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- allis posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Impossible to get diagnosis?
Hi folks, I have type 1 diabetes and was having some serious digestive symptoms about ten years ago, and my endocrinologist (who sees a lot of type 1s with celiac) told me to assume I was celiac and be gluten free from now on. I’ve been doing so since then, but my skin response to gluten products has been getting worse and worse so I was hoping to get a d... -
- Jsingh replied to cvernon's topic in Gluten-Free Foods, Products, Shopping & Medications15Global Food Gluten Free Certification
Hi, Were you able to get a response from them? I have written to Nuts.com asking info. om how to they test, etc. I am awaiting a reply. And, my daughter is allergic to tree nuts, so we only buy their straightforward organic dried fruits sans any preservative/additives. -
- trents commented on Scott Adams's article in Additional Concerns2Canadians Call for Financial Relief for People with Celiac Disease
Andre, what if it costs the producer much more to make gluten-free bread than wheat bread but they cannot charge more in order to cover the extra expense? Is that fair? And what will happen in that case? Will the government need to subsidize the product? Will food companies just quit making gluten-free bread because they are losing money? Will food companies...- celiac disease
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- trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10
Rectal pain
Not long before my celiac dx I was experiencing proctalgia fugax but it seems to have disappeared and I haven't been bothered with it in over 20 years. -
- Andre commented on Scott Adams's article in Additional Concerns2Canadians Call for Financial Relief for People with Celiac Disease
A tax credit to partially compensate for the additional cost of gluten-free food is a great idea, but a much simpler and better solution would be to legislate something similar to what was done in Ireland where the government made it law that food stores cannot charge more for gluten-free options than the regular equivalent for basic foods. I.e. a loaf of...- celiac disease
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Hi folks, I have type 1 diabetes and was having some serious digestive symptoms about ten years ago, and my endocrinologist (who sees a lot of type 1s with celiac) told me to assume I was celiac and be gluten free from now on. I’ve been doing so since then, but my skin response to gluten products has been getting worse and worse so I was hoping to get a diagnosis. However, my general practitioner and my endo both told me that to get a celiac dx I would have to eat gluten for six weeks for the antibody test to work! That would make me so sick and unable to work! Is there any way to get a celiac dx through a combination of other tests? Should I give up on seeking a dx and just be more careful about skin contact? Thanks in advance ❤️ -
Hi, Were you able to get a response from them? I have written to Nuts.com asking info. om how to they test, etc. I am awaiting a reply. And, my daughter is allergic to tree nuts, so we only buy their straightforward organic dried fruits sans any preservative/additives.
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Not long before my celiac dx I was experiencing proctalgia fugax but it seems to have disappeared and I haven't been bothered with it in over 20 years.
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Sorry, late to the party. I started experiencing proctalgia fugax (sp), when I was about 16 - I am now 59. This is a very painful spasm of what seems to be the sphincter muscle. This almost always happens in the night and wakes me. For the first few decades this would usually happen around once a month on Sundays. Very weird I know, but it was that regular at times you could set your watch by it. In my 40's symptoms became less frequent. I found that by essentially shoving an ice pack up my backside I could get some relief. 18 months ago I was diagnosed with Celiac and the PF now occurs pretty much weekly, sometimes more often. I only just came across this thread so as yet have not mentioned PF to my GI doctor (thought it was just a 'me' thing) but will next time I see him in March. I feel for you, it is indeed crippling pain. I am a teacher and I think I have had PF 2 or 3 times in the classroom and have had to call the office for cover until the symptoms and sweating subside. Good luck. Hope this helps in some way. KMMMN
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Celiac, and sensitive to latex, kiwi, avocado, bananas and tapioca. After having a reaction to another Amy’s product (canned chili) which is labeled gluten-free and has no listed tapioca ingredients, I have realized that for those of us who are sensitive to tapioca, it may be even worse than I thought. Not sure if I’ve got this right, but I do know that companies that focus on gluten-free foods use a lot of tapioca. If a certain product doesn’t have any tapioca ingredients, they see no reason to list tapioca or its relatives in the “known allergens” or the “produced in a facility that also uses …..” statement — because it hasn’t been designated a known allergen. They probably don’t even feel it necessary to apply the kind of Best Practices protocols (extra cleaning) to a production line that may have used tapioca in a previous product. So we may be ingesting tapioca when we are eating something, seemingly tapioca free, produced in a gluten-free dedicated facility. Really discouraging.
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