Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Which Of These Are Celiacs Symptoms?

HopefulMama23

Recommended Posts

HopefulMama23 Explorer
HopefulMama23
Posted

Can anyone tell me which of these could be symptoms of celiacs?

chronic green diarrhea (daily for four months)

bloated lower abdomen, right side

cold hands and feet, loss of feeling in fingers

scalp hair loss

ridged finger nails

body hair loss

always colder than everyone else (need sweater in summer)

bumps on upper arms (KP?)

very rough skin on heels, elbows

very dry, flaky skin

inflamed scalp

fatigue

depression

anxiety

Sorry- I know thats a lot. Celiacs is in my family and I think I have had it for a while and a recent tough pregnancy has exacerbated it to the point where I have a lot more symptoms than I ever did (enough to make me realize I probably have it).

If these symptoms are Celiacs-related, how long should it take before I see some relief from a gluten free diet? Should it concern me that I have stooped eating gluten for four days and the diarrhea persists (although it may be getting better)?

Thanks so much. I'm sorry to ask so many questions- I am desperate to understand what is going on with me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

They could all be celiac related. What testing has the doctor done already to see what could be causing the constant D? Have you had the celiac panel done yet? You need to be aware that if you are already gluten free it will cause a false negative. If you plan on testing you need to get back on gluten. It can take some time for problems to resolve on the diet and it is usually a good idea to stop dairy at first also.

Skylark Collaborator
Skylark
Posted

Your GI symptoms could be celiac. A lot of your other symptoms like the coldness, dry skin, depression, fatigue, and hair falling out are what happens to me when I get hypothyroid.

I'd ask the Dr. for a thyroid panel as well as celiac tests. The two often go together. As far as how long it takes, my stomach felt better in only two weeks. It took a long time for the anxiety and fatigue to go away. My mind healed slower than my gut.

HopefulMama23 Explorer
HopefulMama23
Posted
  • Author

I have a horrible doc- currently in the market for a new one. But he did test my thyroid, said it was "normal" and gave me the blood test for celiacs, which came back negative. I had severly cut down on gluten by the time I took the test, and I have fully eliminated it by now. If it is what causing me to feel this way, I'm not sure I could handle going back on it just to try and get a more accurate test. I'm ok with trying a gluten free diet to see if it alleviates anything- I just don't want to get furstrated after 2 weeks and quit if it takes longer than that to see some healing.

With celiacs being in my family, it seems the logical choice- and I am totally OK with living gluten free if it means I never have to feel like this again. I'm just so frustrated right now.

ravenwoodglass Mentor
ravenwoodglass
Posted

I think a lot of us can identify with having had to deal with horrible doctors. Hang in there. Do take precautions against cross contamination. Avoid restaurants for now and go with whole unprocessed foods for the most part. If you are eating gluten free bread make sure that you get a new toaster, don't share condiments, nut butters, jelly or butter with gluten eaters and get a new colander for rinsing fruits and veggie and draining gluten-free pastas. Make sure you check all supplements and over the counter and script meds to be sure they are gluten free. I hope you get some relief soon.

Skylark Collaborator
Skylark
Posted

I have a horrible doc- currently in the market for a new one. But he did test my thyroid, said it was "normal" and gave me the blood test for celiacs, which came back negative. I had severly cut down on gluten by the time I took the test, and I have fully eliminated it by now. If it is what causing me to feel this way, I'm not sure I could handle going back on it just to try and get a more accurate test. I'm ok with trying a gluten free diet to see if it alleviates anything- I just don't want to get furstrated after 2 weeks and quit if it takes longer than that to see some healing.

With celiacs being in my family, it seems the logical choice- and I am totally OK with living gluten free if it means I never have to feel like this again. I'm just so frustrated right now.

Try to find out your TSH results from the thyroid panel, and what the reference range was. There is new thinking that normal TSH should be below 2.5, but some diagnostic labs still label values below 5.0 as "normal". A bad doctor won't necessarily know this and will go by the values the lab provides. If your TSH is above 2.5, with all those symptoms you need to push for an endocrinologist referral.

I would suggest you commit to staying gluten-free for 3-4 months. That's enough time to really see some difference.

