Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Crazy?


divamomma

Recommended Posts

divamomma Enthusiast

My daughter had the scope/biopsy yesterday. Everything looked normal to the eye but we are awaiting biopsy results. We have decided to go gluten free regardless of the outcome. A positive blood test plus many symptoms are enough for me to try her gluten-free. So is it crazy to think that one day of gluten-free would be enough to provide some relief? I swear I have a different kid today. She seemed more energetic, did not complain once of being tired or having tired arms/legs (which she ususally does all day long) She was WAY less irritable. Our super irritable time is after my older daughter gets home (3:30-5ish) and she was so good and happy! She also did not whine today (which she usually does allllll day). Some of her symptoms like constipation, itchy skin, dark circles are still there. But overall I think either

1) I am crazy and looking for anything to prove it works or

2) it actually IS helping!

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

It could be both. :) Kids have been known to drive one crazy. Look at me!

I actually felt better in 1-2 days. A lot of the gloating and that kind of pain was gone. From what I have seen on here, it seems to affect kids moods. But just having less pain can make you feel happier.

T.H. Community Regular

I had a noticeable change in my health within 2 days, so I don't think it's impossible.

My daughter had the dark circles, too, and those took a bit to disappear, but they did. Her reactions are much more noticeable now when she gets gluten, though, so you might see that in the future, too. Or reacting to lower amounts of gluten, the longer she's off of it.

Another thing - sometimes I notice with my kids (both went gluten free), they had this period of time where they needed much more sleep for a while. I've always assumed that was their body needing time to heal itself, ya know?

Loobiej Rookie

Hi

We started my daughter on a wheat/gluten free diet in December and we noticed a change within 3 days mainly by her not going to the toilet as much and having more energy, we are now 4/5 weeks into the diet and shes much better still only going to the toilet twice a day + has much more energy, she has however had a bad week where she went back down hill and we dont know why but apparently this does happens to some. Shes still doing very well.

The way i looked at it was that to see such a big improvement in a few days just shows how upset her stomach is, but be prepared for her to still have an few off days.

Thanks x

srall Contributor

I'm guessing it's working already. Don't be bummed if she still has some off days though. I still see it with my daughter and she's been doing this about 3 months.

missy'smom Collaborator

You're not crazy. I felt dramatically better right away and I wasn't even free of all gluten. I just cut out what I knew to be gluten-pasta, bread, anything with flour etc. until I learned more. My distended abdomen went back to being flat again pretty quickly. That being said, it did take a long while overall to feel back to what I thought I should feel like. Seemed like every 4-6 mos. I would reach anothre level of improvement. Plenty of fatigue and naps along the way, with the learning curve and healing time.

Glad you're seeing new life in your kiddo :)

Marlie Apprentice

My daughter had the scope/biopsy yesterday. Everything looked normal to the eye but we are awaiting biopsy results. We have decided to go gluten free regardless of the outcome. A positive blood test plus many symptoms are enough for me to try her gluten-free. So is it crazy to think that one day of gluten-free would be enough to provide some relief? I swear I have a different kid today. She seemed more energetic, did not complain once of being tired or having tired arms/legs (which she ususally does all day long) She was WAY less irritable. Our super irritable time is after my older daughter gets home (3:30-5ish) and she was so good and happy! She also did not whine today (which she usually does allllll day). Some of her symptoms like constipation, itchy skin, dark circles are still there. But overall I think either

1) I am crazy and looking for anything to prove it works or

2) it actually IS helping!

Thoughts?

My daughter had her biopsy 10 days again and we started gluten free immediately and she started feeling better within 24 hours. Everyday I see improvement. Even her acne (if that was what was all over her face for several years) is subsiding. The doctor told me during the biopsy she saw no damage but the lab results of the biopsy were positive. You are not crazy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,021
    • Most Online (within 30 mins)
      7,748

