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Help!

Kaden

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Kaden Newbie
Kaden
Posted

I presume the blood test I had to see if I have celiac disease came back negative, I say presume because my doctor said I wouldn't hear from her if they were fine and I didn't, but I also can't get anyone at the clinic who wants to confirm this for me.

Like most others I don't want to have celiac disease but when the doctor suggested it and I read up on the symptoms everything clicked into place and the idea of having an answer was pretty neat, just avoid gluten for the rest of my life, sucky but no probs!

So I stopped eating gluten for about two weeks after the test, didn't notice anything bad but overall didn't notice that much change for the better and wouldn't be sure that I had successfully removed all gluten from my diet through nothing but ignorance. I've just eaten something with a base ingredient of wheat and I have stomach craps, I'm sick of it and if this is an answer I want to know sooner rather than later so...

also know that there's a 20% false negative rate for Celiacs.

What do I do to see if that's me?

Are there specific things that I should ask for from my blood test, should I ask for specific blood tests, should I get them to do the scope thingy they do? Help!

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ravenwoodglass Mentor
ravenwoodglass
Posted

Well if your going to ask for a scope please keep eating gluten until after that is done. There are false negatives on those also.

If your going to do a dietary trial to see if it helps it is best to stick with whole unprocessed foods to start and do take the needed precautions to prevent cross contamination in the home. If you go gluten free and then eat gluten containing items that is a challenge and if you react within a few days of adding gluten back in that is indicative of a problem with gluten.

Takala Enthusiast
Takala
Posted

Make them give you the test results in writing. Go to the office and refuse to leave if you have to, until somebody agrees to print it out or mail it to you. Good doctor's offices do this. Otherwise you don't know what they did and what the actual results are - and they will not necessarily always be filed correctly. You paid for it, and you own that test result.

Sometimes you also have to give up another ingredient at least temporarily for everything to fall into place, such as dairy or soy. Also, you could still be getting cross contaminated and not realize it.

Kaden Newbie
Kaden
Posted
  • Author

Cool, thanks guys.

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