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- knitty kitty replied to CeliacChica's topic in Related Issues & Disorders30Muscle Twitching
Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium. B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy... -
- StaciField replied to StaciField's topic in Related Issues & Disorders8My bone structure is disintegrating and I’m having to have my teeth removed
There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice. -
- Wheatwacked replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Celiac Maybe a Possibility?
It seems you have proven that you cannot eat gluten. You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease. Zinc is also a common defiency. Its an antiviral. that's why zinc gluconate lozenges work against airborne viruses. Vitamin D and the Immune System+ ... -
- John.B posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Allergy Meds
Hello, Target recently changed their branding on the Up & Up Loratadine and no long have it labeled gluten free. I've not been able to find any meds labeled gluten free for allergies. Some lists showed them but the the packaging isn't labeled. Wondering if anyone knows of or has a list that would be safe for Celiac kiddos. -
- Scott Adams replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Weird Symptoms
My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
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0December 11, 2024 12:00 AM
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Posts
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By knitty kitty · Posted
Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium. B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy, that burning sensation. (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC9804944/ ) Long Covid can be the result of nutritional deficiencies, as well. Zinc, Selenium, Vitamin D, B12, Thiamine, Riboflavin, Pyridoxine, Niacin, and Choline. (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC10015545/ and https://pubmed.ncbi.nlm.nih.gov/36587225/ ) I agree with @Wheatwacked to get Vitamin D level higher, 80 ng/ml. Taking high doses of Vitamin D to correct a deficiency has been found to be beneficial. I took Vitamin D3 supplements throughout the day when I had a severe deficiency. It got my level up quickly and I started feeling much better. (See... https://pubmed.ncbi.nlm.nih.gov/28167237/ , https://pmc.ncbi.nlm.nih.gov/articles/PMC4824637/) Vitamin D is a fat soluble vitamin. Fats can be difficult to digest and absorb, so most of the newly diagnosed can be low in the four fat soluble vitamins (A,D,E,K). A deficiency in Vitamin A can cause dry eyes. Omega Threes and Evening Primrose Oil help with dry eyes, too. (https://pmc.ncbi.nlm.nih.gov/articles/PMC10363387/) Blood tests are not accurate measurements of vitamin levels. Blood tests will reflect any supplements being taken. Blood tests do not measure how much of a vitamin is stored inside cells. Supplementing with all eight essential B vitamins for several months will boost your ability to absorb the needed nutrients. A deficiency in Cobalamine, B12, can be aggravated by anesthesia. Cobalt in Cobalamine binds irrevocably, irreversibly with the Nitrogen in anesthesia, rendering B12 useless. Supplementing with B12 after exposure to anesthesia is beneficial. (https://pubmed.ncbi.nlm.nih.gov/8250714/) Pyridoxine B6 and Riboflavin B2 as well as B12 are needed to lower histamine levels (produced during the inflammation process that occurs in Celiac Disease). This can help relieve the sinus pressure. Riboflavin B2 and Thiamine B1 are helpful with headaches. We need more Thiamine when we are emotionally stressed, physically ill, and physically active. Benfotiamine, a form of Thiamine, has been shown to promote intestinal healing. Thiamine is helpful in relieving anxiety. (https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ , https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ ) Celiac Disease causes malabsorption of vitamins and minerals. It is rare to have a single vitamin deficiency. Malabsorption in celiac disease affects all the nutrients we need. Some vitamins just run out sooner than others because they can't be stored or we have a metabolic need for more. (https://pmc.ncbi.nlm.nih.gov/articles/PMC10106602/ ) Hope this helps! -
By StaciField · Posted
There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice. -
By Wheatwacked · Posted
It seems you have proven that you cannot eat gluten. You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease. Zinc is also a common defiency. Its an antiviral. that's why zinc gluconate lozenges work against airborne viruses. Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps. When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer. Any excess is stored in fat or excreted through bile. The western diet is deficient in many nutrients including choline and iodine. Thats why processed foods are fortified. Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage. GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal. Try to reduce your omega 6:3 ratio. The Standard American Diet is 14:1 or greater. Healthy is 3:1. Wheat flour is 22:1. Potatoes are 3:1 while sweet potatoes are 14:1. So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels. -
Hello, Target recently changed their branding on the Up & Up Loratadine and no long have it labeled gluten free. I've not been able to find any meds labeled gluten free for allergies. Some lists showed them but the the packaging isn't labeled. Wondering if anyone knows of or has a list that would be safe for Celiac kiddos.
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By Scott Adams · Posted
My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
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