Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dear Soy...i Hate You!


Salax

Recommended Posts

Salax Contributor

So the last few weeks I have noticed that something has been making my tongue itch and swell, which finally got to the point of making my lips puff and tingle. (It was not the Angelina Jolie look I was hoping for, :P ) Seriously, it scared me. I thought it was caffine, because I was drinking coffee and pepsi like a fish. So I stopped that, seemed still mildly uncomfortable in my mouth. Though it was corn, like corn syrup from the pepsi, coffee creamer, chocolate candy..since all those also have caffine. So I took out corn...Nada. FINALLY, I realized...SOY.

The stuff is in everything. Grr.

Dear Soy,

I hate you and what you do to my body, please go away and get out of my chocolate and all the yummy other foods I can/could still eat...no thanks to you. :ph34r: You suck!

So seriously. Soy is out now. Feeling better....BUT I think I am having a few other processed food issues. I think I am going to go Paleo in a couple weeks, after I clean out my fridge.

Blarg, ok venting over. B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Ugh--soy is firmly out for me too. I'm glad you finally pinpointed the culprit :)

Salax Contributor

Ugh--soy is firmly out for me too. I'm glad you finally pinpointed the culprit :)

Thanks. It's amazing what's in our food. I am still surprised more and more people haven't developed food allergies or intolerences at a faster rate. Maybe they are, I don't know..maybe they don't care. Either way it sucks..lol I miss my chocolate. Luckily I found an alternative without soy or gluten, YEAH!

mushroom Proficient

No one hates soy worse than I do!!! Sorry that it is your enemy too! :(

11475 Apprentice

I'm sorry you have something else to watch out for now :(. Soy does seem to be in 'everything', doesn't it!

I'm sure this will not come as a revelation to many people, but I only just found out: vegetable oil often contains a large amount of refined oil from soy beans. My source says that this doesn't have to be declared on the bottle as doctors have decided (not everyone agrees, though) that it is safe because of the refining process. I suppose it would depend on the individual.

I'm not sure if that was helpful or not, but for me personally, it suddenly dawned why I was having trouble with peanut butter, and one particular brand of plain potato chips, while another brand (which used sunflower oil) gave me no problems at all.

So - something to consider with processed foods and cooking. I hope you're feeling better.

(For the record, this is from the Food Allergy Cookbook by Lucinda Bruce-Gardyne, 2007.)

jerseyangel Proficient

Thanks. It's amazing what's in our food. I am still surprised more and more people haven't developed food allergies or intolerences at a faster rate. Maybe they are, I don't know..maybe they don't care. Either way it sucks..lol I miss my chocolate. Luckily I found an alternative without soy or gluten, YEAH!

I agree with you, and when you think about it, how many people take antacids and other stomach remedies regularly without really considering what might be the root cause of their symptoms and difficulties?

I pop Enjoy Life Chocolate Chips or have one of their dark chocolate candy bars when I need chocolate. Not real exotic, but gets the job done :P

Salax Contributor

I'm sorry you have something else to watch out for now :(. Soy does seem to be in 'everything', doesn't it!

I'm sure this will not come as a revelation to many people, but I only just found out: vegetable oil often contains a large amount of refined oil from soy beans. My source says that this doesn't have to be declared on the bottle as doctors have decided (not everyone agrees, though) that it is safe because of the refining process. I suppose it would depend on the individual.

I'm not sure if that was helpful or not, but for me personally, it suddenly dawned why I was having trouble with peanut butter, and one particular brand of plain potato chips, while another brand (which used sunflower oil) gave me no problems at all.

So - something to consider with processed foods and cooking. I hope you're feeling better.

(For the record, this is from the Food Allergy Cookbook by Lucinda Bruce-Gardyne, 2007.)

I experienced this as well. My hubby was taking out everthing in the pantry with soy (God, I love that man!...He is so good to me), anywho we also discovered that the vegetable oil had soy! I was dumb struck! And so was he. CRAZY, what is soy doing in there! So ya, trash canned that. Also, corn tortilla chips and PB, thank GOD I still have my PB (el' natural, no soy there, but in the processed kinds lots of soy)...If I couldn't eat PB I would jump of a cliff. Maybe not, but I would cry.

