celiac disease antibody testing:
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She carries one of the two primary genes that indicate the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. So, the gene test cannot be used to diagnose celiac disease but it can be used as a rule out measure. Having either one of the genes provides the potential for developing celiac disease with the HLADQ2, in my understanding, providing the strongest potential of the two while having both genes provides an even stronger potential. What meds did the physician put her on for the ulcers?
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Thanks, @trents. That was what I was thinking of as well, but I'm a huge worrier and keep doubting if it was right thing to do so it seemed better to ask more experienced people. My diet won't be 100% gluten free unfortunately, but I'm thinking of using it as an opportunity to keep a food log and try to see what makes things worse.
-
Her Dr gave her meds for the ulcers and recommend the genetic blood test to rule out celiac. Got those results and the hla-dq2 is positive the hla-dq8 is negative. So I’m not sure what this all means. Waiting to hear from the Dr again. She has been eating gluten and did say she got bad stomach pain again the other day but it hasn’t happened in a few weeks so I’m not sure if it’s from gluten or the ulcers.
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