Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Forum


Alison R

Recommended Posts

Alison R Rookie

I'm a 31 yr old Texas girl, who like many others I see here has not been a stranger in the doctor's office. I was diagnosed with "benign familial tremor disorder" in 1998, I couldn't tolerate the medication they gave me and I wasn't willing to let the neurologist shove two long metal rods into my brain and a battery pack in my chest, so I went off caffeine and have just dealt with the shaking for mare than ten years. At 20 I was hospitalized due to an allergic reaction to soy, so no soy since 1999. My health seemed okay......until I got pregnant soon after I turned thirty.

After a second miscarriage last year the dr. found a 5.5 cm fibroid. My now ex-obgyn wanted to immediately do a hysterectomy. I said no. Removed meat with antibiotics and hormones in August of 2010, and my fibroid has shrunk to less than 2 cm as of November.

I managed get away without surgery again, but other things have not been the same: I have lived with almost no energy....sometimes sleeping 18 hours a day (Mom thought it was depression...but I don't feel depressed just exhausted), I've been forgetting things and have to write lists for everything, and not only have my tremors gotten worse, but I have been having mild seizures and seeing spots several times a day. Doctors have been clueless and have just tried to treat symptoms....but nothing has worked.

I have always had minor GI issues and bloating, but still nobody had connected it to possible celiac, in fact I had never even heard of it until December 27, 2010.

My fiance has had his own issues, an itchy skin rash on his thighs for over 5 months, foul gas most of his life, and recurring IBS-like issues to name a few. We spent Christmas day with his family and I knew he would have some issues because none of the food was healthy.....everything was breaded, veggies were nowhere to be found, but I didn't expect him to be stuck in the bathroom for several days and missing work. He thought it was a virus, I thought otherwise and did a google search. Thank goodness for google! I wanted him to go get a celiac panel done immediately....he's dragging his feet on that, but we went gluten free anyways on Jan 4th.

In just over a week we can both notice a difference. Not only has his rash started to subside, his gas and other intestinal issues have gotten much better, AND I'm feeling quite a bit better too!

I only went gluten free to be supportive of him. but my energy is rising, my sluggish digestive system is getting more regular, AND I haven't had any seizures in two days, I'm not shaking, and I'm not seeing spots. Maybe it's too early to say these things are gone for good, but I'm not waiting for a diagnosis....removing gluten has helped too much. I'm not saying I'm back to the old me (not even near it), but I'm hoping to get back to working full time soon.....and who knows - maybe I'll even be able to start running again in the next few months. This year is beginning to look bright for us and I hope to be a healthy, all be it caffeine-free, gluten-free, soy-free, bride later this year. :)

If anyone has great gluten-free cake recipes, I'd love you to pm them to me.....I am now planning to make my own gluten free wedding cupcakes....I'd like our family to know that gluten free can taste good. (Especially since I think a handful of them are probably celiacs themselves.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

I really love The Allergen-Free Baker's Handbook by Cybele Pascal, How to bake without gluten, wheat, dairy, eggs, soy, peanuts, tree nuts and sesame. The cupcakes are awesome!

If you are going to make them gluten free, why not make them free of most food allergens for everybody to enjoy! Even vegans!

Congratulations!

Alison R Rookie

Thank you. I will have to look into that one.

My mother, trying to be supportive, went out and bought just about every gluten free flour she could find this week. So right now I have nine different packages of flour and two packages of xanthan gum and a package of guar gum in my pantry (along with several mixes and a small stash of pasta) for a family of two. I better get baking.....don't want this to all go to waste. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,296
    • Most Online (within 30 mins)
      7,748

    Rickyb85
    Newest Member
    Rickyb85
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Raquel2021
      Yes stress can .make the pain worse. That being said it is taking years for my body to heal. I am not able to eat out as 98 % of restaurants do not know how to cook for celiacs.  I only eat out on special occasions. Any time I eat gluten I feel there is a tourch going through my digestive system specifically in the area you have mentioned.  Like where the deudenal is . I am very sensitive to cross contamination so any small amount of gluten makes me sick.
    • trents
      @Ems10, celiac diagnosis normally involves two steps. The first one is serum antibody testing which you may have already have had done and are waiting on the results. The second step involves and endoscopy (aka, gastroscopy) with biopsy of the small bowel lining. This second step is typically ordered if one or more antibody tests were positive, is a confirmation of the serum antibody testing and is considered the gold standard diagnostic test for celiac disease. Now hear this, you should not be eating gluten free weeks or months in advance of either kind of testing. Prematurely going on a gluten free diet can and will sabotage the results of the endoscopy/biopsy should you get a referral to a GI doc who would want to do that. Eliminating gluten from the diet causes causes inflammation to subside which allows the small bowel ling to heal such that the damage they would be looking for is no longer there.
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Scott Adams
      It might make sense for you to find out if they've run a celiac disease test on you, and if not, consider planning for it.
    • Ems10
      Thanks for your reply! I’m really not too sure, the doctor just took a few tubes of blood & that’s all I know 🥹
×
×
  • Create New...