Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Processed 'gluten Free'


williamsburg000

Recommended Posts

williamsburg000 Rookie

Hi everyone :)

Can I ask if anyone's taken the bull by the horns and only ever eats whole foods rather than incorporating processed products labelled as Gluten Free into their diet?

I have to admit I find it very difficult to steer away from all these tempting foods that hold out the promise of being gluten free, but even eating them in moderation I find myself continually being 'glutened.'

These products conform to the 20 ppm codex but they're still causing me problems, not necessarily immediately, but over the course of time there's a cumulative effect that's definately affecting me.

I guess I'm going to have to be more disciplined and begin labelling these products as out of reach or at least only eat them very rarely and as a treat.

My consultant's never said that I should steer away from these products, but I'm beginning to feel that long term the only safe option is to avoid all processed foods and flours whatever their claims.

Are we kidding ourselves consuming these products and damaging our health?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I've been g'd a few times by "gluten free" items. I have chosen to be grain and processed food free, just because after eliminating all the bad things from my diet, I realized that grains and processed junk makes me feel bad.

Well, except for peanut butter and salsa in a jar :D

My doc told me that if everyone took such good care of themselves, he would be out of a job ;) It makes it hard to eat out regularly, but I feel fantastic.

txplowgirl Enthusiast

Yes, gluten free processed foods get me every time. I eat just plain meats, brown rice, sweet potatoes, nuts, some beans, some fruits and veggies, because it looks like I have fructose malabsorbtion also as well as dairy and soy free too. And I can eat peanut butter too, thank goodness! :D

Even with that I eat pretty well. Do I like it, no, but I'd rather eat like this than feel what I felt for nearly 40 years.

GlutenFreeManna Rising Star

I eat mostly whole foods not just because I feel better, but also because it's less expensive. I do try a new gluten free processed food about once a month and I have a few that don't give me any problems (Pamela's ginger cookies are a fantastic). I eat some processed things that are naturally gluten free without problems too like corn tortillas, rice cakes, almond milk, etc. But I do make most of my meals from scratch to avoid gluten, soy and dairy. It's all about figuring out what works best for you.

dilettantesteph Collaborator

Based on the posts I read here, I do believe that plenty of celiacs eat 20 ppm gluten without any problem. I'm not one of them. I can't even manage with 5 ppm gluten. I eat very few processed foods, and no processed grains. I wash and sort everything. I've found gluten grains in a lot of places where they don't belong. It's a pain, but you do get used to it.

Jestgar Rising Star

I eat mainly whole foods. Processed stuff is fine for a treat, but I can't imagine it ever being a large part of my diet.

lpellegr Collaborator

Same here. I don't substitute in store-bought gluten-free stuff for regular, I just do without, with a few exceptions. I cook from scratch, leaning toward Paleo, make my own bread and cookies but not much of it. I buy Tinkyada pasta, but don't eat it often. About once a month a waffle or bagel. I try to avoid carbs, and it costs less to skip all that stuff. And I almost never get my old symptoms back, so I think I'm doing a decent job not glutening myself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

My consultant's never said that I should steer away from these products, but I'm beginning to feel that long term the only safe option is to avoid all processed foods and flours whatever their claims.

Are we kidding ourselves consuming these products and damaging our health?

I sometimes wonder about that. I can't tolerate the processed stuff, pretty much, and as the cook in the family, that meant I avoid them in our meals (my son and daughter are gluten free, too). My daughter, far as we knew, could tolerate them just fine. But after she's been on the VERY gluten free diet with me cooking? Now she's starting to have trouble whenever she goes out and tries one of the processed gluten free foods.

Makes me wonder if any of us could have that happen, go totally gluten free and then realize we DO have trouble with less gluten than we thought. Don't know, but it'd be interesting to try it.

That said...if you are having a hard time letting go of gluten free processed foods and want to wean yourself from them, might be useful to drop the ones with the most gluten and stick to the least gluten ones, perhaps?

Pamela's and Kinnickinik are two that I know test at 5ppm of gluten or less. If you call up the companies that make a particular food, you can ask what level of gluten ppm their food has to test below and they'll tell you (it takes a while, sometimes), so that might help out. I think Envirokidz is 5 or 10ppm gluten or below, too. Can't recall any others off hand.

good luck dropping the foods!

Oh, and if it helps? Corn and soy are often CC'd by gluten more than the other grains and legumes due to growing practices, so might be good to keep the level of those two low, as well, if you're avoiding even minimal gluten cc.

mushroom Proficient

I buy about one loaf of bread a week, and some cookies and a few rice crackers, along with rice pasta. I do have gluten free flours that I bake into gluten-free goodies occasionally. But that's about it.

cap6 Enthusiast

I eat whole foods for the most part. I do buy a load of bread to have on hand as I will make a quick sandwich if we're going to be gone all day but really try to keep anything processed down to one small treat a week. The strange thing is that I no longer crave "junk" food. Now I find myself craving good stuff like veggies. Weird!!

Cheryl-C Enthusiast

I'd say I maintain a balance. Lately I've been making the move to more a more organic style of living, (so fewer processed items) but having found a few grocery store items I love (and a couple of restaurants) I can't (won't?) give it up altogether. That said, many of the "processed" things I buy from the store, I buy organic: no additives, flavourings, colourings, etc - I try to go as natural as I can. Also, I'd like to add that Glutino chocolate wafers are the devil. :P

psawyer Proficient

I use products from El Peto and Glutino regularly.

Both have facilities which do not have any gluten ingredients on site. Both realize that, even in the "gluten-free" facility, it is possible for an ingredient to be be contaminated before it reaches their premises. It is also possible for an employee to eat something and bring crumbs in on their clothing. There can never be a guarantee of zero gluten. It sucks, but that is reality.

Although the expectation is zero gluten content, there is no test that can prove that. Glutino test for 20 ppm. El Peto test for 5 ppm.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,836
    • Most Online (within 30 mins)
      7,748

    Art Glassman
    Newest Member
    Art Glassman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @ABP2025, Here's some studies and articles that will help you learn more about thiamin and all... I will write more later. It's possible that your antibiotic for giardiasis has caused thiamine deficiency.   https://hormonesmatter.com/metronidazole-toxicity-thiamine-deficiency-wernickes-encephalopathy/ And... https://hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ and... Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/      
    • DayaInTheSun
      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
×
×
  • Create New...