Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Belly Feels So Gross!


cO-ol

Recommended Posts

cO-ol Explorer

My belly feels HORRIBLE. Like, anything touching it, just feels... gross. I can't explain it any other way. I'm wearing a blanket and I have my legs raised up so the blanket won't touch my belly. It doesn't hurt it just feels SO GROSS!!!!!!!!!!!!! I've always had this issue, but normally it just meant wearing any kind of pants was a problem (but occasionally it was like this, where EVERYTHING touching my belly felt bad). I wear pants for work, and I have to wear maternity pants (and sometimes scrubs are OK) because regular pants are so uncomfortable.

I have to work tomorrow. I have to wear pants!!!!! The thought is HORRIFYING.

PLEASE PLEASE PLEASE tell me I'm not the only one who experiences this! And what can I do to stop it???? OMG MY BELLY FEELS SO HORRIBLE Y'ALL. I can't tell if I'm getting CC'd or it's an intolerance to something. It felt immediately worse after eating some chocolate that's dairy, soy, and gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Loey Rising Star

My belly feels HORRIBLE. Like, anything touching it, just feels... gross. I can't explain it any other way. I'm wearing a blanket and I have my legs raised up so the blanket won't touch my belly. It doesn't hurt it just feels SO GROSS!!!!!!!!!!!!! I've always had this issue, but normally it just meant wearing any kind of pants was a problem (but occasionally it was like this, where EVERYTHING touching my belly felt bad). I wear pants for work, and I have to wear maternity pants (and sometimes scrubs are OK) because regular pants are so uncomfortable.

I have to work tomorrow. I have to wear pants!!!!! The thought is HORRIFYING.

PLEASE PLEASE PLEASE tell me I'm not the only one who experiences this! And what can I do to stop it???? OMG MY BELLY FEELS SO HORRIBLE Y'ALL. I can't tell if I'm getting CC'd or it's an intolerance to something. It felt immediately worse after eating some chocolate that's dairy, soy, and gluten-free.

You are not alone!!! When I'm having a flare (my latest has lasted for 5 months and counting) I have to put books between my seatbelt and my belly just to be able to tolerate a car ride. I'm sitting here right now feeling your (and my) pain. I know I've seen other threads about things you can take for bloating but I don't remember the dates or the exact thread. Someone more knowledgeable than I am will answer you soon. I'm new to Celiac (and an ulcer and IBS - diagnosed last June) so I'm not the most experienced. I just waned to get a reply to you ASAP so you didn't feel alone in this. Just remember that this forum has the best people I've ever been lucky enough to meet. As for work tomorrow does a loose dress feel more comfortable? Have you tried ice? Hang in there and feel free to PM me!

Loey

cO-ol Explorer

As for work tomorrow does a loose dress feel more comfortable? Have you tried ice? Hang in there and feel free to PM me!

Loey

Unfortunately black pants are part of the dress code. :( I've seen (non-skinny!) coworkers wear (and get away with) leggings though they're not technically allowed; those usually feel semi-OK.

Just remember that this forum has the best people I've ever been lucky enough to meet.

Amen to that! :D I remember praying for earthly beings who understood me years ago, and hey, look. (I'm godless now, but shhhhh). :P

I'm due for my period in about a week (or less, if the 35ish-day cycle isn't going to be the norm for me...) I wonder how much that has an effect?

CarolinaKip Community Regular

My belly feels HORRIBLE. Like, anything touching it, just feels... gross. I can't explain it any other way. I'm wearing a blanket and I have my legs raised up so the blanket won't touch my belly. It doesn't hurt it just feels SO GROSS!!!!!!!!!!!!! I've always had this issue, but normally it just meant wearing any kind of pants was a problem (but occasionally it was like this, where EVERYTHING touching my belly felt bad). I wear pants for work, and I have to wear maternity pants (and sometimes scrubs are OK) because regular pants are so uncomfortable.

I have to work tomorrow. I have to wear pants!!!!! The thought is HORRIFYING.

PLEASE PLEASE PLEASE tell me I'm not the only one who experiences this! And what can I do to stop it???? OMG MY BELLY FEELS SO HORRIBLE Y'ALL. I can't tell if I'm getting CC'd or it's an intolerance to something. It felt immediately worse after eating some chocolate that's dairy, soy, and gluten-free.

I wore dresses until it got really cold because my stomach was bloated and in pain 24/7. It hurt to have anything pressed against my stomach, I could not stand it, not even a seatbelt! Then I wore pants I could not button!!Then I started cuting out a lot of things. What made me able to buttom my pants again was giving up corn! Going grain free has been amazing! I hope one day I am healed enough to add some things back in. I feel for now, I'm still damaged and certain foods are hard to digest. I miss a lot, but enjoy the low pain days and I do not miss the terrible bloat. I do have bad days sometimes, I work in a school and the lunchroom kills me! Hang in there! Keep a food diary and see if certain foods bother you.

Loey Rising Star

Unfortunately black pants are part of the dress code. :( I've seen (non-skinny!) coworkers wear (and get away with) leggings though they're not technically allowed; those usually feel semi-OK.

Amen to that! :D I remember praying for earthly beings who understood me years ago, and hey, look. (I'm godless now, but shhhhh). :P

I'm due for my period in about a week (or less, if the 35ish-day cycle isn't going to be the norm for me...) I wonder how much that has an effect?

Again, just hang in there and feel free to PM me. I would imagine that expecting your period would definitely add to all you're going through. I'm 58 now but when I did have my period I suffered from serious bloating. My original GI in NJ (an angel) felt I had gone undiagnosed for decades. Again, a dress might provide you with more comfort (if it's not too cold where you live). I'm in RI and wear nightgowns and oversized sweats at home but the sweats still seem to hurt. It'strange that I'm at my lowest weight ever (lost 45 pounds) and can't wear any of my small clothes.

Hang in there and again, feel free to PM.

Healing Hugs,

Loey

missy'smom Collaborator

Some acidophilus might help-probiotics. I've used Nature Made and Country Life. Plenty of water.

cassP Contributor

oh its so nice to not feel alone here!!! im very sensitive to pants and the way they fit my abdomen... i prefer everything super ULTRA LOW... and all of my tights and pantyhose have the elastic waiste bands cut out of them. sometimes my intestines hurt just watching someone else wear pants that cut in to their stomachs


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      1

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Jmartes71 replied to Jmartes71's topic in Doctors
      6

      Second chance

    3. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,641
    • Most Online (within 30 mins)
      7,748

    JennaK23222
    Newest Member
    JennaK23222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.