Anyways, I thought that soy was a top 8 allergen and it had to be declared? No? :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salax Contributor

I agree with you, and when you think about it, how many people take antacids and other stomach remedies regularly without really considering what might be the root cause of their symptoms and difficulties?

I pop Enjoy Life Chocolate Chips or have one of their dark chocolate candy bars when I need chocolate. Not real exotic, but gets the job done :P

It's totally what they are puttin' in that tummy that cause tummy troubles. People don't want to take the time or they don't get it..imho. Food is just like fuel for cars, you put the wrong kind in...issues pop up, car doesn't function so well..

But yes that chocolate isn't bad, especially with gobs of PB on it! Yum! :P

11475 Apprentice

Anyways, I thought that soy was a top 8 allergen and it had to be declared? No? :o

That's why I was amazed (and a little upset) to read that it had been decided for us what we could handle...especially since it says that there is not a 100% agreement on the issue.

I think also because it's not necessarily in every batch it might be harder to determine, but shouldn't it have a 'may contain' warning on at least?? If it is labelled, at least consumers can make up their own minds and try to keep themselves safe.

Glad you could keep your peanut butter! I think I'll be buying a natural version too. And hooray for lovely, helpful, understanding husbands :)

Salax Contributor

That's why I was amazed (and a little upset) to read that it had been decided for us what we could handle...especially since it says that there is not a 100% agreement on the issue.

I think also because it's not necessarily in every batch it might be harder to determine, but shouldn't it have a 'may contain' warning on at least?? If it is labelled, at least consumers can make up their own minds and try to keep themselves safe.

Glad you could keep your peanut butter! I think I'll be buying a natural version too. And hooray for lovely, helpful, understanding husbands :)

I guess that makes sense, but agree a "may contain" warning would be helpful.

Any places that we can eat out without gluten and soy safely?

mercury6 Newbie

So the last few weeks I have noticed that something has been making my tongue itch and swell, which finally got to the point of making my lips puff and tingle. (It was not the Angelina Jolie look I was hoping for, :P ) Seriously, it scared me. I thought it was caffine, because I was drinking coffee and pepsi like a fish. So I stopped that, seemed still mildly uncomfortable in my mouth. Though it was corn, like corn syrup from the pepsi, coffee creamer, chocolate candy..since all those also have caffine. So I took out corn...Nada. FINALLY, I realized...SOY.

The stuff is in everything. Grr.

Dear Soy,

I hate you and what you do to my body, please go away and get out of my chocolate and all the yummy other foods I can/could still eat...no thanks to you. :ph34r: You suck!

So seriously. Soy is out now. Feeling better....BUT I think I am having a few other processed food issues. I think I am going to go Paleo in a couple weeks, after I clean out my fridge.

Blarg, ok venting over. B)

Salax -

your reaction to soy sounds bad. can't stand the stuff either. i began experiencing recurring bronchial infections. my doc started prescribing me inhalers to open up my airway. i've never had asthma before in my life and suddenly i was having trouble breathing sitting still. i was already having other food intolerance issues and realized i was ingesting soy lecithin in teas, chocolate and even lip balms for starters. i cut anything containing soy from my diet since it's one of the top eight allergens. after a few days i could breathe just fine. soy really is in everything. watch out for soy lecithin. some claim it's tolerated by those who can't consume soy, but i can't tolerate either. good luck!

psawyer Proficient

Anyways, I thought that soy was a top 8 allergen and it had to be declared? No? :o

FALCPA specifically exempts "highly refined oils" from the standard, without defining what that term means. Open Original Shared Link

Salax Contributor

Salax -

your reaction to soy sounds bad. can't stand the stuff either. i began experiencing recurring bronchial infections. my doc started prescribing me inhalers to open up my airway. i've never had asthma before in my life and suddenly i was having trouble breathing sitting still. i was already having other food intolerance issues and realized i was ingesting soy lecithin in teas, chocolate and even lip balms for starters. i cut anything containing soy from my diet since it's one of the top eight allergens. after a few days i could breathe just fine. soy really is in everything. watch out for soy lecithin. some claim it's tolerated by those who can't consume soy, but i can't tolerate either. good luck!

