Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Belly Feels So Gross!

cO-ol

By cO-ol
in Coping with Celiac Disease

Recommended Posts

cO-ol Explorer
cO-ol
Posted

My belly feels HORRIBLE. Like, anything touching it, just feels... gross. I can't explain it any other way. I'm wearing a blanket and I have my legs raised up so the blanket won't touch my belly. It doesn't hurt it just feels SO GROSS!!!!!!!!!!!!! I've always had this issue, but normally it just meant wearing any kind of pants was a problem (but occasionally it was like this, where EVERYTHING touching my belly felt bad). I wear pants for work, and I have to wear maternity pants (and sometimes scrubs are OK) because regular pants are so uncomfortable.

I have to work tomorrow. I have to wear pants!!!!! The thought is HORRIFYING.

PLEASE PLEASE PLEASE tell me I'm not the only one who experiences this! And what can I do to stop it???? OMG MY BELLY FEELS SO HORRIBLE Y'ALL. I can't tell if I'm getting CC'd or it's an intolerance to something. It felt immediately worse after eating some chocolate that's dairy, soy, and gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Loey Rising Star
Loey
Posted

My belly feels HORRIBLE. Like, anything touching it, just feels... gross. I can't explain it any other way. I'm wearing a blanket and I have my legs raised up so the blanket won't touch my belly. It doesn't hurt it just feels SO GROSS!!!!!!!!!!!!! I've always had this issue, but normally it just meant wearing any kind of pants was a problem (but occasionally it was like this, where EVERYTHING touching my belly felt bad). I wear pants for work, and I have to wear maternity pants (and sometimes scrubs are OK) because regular pants are so uncomfortable.

I have to work tomorrow. I have to wear pants!!!!! The thought is HORRIFYING.

PLEASE PLEASE PLEASE tell me I'm not the only one who experiences this! And what can I do to stop it???? OMG MY BELLY FEELS SO HORRIBLE Y'ALL. I can't tell if I'm getting CC'd or it's an intolerance to something. It felt immediately worse after eating some chocolate that's dairy, soy, and gluten-free.

You are not alone!!! When I'm having a flare (my latest has lasted for 5 months and counting) I have to put books between my seatbelt and my belly just to be able to tolerate a car ride. I'm sitting here right now feeling your (and my) pain. I know I've seen other threads about things you can take for bloating but I don't remember the dates or the exact thread. Someone more knowledgeable than I am will answer you soon. I'm new to Celiac (and an ulcer and IBS - diagnosed last June) so I'm not the most experienced. I just waned to get a reply to you ASAP so you didn't feel alone in this. Just remember that this forum has the best people I've ever been lucky enough to meet. As for work tomorrow does a loose dress feel more comfortable? Have you tried ice? Hang in there and feel free to PM me!

Loey

cO-ol Explorer
cO-ol
Posted
  • Author

As for work tomorrow does a loose dress feel more comfortable? Have you tried ice? Hang in there and feel free to PM me!

Loey

Unfortunately black pants are part of the dress code. :( I've seen (non-skinny!) coworkers wear (and get away with) leggings though they're not technically allowed; those usually feel semi-OK.

Just remember that this forum has the best people I've ever been lucky enough to meet.

Amen to that! :D I remember praying for earthly beings who understood me years ago, and hey, look. (I'm godless now, but shhhhh). :P

I'm due for my period in about a week (or less, if the 35ish-day cycle isn't going to be the norm for me...) I wonder how much that has an effect?

CarolinaKip Community Regular
CarolinaKip
Posted

My belly feels HORRIBLE. Like, anything touching it, just feels... gross. I can't explain it any other way. I'm wearing a blanket and I have my legs raised up so the blanket won't touch my belly. It doesn't hurt it just feels SO GROSS!!!!!!!!!!!!! I've always had this issue, but normally it just meant wearing any kind of pants was a problem (but occasionally it was like this, where EVERYTHING touching my belly felt bad). I wear pants for work, and I have to wear maternity pants (and sometimes scrubs are OK) because regular pants are so uncomfortable.

I have to work tomorrow. I have to wear pants!!!!! The thought is HORRIFYING.

PLEASE PLEASE PLEASE tell me I'm not the only one who experiences this! And what can I do to stop it???? OMG MY BELLY FEELS SO HORRIBLE Y'ALL. I can't tell if I'm getting CC'd or it's an intolerance to something. It felt immediately worse after eating some chocolate that's dairy, soy, and gluten-free.

I wore dresses until it got really cold because my stomach was bloated and in pain 24/7. It hurt to have anything pressed against my stomach, I could not stand it, not even a seatbelt! Then I wore pants I could not button!!Then I started cuting out a lot of things. What made me able to buttom my pants again was giving up corn! Going grain free has been amazing! I hope one day I am healed enough to add some things back in. I feel for now, I'm still damaged and certain foods are hard to digest. I miss a lot, but enjoy the low pain days and I do not miss the terrible bloat. I do have bad days sometimes, I work in a school and the lunchroom kills me! Hang in there! Keep a food diary and see if certain foods bother you.

Loey Rising Star
Loey
Posted

Unfortunately black pants are part of the dress code. :( I've seen (non-skinny!) coworkers wear (and get away with) leggings though they're not technically allowed; those usually feel semi-OK.

Amen to that! :D I remember praying for earthly beings who understood me years ago, and hey, look. (I'm godless now, but shhhhh). :P

I'm due for my period in about a week (or less, if the 35ish-day cycle isn't going to be the norm for me...) I wonder how much that has an effect?

Again, just hang in there and feel free to PM me. I would imagine that expecting your period would definitely add to all you're going through. I'm 58 now but when I did have my period I suffered from serious bloating. My original GI in NJ (an angel) felt I had gone undiagnosed for decades. Again, a dress might provide you with more comfort (if it's not too cold where you live). I'm in RI and wear nightgowns and oversized sweats at home but the sweats still seem to hurt. It'strange that I'm at my lowest weight ever (lost 45 pounds) and can't wear any of my small clothes.

Hang in there and again, feel free to PM.

Healing Hugs,

Loey

missy'smom Collaborator
missy'smom
Posted

Some acidophilus might help-probiotics. I've used Nature Made and Country Life. Plenty of water.

cassP Contributor
cassP
Posted

oh its so nice to not feel alone here!!! im very sensitive to pants and the way they fit my abdomen... i prefer everything super ULTRA LOW... and all of my tights and pantyhose have the elastic waiste bands cut out of them. sometimes my intestines hurt just watching someone else wear pants that cut in to their stomachs

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    2. CatS
      - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

      Thank you! It’s very easy to make seedy crackers. They are much more nutritious than commercial gluten free bread,
    3. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve. thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poo...
    4. Wheatwacked
      - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      My son was diagnosed when he was weaned in 1976 after several endoscopies. Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree. Whether an endoscopy is positive or negative is irrelevant. That may happen even with endoscopy. Pick your doctors with that in mind. In the end...
    5. RMJ
      - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1. Genetic testing. Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748
    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.