HopefulMama23 Explorer
HopefulMama23
Posted
  • Author

Try to find out your TSH results from the thyroid panel, and what the reference range was. There is new thinking that normal TSH should be below 2.5, but some diagnostic labs still label values below 5.0 as "normal". A bad doctor won't necessarily know this and will go by the values the lab provides. If your TSH is above 2.5, with all those symptoms you need to push for an endocrinologist referral.

I would suggest you commit to staying gluten-free for 3-4 months. That's enough time to really see some difference.

Thanks for the responses! I am trying to find a new internist. I asked my Family doc for a referral to an endicrinologist and he said no. Unbelievable. I do have an appt with my dermatologist coming up- do you think she could run those tests? Or even give me a referral?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


next2normal Newbie
next2normal
Posted

Antigliadin IGG and IGA TEST

go for one of these tests. a negative celiac test means you maybe non celiac gluten sensitive,and doctors appear to want people to go back and back, i was negative for celiac,yet my igg was 295(15) and iga 110(10)

for every celiac there are 20 non celiac gluten sensitive,so if you think celiacs are under daignoised,it is only the tip of the iceberg,also lots of meds have 100% gluten binding them together,so what do doctors realy know of this protein,

Skylark Collaborator
Skylark
Posted

Thanks for the responses! I am trying to find a new internist. I asked my Family doc for a referral to an endicrinologist and he said no. Unbelievable. I do have an appt with my dermatologist coming up- do you think she could run those tests? Or even give me a referral?

It mostly depends on your insurance. Any MD can order a celiac panel but you might need the justification. You might get a good referral for a new GP from your dermatologist. Again, referral to an endocrinologist from another specialist depends on your insurance. On my HMO everything has to go through my GP.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,743
    • Most Online (within 30 mins)
      7,748
    Jessica ostrander
    Newest Member
    Jessica ostrander
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Prior to being diagnosed, I had a gluten heavy diet. I stopped all gluten exactly a week ago and have continued to feel sick in the ways I did prior to going gluten free - primarily on and off nausea, brain fog, and fatigue. Wondering if this is normal and, if so, how long can I expect to feel this way?
    • Scott Adams
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Scott Adams · Posted

      Some of the largest contract manufacturers in the U.S. include companies like NutraScience Labs, Capsugel (part of Lonza), and Thorne Research. These companies produce supplements for a wide range of brands, from small startups to well-known names.
    • Sandi20
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Sandi20 · Posted

      Thank you for your feed back and knowledge.  Scott do you know the names of the BIG manufactures who produce most supplements?  Love to research them all and decide on their principles and manufacturing certifications who I want to spend my dollars with if they provide other non private label supplements that are good. 
    • Scott Adams
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Scott Adams · Posted

      I haven't heard of them before, but a significant portion of dietary supplements are produced by a handful of large contract manufacturers. These companies have the facilities, expertise, and certifications to produce supplements at scale, making them attractive partners for brands that don’t have their own manufacturing capabilities. I doubt Forvia manufactures them directly, so it is hard to know if they are just doing clever marketing to a certain malabsorption crowd, or they actually have unique product.
    • Scott Adams
      Not sure if this is Celiac or just a gluten-free intolerance

      By Scott Adams · Posted

      That’s an interesting observation! The timing you mention does raise questions about the relationship between modern wheat varieties and the emergence of Non-Celiac Gluten Sensitivity (NCGS). Norman Borlaug’s work on high-yield, disease-resistant wheat during the Green Revolution significantly increased global food production, but it also led to changes in the composition of wheat, including higher gluten content to improve baking qualities. While NCGS was formally recognized as a condition in the 2010s (https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-10-13 and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820047/) , it’s important to note that the awareness and diagnosis of gluten-related disorders have evolved over time. Some researchers suggest that modern wheat breeding practices, along with changes in food processing and gut health, may contribute to the rise in gluten sensitivity. However, the exact mechanisms behind NCGS are still not fully understood, and it remains a debated topic in the scientific community. It’s also worth considering that increased awareness and improved diagnostic tools have played a role in identifying conditions like NCGS that may have existed but were previously unrecognized. The interplay between genetic, environmental, and dietary factors makes this a complex issue, and more research is needed to fully understand the connections.
×
×
  • Create New...