Thanks for the info, I believe my reaction is that of allergy vs intolerance, so I think your right the lecithin is bad bad for me. I believe I also had trouble breathing, so I hear ya. :D

  • 2 weeks later...
Alison R Rookie

Salax,

I am new to gluten free, but not sadly not so new to soy free. After a hospitalization from soy, I began cooking almost everything from scratch at a young age (20).

I use basic, real, fresh ingredients to make my life easier (a big piece of fish, hormone free steak or chicken), fresh or frozen vegetables, etc.

Going out, I find that a quality restaurant and a discussion with the manager is all that is needed to have a safe meal. I had so little success with fast food, that I don't even try anymore. Probably not what you wanted to hear, but food issues have really made my diet better. I don't know many other people that eat swordfish, lamb, and other wonderful quality meats nearly as often as I do. You have to get daring and cook for yourself more, but when we go out, it's a real treat.....not McDonalds.

  • 2 weeks later...
MsMissy Newbie

Also a member of the SOY Haters club. I really miss chocolate, and about 90% of everything you can eat cheap. I am very grateful that my late grandmother taught me how to cook from scratch, i have done it most of my adult life too. I am one of those flat broke college students, but thanks to a huge list of food allergies and intolerance I do not have the luxury of the cheep pizza deals, mac and cheese, and Raman noodles to survive on. Soy I HATE you so very much, not only because im allergic to you (and your lectin) but because you have tricked the whole world into thinking your some kind of super-food. (when really if your not fermented your actually toxic.....read "The Whole Soy Story" its a book on the evils of soy....know thy enemy!)...pardon the spelling...dyslxia and good spelling dont really go together.

  • 2 weeks later...
IrishHeart Veteran

Also a member of the SOY Haters club. I really miss chocolate, and about 90% of everything you can eat cheap. I am very grateful that my late grandmother taught me how to cook from scratch, i have done it most of my adult life too. I am one of those flat broke college students, but thanks to a huge list of food allergies and intolerance I do not have the luxury of the cheep pizza deals, mac and cheese, and Raman noodles to survive on. Soy I HATE you so very much, not only because im allergic to you (and your lectin) but because you have tricked the whole world into thinking your some kind of super-food. (when really if your not fermented your actually toxic.....read "The Whole Soy Story" its a book on the evils of soy....know thy enemy!)...pardon the spelling...dyslxia and good spelling dont really go together.

Soy is ugly for me. Makes me sick, foggy headed and my mouth burns. Gives me D just like gluten. I did read "The Whole Soy Story" and even if I actually did like tofu (I do not...nasty texture, you might as well eat rubber erasers) I would never willingly eat SOY now!! Plus, it messes with your hormones. AVOID it!!

Ditto on the ENJOY life boom-choco-boom bars. They do in a pinch! ;)

  • 1 month later...
annegirl Explorer

I love how someone somewhere gets to decide that soybean oil can't affect you....that was my worst reaction and the one that highlighted what was actually making me sick (on top of gluten and dairy). Ditto on the Enjoy Life brand! I <3 them for making chocolate things that I can eat.

As far as the soy reaction goes...I get a "chemically" headache, fatigue and all over feel like I've been poisoned. It also makes my eyes itch and burn like crazy with a big dose of bloodshot on the side.

My question is: how long did it take to get over your soy reactions? It's been a week of no soy goodness and I still am having issues with my eyes itching and burning. I'm trying to figure out if I just need to hang tight and let my body clean out or if I need to start looking for yet another allergy (I'm down to veggies, fruit, meat and tiny amounts of rice and corn as it is!)

Also, I am waiting for my gluten, dairy, soy etc free soap, lotion, conditioner, shampoo, lip balm to get here so I can be sure I'm eliminating that issue. I have noticed my eyes burn in the shower with just the scent of my shampoo. I don't wear any lotion, makeup, perfume or anything now and I only use perfume and dye free soap for my clothes and no softener etc.

I just am going crazy with my eyes feeling bad!

cahill Collaborator

My question is: how long did it take to get over your soy reactions? It's been a week of no soy goodness and I still am having issues with my eyes itching and burning. I'm trying to figure out if I just need to hang tight and let my body clean out or if I need to start looking for yet another allergy

The last time soy 'GOT ME" it took over a week for me to even start to feel human again.

I am wondering now if I may be getting some soy ,, maybe from CC,, that I didnt realize. I have not been as strict with the CC with soy as maybe I need to be.

