Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd And Reflux


anerissara

Recommended Posts

anerissara Enthusiast

Just wondering how many people here also have reflux? It seems like it often goes along with celiac's. I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem. Does anyone else notice reflux increasing when they get glutened? And do you struggle with reflux as well?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

When my son was an infant the reflux was wicked. He was on "baby zantac". Neither of my other children had reflux.

jknnej Collaborator

I have it and Nexium has saved my life.

Guest AmandasMommy

amanda and i both have it. dr said when shes on the dietfor a while it will go away. i hope so. and ive had it most of my life, i wish the drs would have known about celiac disease when i was younger.

rmmadden Contributor

I believe the two are inter-related. It just seems to make common sense when you think about it.

I actually started a topic on this a while back which you san see by going to Open Original Shared Link

Best of Luck!

Cleveland Bob B)

Guest AmandasMommy

yes i too have celiac disease with lactose intolerancy, acid reflux. although i am thirty somthing, and just found out, when i get back from vacation, im gonna have 13 blood tests, upper gi, sonagram and a colonoscopy.....yay :(

terryjean Rookie

Yes I have celiac disease with reflux along with asthma, diabetes, interstisial cystis, IGA deficiency. I take Nexium 40mg twice daily...... & pepcid as needed.

Terry

Dumont, NJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bmorrow Rookie

I also have reflux and had surgery for it before Celiac was diagnosed. I am now being tested for Lupus because of all the joint pain and the fatigue.

steve-o Apprentice

I had a big problem with reflux, but since going gluten free, it has totally disappeared.

Officially, I don't have celiac disease (negative biopsy & bloodwork only showed elevated IgA Anti-Gliadin), so I've "challenged" myself a couple times, just to see what happens. As soon as I re-introduce gluten into my diet, the reflux comes back.

jknnej Collaborator

Terry,

Does Pepcid help when your reflux is really bad? The past two days I have had terrible heartburn and I do take Nexium once a day. I"m wondering if I need to up my dosage. I didn't know you could take Pepcid as well. Does it help? I've got to figure something out!

terryjean Rookie

Hi! I already take (2) 40mg Nexium daily .................. and add the pepcis to that when needed................... Yes it does help~

(1) don't eat and lay down

(2) don't eat before bed

(3)easy on spices

You can chck with your doc........... but this is what I was told! I also added 150mg of zantac before I went to the pepcid as per my doctor!

Hope it helps!

Hugs, Terry

Lesliean Apprentice

My presenting symptom was reflux and after 2 years of Pepacid I diagnosed thru Enterolab and the reflux went away within weeks of being gluten and dairy free. Also a congestion in throat and nose and ears went away. Only then did I realize all the gastro problems had not been normal. As well as irregular periods, heart rate...

KAthyB Newbie

My 19 yr old celiac daughter was up to 40mg nexium 2x daily and xtra strength pepcid 2x daily and a 3rd nexium if needed after a ph probe on meds showed that the usual dose was not blocking enough of the acid. She decided on her own to take a "drug holiday"....24 hours off meds...she learned that these "holidays" are often helpful in one of her nursing lectures...(never skip insulin)....she resumed the following day starting at one Nexium one hour before her dinner and the reflux is very much improved. She did this on her own....I would not recommend trying this without a doctor's advice...but she feel so much better...she was looking inot surgeries but was told that they are risky....she agrees that reflux is probably worse if she gets some gluten...this usually only occurs when she eats out and is not assertive enough about the cross contamination issues.

Kathy

  • 1 month later...
griffithkat Newbie
Just wondering how many people here also have reflux?  It seems like it often goes along with celiac's.  I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem.  Does anyone else notice reflux increasing when they get glutened?  And do you struggle with reflux as well?

<{POST_SNAPBACK}>

I have been to the hospital twice for reflux nothing seem to help. I went to the health food store and they gave me activated charcoal...It's a miracle.. I never go anywhere without some. It knocks the pain out within 10 minutes

judy05 Apprentice
Just wondering how many people here also have reflux?  It seems like it often goes along with celiac's.  I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem.  Does anyone else notice reflux increasing when they get glutened?  And do you struggle with reflux as well?

<{POST_SNAPBACK}>

I have it so bad that I was diagnosed in 2003 with Barrett's Ring around the esophagus. I thought all I had was occ. heartburn. I urge all of you who have reflux to be "scoped" (endoscopy). This is nothing to fool around with, it can turn to cancer, especially in men. Just another thing we have to worry about. I take Prevacid every day and I have to be checked for the rest of my life.

judy05 Apprentice
yes i too have celiac disease with lactose intolerancy, acid reflux. although i am thirty somthing, and just found out, when i get back from vacation, im gonna have 13 blood tests, upper gi, sonagram and a colonoscopy.....yay :(

<{POST_SNAPBACK}>

Be sure you have the EGD if you haven't already!

Guest BellyTimber

Yes I get this sort of thing especially a cough that has lingered a couple of months.

Perhaps I need to get it checked alongside my migraines.

:rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,733
    • Most Online (within 30 mins)
      7,748

    Debbeighe
    Newest Member
    Debbeighe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
×
×
  • Create New...