Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

One In All In?


beebs

Recommended Posts

beebs Enthusiast

I am in the crazy position at the moment of trying to keep my 4 year old gluten free as he has just had his endo and trying to gluten up my 17 month old because his endo is coming up on the 20th. Its pretty hard trying to make my little one eat cookies and granola bars while saying to my 4 year old. "You can't have that one but you can have this one" etc etc. Not that I am complaining (my little one just had a sweat test for cystic fibrosis where he had a 90% chance of having it so I was praying for celiac, but anyhow!)

Anyhow - the 4 year old has only been gluten free for one day - and I have to admit, I had no idea how full on it really is.

So this is my question - If you have one or two celiac children - did you just gluten free your whole kitchen - or do you still eat gluten stuff yourself and keep gluten food separate?

Any advice would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I was diagnosed first, then had my two boys tested. My 10 year old was positive. So, my 13 year old is outnumbered :( It's just too hard trying to keep track of crumbs and kids, so we all went gluten free. A friend of mine did the same because she kept getting CC'd from little kisses from her babies. Plus, your younger won't even know what he is missing!

Roda Rising Star

I went gluten free first in Oct. 2008. I had both boys tested after my diagnosis and they were negative. We kept a shared kitchen and still do but had to really crack down and be strict about it. My youngest one went gluten free last month since his blood work was positive. My oldest one still is not gluten free since I wanted him retested. His results came back negative, so for now he will not be gluten free. The only time my oldest son eats any gluten in the house is when his daddy is home or I'm feeling generous to fix him something. He also buys his lunch at school. For the most part I feed him gluten free at home. We all eat gluten free meals together for supper and he does eat gluten cereals occasionally for breakfast. If I have a sitter they are not allowed to bring it in the house and noone is allowed to eat any while the sitter is here. My kids help the sitter know what they can have.

beebs Enthusiast

I was thinking more for me and my hubby :lol: I know the kids won't miss it at all. But I have been tested and am neg and while I am happy with most gluten free food - I just hate the bread!

Thanks guys.

Mizzo Enthusiast

I was thinking more for me and my hubby :lol: I know the kids won't miss it at all. But I have been tested and am neg and while I am happy with most gluten free food - I just hate the bread!

Thanks guys.

Only 1 celiac in our household of 3. We are 95% gluten free. The only thing with gluten are Bread, crackers , some noodles and soups. All of these are kept completely separate from all other foods .

examples

1 drawer in frig( veggie bin) is designated for Gluten breads and such

1 shelf in cabinet (top shelf) for noodles, crackers, soup or snack foods

We have rules :

nothing with Gluten can go directly on oven racks

Separate sides of toaster for gluten-free or not

separate strainers for pasta and noodles

wipe down counters with paper towels often

All family meals are gluten free no matter who is here for dinner !!!!!

Any gluten foods eaten in front of dd is something she does not like . Only exceptions are if friends bring their own sandwich for lunch, and I provide snacks if we have company.

This works for us, but maybe not for others.

curlyq Newbie

My dd (7) has celiac, and my 2nd daughter (6) just tested positive as well. We do have gluten bread, pasta, oats, and crackers in the house. I do all that I can to avoid CC (seperate toasters, strainers, cupboards, etc...). My daughter is happy on the gluten-free diet and never really cares if we eat "normal" bread when she eats her "special" bread. We have decided that if she ever does care, then we will ALL go gluten-free at home. Most of our meals are naturally gluten-free. We also never eat things that she can't have in front of her UNLESS she has something equally wonderful.

Lunabell Apprentice

We are 99% gluten free in our house, even though it is only the 4 year old that has been diagnosed currently.

It came down to what was easier for me to handle. Because my 6 year old really likes her bread, we keep a loaf of gluten bread in the house for her sandwiches. Even making school lunches takes longer and more thought to keep Laura's from getting cross contaminated. The less gluten we have in the house, the fewer worries we have.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Beth03456 Newbie

We only have our 4 yo who is gluten-free. My other child is 6 and she usually eats gluten-free but not always. However, we also feed the kids separate from the grown-ups most of the time, so it is easier to keep gluten-free and non-gluten-free things separate. If we all eat together, we usually make everything gluten free (tacos, roasts, chicken and veggies, salads, rice dishes). But we will make pasta and make extra for leftovers so we have stuff on hand for him, and then we will make regular pasta for the rest of us sometimes because its cheaper. Or if we are doing sandwiches we will make his first in his dedicated area of the kitchen, and then when his is made we will then make the rest of the sandwiches in the gluten area of the kitchen.