    BeccaJean69
    Newest Member
    BeccaJean69
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ShRa
      My son, 13 had been complaining about the tummy aches since past few days. He lost quite a bit of weight in past few months. We thought it's because he has been playing soccer alot recently and also is not much intereseted in junk these days.  His doctor ordered Celiac panel with a few other bloodwork. Here are the results: TTG Ab,IgA | Normal value: <15.0 u/mL | Value: 104.2 IgA is normal Gliadin DGP Ab IgA is normal His PCP told us that he need to stop eating gluten right away as he has been diagnosed with celiac disease and has been now referred to specialist for further advise. I'm trying to understand gluten free diet and this disease further.  Any guidance on how to proceed now and what to expect would be appreciated
    • Scott Adams
      First off, I’m sorry to hear about the challenges you’ve been facing, both with your recent celiac concerns and the dermatitis you've been dealing with. It’s clear you’ve put in a lot of effort to figure this out, and it’s frustrating to still have lingering questions. Regarding your TTG-IgA result of 11.6 U/mL, you’re correct that many labs and celiac experts consider values above 10 to be indicative of possible celiac disease. However, interpretation can vary depending on the lab and the individual. It’s worth noting that slightly elevated levels can also sometimes occur with other autoimmune conditions, including Hashimoto’s thyroiditis. However, since you already have Hashimoto's and a strong family history of celiac (your daughter’s diagnosis), the most likely explanation is that you also have celiac disease. Here are a few steps you might consider to gain peace of mind: Consult a Gastroenterologist: They have more expertise in celiac diagnostics than a general PCP. They may recommend additional tests like an EMA (endomysial antibody) test or even genetic testing to confirm your predisposition further. Consider a Small Intestinal Biopsy: If there’s uncertainty, a biopsy remains the gold standard for celiac diagnosis. It can provide clarity, especially since your TTG-IgA is borderline. Monitor Symptoms on a Gluten-Free Diet: Since you already have another autoimmune condition and a chronic rash (which could resemble dermatitis herpetiformis, a skin manifestation of celiac disease), some doctors might suggest trying a strict gluten-free diet for a few months under supervision. If you notice a marked improvement, it might be telling. Keep in mind that if you go on a gluten-free diet before an endoscopy/biopsy, you will need to do a gluten challenge and eat lots of gluten daily for at least two weeks before the biopsy. As for your genetic results from 23andMe, having two copies of a celiac-associated gene (HLA-DQ2 or DQ8) does increase your risk of developing celiac disease considerably. However, about 30-40% of the general population carries these genes, and only a small percentage actually develop the disease. The genetic predisposition combined with your elevated TTG-IgA and symptoms could justify further investigation. Lastly, regarding your chronic "dermatitis," it might be worth bringing up the possibility of dermatitis herpetiformis to a dermatologist familiar with celiac disease. This condition is often misdiagnosed as eczema or another dermatitis type and may not respond well to typical creams. A skin biopsy taken near (not on) an affected area can help diagnose it.
    • BertoleAmur
      I’ve been gluten-free for a while too, and I know how frustrating it can be when your body reacts unexpectedly. I haven’t personally experienced what you’re describing with Ozempic, but I did have a situation where I took a break from certain supplements and noticed my body felt a lot better.
    • Scott Adams
      Two of our moderators @knitty kitty and @Wheatwacked know a lot more about nutrients and may be able to offer some more help, so hopefully they will chime in here.
    • aperlo34
      Hi Scott, thanks for the reply.    I’m currently taking  3000IU vitamin D3 centrum multivitamin  500mg vitamin C 1000mcg B12 naturemade softgel Omega 3 (for dry eyes) My latest labs for vitamins were D - 43.6 (range 30-100) B12 - 406 (range 232-1245) Folate - 11.4 (range >3.0) ferritin - 117 (30-400) magnesium - 2.3 (1.6-2.3) Calcium - 9.9 (8.7-10.2)   I am 29 and really struggling with this emotionally, I was caught by surprise 2.5months ago with this dx and pretty much no symptoms that I really knew of besides low ferritin. When I first met with the GI doctor in July and he ordered the endoscopy/colonoscopy, that was around when the twitching started. I’m unsure if it’s the anxiety of it all (I have been consistently freaking out since the scopes were ordered, losing sleep, obsessively googling etc.) or if it’s celiac related. I’m horrified that I might have something else wrong with me.  Additionally, I’ve been getting some mixed opinions - dietician told me to stop the additional b12 because my multi had b12, but I see online that some people think b12 levels should be well over 500.    Some other things that I’ve experienced since I went gluten free are more “sinus” headaches, facial pressure, some cramping in my left side (could be postural problems I’m dealing with) and dry eyes - my eye doctor has me on some eyes drops that really help and this is a work in progress. And no my mouth isn’t dry too 😅   I’m absolutely beside myself with fear of other AI diseases and have no one I can really turn to (besides online) that has dealt with this. I have no idea what’s in my mind and what is a real symptom anymore because I’m so hyper aware of every sensation in my body! Thank you so much in advance for any input/guidance.    
×
×
  • Create New...