Soy in my opinion is PURE POISON :angry: to my body

annegirl Explorer

The last time soy 'GOT ME" it took over a week for me to even start to feel human again.

I am wondering now if I may be getting some soy ,, maybe from CC,, that I didnt realize. I have not been as strict with the CC with soy as maybe I need to be.

Soy in my opinion is PURE POISON :angry: to my body

Oh yes, I so agree with you. Soy is the worst. It took me 3 days to just feel ok. I'm still having some swollen gland issues too. I'll just hang in there and ride it out then. Just with so many issues popping up at once I'm getting paranoid that I'm allergic to everything!

As soon as I realized it was the soy that made me sick I cleaned it all out of my house (and I was being careful about not eating a lot as it was!). My sister has ended up with about 12 bags of groceries out of this whole thing gluten to dairy to soy intolerance. I don't even eat it if it says "natural flavorings" because I was told soy can sneak in that way.

But hey, in the end.... WE'RE going to be the healthy ones. Soy isn't good for anyone. Eating fresh, low fat, healthy foods is going to make us feel great and live longer. :) Sorta makes me feel like I've got a head start on all the other poor people that don't know any better and flock to McDonald's and Taco Bell. :P I "have" to eat healthy. Poor me ;)

chasbari Apprentice

My first episode with what we thought was CC in the early days turned out to be soy instead of gluten. I was ready to go to the hospital it was that bad. Add me to the list of soy haters.

CS

rosetapper23 Explorer

For all you soy haters out there (and I'm one of them!), I'm hoping that you've noticed that soy is in almost all mayos and cans of tuna fish. I now eat Smart Balance mayo and only tuna from Whole Foods or Trader Joe's.

Because our country has an excess amount of soybean oil to get rid of, they're putting it in everything!

annegirl Explorer

For all you soy haters out there (and I'm one of them!), I'm hoping that you've noticed that soy is in almost all mayos and cans of tuna fish. I now eat Smart Balance mayo and only tuna from Whole Foods or Trader Joe's.

Because our country has an excess amount of soybean oil to get rid of, they're putting it in everything!

Oh yes I've noticed. I basically don't eat anything right now that doesn't require cooking before consumption. I'm sick of being sick! I am looking forward to adding in some gluten/soy free mayo this summer for chicken salad (alas, no croissant to go with it! :( ).

chasbari Apprentice

For all you soy haters out there (and I'm one of them!), I'm hoping that you've noticed that soy is in almost all mayos and cans of tuna fish. I now eat Smart Balance mayo and only tuna from Whole Foods or Trader Joe's.

Because our country has an excess amount of soybean oil to get rid of, they're putting it in everything!

Just made note of those. I have not been able to find tune w/out soy. Tuna salad soy free sounds really good right about now!

annegirl Explorer

Just made note of those. I have not been able to find tune w/out soy. Tuna salad soy free sounds really good right about now!

If you google it you will find some conversations on soy free tuna. Check Costco's Kirkland brand.

mushroom Proficient

I've always loved King Oscars baby sardines, but lately they have been packing them all in soy bean oil. Finally found some (in a different (blue )- colored wrapper) that are packed in olive oil and bought the store out. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Eldene's topic in Food Intolerance & Leaky Gut
      13

      Oats gluten free?

    2. - trents replied to Eldene's topic in Food Intolerance & Leaky Gut
      13

      Oats gluten free?

    3. - Lori Lavell replied to Eldene's topic in Food Intolerance & Leaky Gut
      13

      Oats gluten free?

    4. - Scott Adams replied to Joyes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Test results

    5. - Levi replied to Joyes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Test results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,378
    • Most Online (within 30 mins)
      7,748

    Lexus 26
    Newest Member
    Lexus 26
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
    • Lori Lavell
      In fact ALL grains contain different forms of gluten that go by different names. Corn contains Zein and Rice contains Orzenin. We all need to realize that a very small amount of any of these grains can cause continued systemic inflammation which is not optimal for allowing the body to heal itself.  
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • Levi
      Search “deamidated gliadin Abs, IgG is 26.6/abnormal high” online for articles on your exact question above, and I’m sure this forum has an expert in explaining your test results as well. 
×
×
  • Create New...