Our 4 yo has his own cabinet full of snacks, cereal, granola bars, chocolate, etc. and he knows its all for him. So my two kids know that they get granola bars from different stashes. They are good with it, and we stress washing hands before and after meals so there is less contamination.

MarsupialMama Apprentice

We all went gluten free for my one daughter (age 4) who showed signs, and ended up finding out that my second daughter's big belly (age 6) and my own 24 years of digestive/health problems disappeared in going gluten free (24 years of suffering, GONE!).

In having "gluten" and "non-gluten" food in the house, my daughter kept getting glutened. Containing crumbs is a nightmare. Older sister wanted to share her food. In some way, shape, or form, she would end up getting ahold of it accidently, and then would go "down" for about 3 weeks until her intestines healed up. Just wasnt worth it. Now I make and buy things that everyone can enjoy the best we can. The frustration with playing the "both worlds" game in our house just made me crazier than a bed-bug, and wasn't worth the nervous energy and devastation when accidents happened. We have just accepted it as our lot and decided to make/find the yummiest things possible. More expensive yes, worth the nerves? Definitely.

beebs Enthusiast

We all went gluten free for my one daughter (age 4) who showed signs, and ended up finding out that my second daughter's big belly (age 6) and my own 24 years of digestive/health problems disappeared in going gluten free (24 years of suffering, GONE!).

In having "gluten" and "non-gluten" food in the house, my daughter kept getting glutened. Containing crumbs is a nightmare. Older sister wanted to share her food. In some way, shape, or form, she would end up getting ahold of it accidently, and then would go "down" for about 3 weeks until her intestines healed up. Just wasnt worth it. Now I make and buy things that everyone can enjoy the best we can. The frustration with playing the "both worlds" game in our house just made me crazier than a bed-bug, and wasn't worth the nervous energy and devastation when accidents happened. We have just accepted it as our lot and decided to make/find the yummiest things possible. More expensive yes, worth the nerves? Definitely.

I can see why. Its only been 4 days and its a nightmare. My elsdest just cries cause he can't eat his old food meanwhile I'm trying to feed my younger son gluten because his biopsy is coming up. So difficult.

I can absolutely see why its one in all in. After my little ones endo we'll go completely gluten free!

Thanks for the replies!

domesticactivist Collaborator

My kids are 10 and 11 and we've just started this gluten-free process. I can imagine it's much trickier with them still so little. We have decided to make our entire house gluten-free, and for all of us to maintain the diet even out of the house. We're still in the process of getting rid of all of our old cooking utensils and appliances, and have a bit more deep cleaning to do as well.

However, we recently realized that since we want to test our daughter, we do have to keep her on gluten. Our solution has been to keep one loaf of bread in the freezer, and have her eat one sandwich a day with it, on a paper towel, at the counter where we normally put our dirty dishes. She has her own little jar of peanut-butter and honey that no one else touches, just for these sandwiches.

My kids' dad (where they live half of each week) does not plan to go gluten-free himself and has not yet taken steps to decontaminate everything. Our son's anxiety has been increasing, and his tummy is not feeling like it used to when he had gluten all the time, but it's not feeling right. He did stop giving him foods that obviously have gluten in them, but he's using a lot of "gluten-free" products. I think ds is getting cross-contaminated there. Well, I know he is. Our kids are starting to understand what it really means to be gluten-free, and they made a list of the things that were problems - dirty microwave, using the same toaster oven for gluten food and ds's gluten-free food, using same utensils in jars of things, etc. I've explained this stuff to their dad a couple different ways, but he didn't get it, yet. I also gave him a book which he barely started reading. I think in time he will realize what needs to happen.

domesticactivist Collaborator

Hey... Good news -

Last night we talked with the kids' dad and he had read the book I gave him, decided to make his whole house gluten-free, ordered another book, and lent the one I gave him to my mom. He also decided to try eating meat and go more to whole foods, and wants to start our daughter on the gluten-free diet as soon as the tests are done, regardless of whether they indicate celiac, to see what happens. I'm really glad he's getting it.

beebs Enthusiast

Hey... Good news -

Last night we talked with the kids' dad and he had read the book I gave him, decided to make his whole house gluten-free, ordered another book, and lent the one I gave him to my mom. He also decided to try eating meat and go more to whole foods, and wants to start our daughter on the gluten-free diet as soon as the tests are done, regardless of whether they indicate celiac, to see what happens. I'm really glad he's getting it.

That is so good mate! I am so glad to hear it. Its hard to make others see just how dangerous it can be. So its great he has changed his mind!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.