Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lectin Lock - Product Review

mushroom

By mushroom
in Food Intolerance & Leaky Gut

Recommended Posts

mushroom Proficient
mushroom
Posted

Those of you who have been around for more than a few months will know that for some time now I have been yammering on about lectins, and my suspicion that they are at the core of my other food intolerances. This 'gut' :blink: feeling was reinforced over the summer when I consulted Krispin Sullivan, a nutritionist, and by a cardiologist after I went into atrial fibrillation from one of my food episodes. I had been reading about this product called Lectin Lock and Krispin thought it would be good to try it. It is expensive, but a-fib is something I don't want to mess around with.

Basically, the problem with lectins (if you have a problem with them, and you can have a problem with one, or two, or several :o ) is that (to give a simplified explanation) they are a key, which key is attracted to certain kinds of sugar on the surface of cells in your body, let's call them keyholes. If you happen to have the right kind of keyhole that the lectin fits, it locks on to that cell and causes havoc in the body. The idea of Lectin Lock, is to provide in the gut the sugars that the lectins are attracted to and encourage them to lock on to those instead of the sugars on the cellular surface of the body. The gut can then process them through the intestine as waste.

Now obviously, I don't go around eating the foods to which I am intolerant when I can avoid it. There was one occasion (our book club meeting) where the hostess had gone to the trouble of making everything gluten free just for me, and I thought I should eat one of her mini-quiches. Upon biting into it I found tomato, and instead of panicking and making what could have been a scene, I ate it and said to self, 'Time for Lectin Lock.' I took two caps, and had no problems.

Yesterday, we had our Probus end-of-year Christmas lunch, and there three of we gluten-freers (in a group of 80 - that skews the stats a bit, doesn't it?) We all sat together at their request and they served us first with special meals which was very kind of them. Two problems - I think there might have been some lemon juice in the mustard sauce on the ham, and there was mandarin orange in the fruit salad. I ate everything, (including a tiny piece of roast potato) and waited to see what happened. Well, the familiar bloating, stinky gas and other problems started to rev up about 6 hours later, so it was time to test Lectin Lock again. Within an hour, the symptoms were gone, no a-fib, had a great night's sleep.

This product is for real in my book. It certainly passed both tests, the preventive - before symptoms got going, and the cure - once they started. It was amazing how the gas just.... went away :unsure:

I don't care what it costs, it's worth its weight in gold to me.:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Wow Shroom--that's very interesting and fantastic that it works for you! Is it available in stores?

mushroom Proficient
mushroom
Posted
  • Author

No, you have to order it online. Just google it :)

cassP Contributor
cassP
Posted

i actually have a lectin blocker pill from a doctor that i will just refrain from naming. it has 2 of your ingredients (N-Acetyl Glucosamine, and Fucus Bladderwrack) i feel better when i take it- but it can get pricey, so i dont take it regularly.

yours however also has the D-Mannose (which my personal favorite doc has said gluten has an affinity for and may bind to it).

btw- i overdid my last cheats on corn during thanksgiving- and I AM paying for it BIG TIME... no more corn for me :(

  • 2 weeks later...
Lisa79 Enthusiast
Lisa79
Posted

Thats great news, I will check google now :D

I have been seeing a homeopath for about 7 months and my lectin intolerance has improved, I still try avoid everything where I can but If I slip up I am not suffering as much as I used to.

mushroom Proficient
mushroom
Posted
  • Author

Update: I did have some problems (because of the delay) with hives after a day or two, not bad, but no GI problems from the citrus and potatoes

BUT THEN: :ph34r: Hub wanted potato salad (yearning for it and potato doesn't bother him) so I decided to make some for him. After I had put the dressing on the warm potatoes I just automatically did what I normally do, the cook by taste test :P , and actually did it a couple of times before I realized what I was doing. GAAAHHH. Rushed out to the car (because that's where the Lectin Lock lives - normally need to use it when I'm away from home) and took a couple of caps. Hey!, no problemo :D This stuff is for real.

Gutsy Girl Rookie
Gutsy Girl
Posted

Through keeping a food journal to the T, I realized I was reacting with brain fog and zombie-ness and bloating, among other things...to POTATOES. Of all things, I would have thought potatoes were pretty safe, bland, etc.

A few weeks ago, I cut white potatoes and all white potato products out of my diet entirely, and I'm happy because I feel clearer-headed now than I have for at least two years. Still not great and I sure do realize it when I mess up and get potato cc.

Then I had a friend send me this link about lectins: Open Original Shared Link

I read it and had an ah-HA! moment. As I'm one of those Celiacs who isn't healing (I've been gluten-free since 7/28/09 with a few disasterous cc incidents that landed me in the hospital), I know there's a lot more behind my problems than just "simple Celiac's" where you go GFD and feel great in a year or so.

I'm MISSING SOMETHING BIG.

But you guys seem to be in the know and some of you are veterans here, so here's my shout out. :)

There are so many directions I could go in. I'm ADHD and feel overwhelmed at the prospect of changing my diet YET AGAIN. I'm seriously considering an elimination diet, but HOW to do that is the question. Do I eliminate lectins? Or oxalates? Or salicylates (sp?) or...........I'm soooooo lost. I mean....I have to eat SOMETHING, right? :?

Please...ask me questions, guide me as you can with what you know - I am open to hearing suggestions and greatly appreciate any help ya'll are willing to give! :D In return, I'm glad to help especially along the gluten ataxia lines where I tend to know more. And I have a background in Occupational Therapy Assistant so I'd be glad to give practical suggestions about how to adapt and problem solve daily life sorts of things. :)

Thanks, ya'll!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gutsy Girl Rookie
Gutsy Girl
Posted

Is Rachel-24 still around?

She sure had some great ideas. I'm divulging an incredibly long thread very slowly (the "OMG...I think I'm on to something" one). It's like a billion pages long. LOL. :D

mushroom Proficient
mushroom
Posted
  • Author

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

Lisa79 Enthusiast
Lisa79
Posted

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

I also look forward to your reply, Lectins are still of great interest to me too :D

mushroom Proficient
mushroom
Posted
  • Author

Just got back on the board today and posted the following response to another poster on some of my experience with lectins, obviously not the same as yours, but it may be of interest. Fire back with any questions you have. You will find it at

  • 3 months later...
StephanieGF Rookie
StephanieGF
Posted

I was just wondering if anyone else has tried this product? I am looking for something to help with Corn CC when eating out...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,383
    • Most Online (within 30 mins)
      7,748
    haleyspurlock1
    Newest Member
    haleyspurlock1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
×
×
  • Create New...