Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Skin Rash


divamomma

Recommended Posts

divamomma Enthusiast

For the last few months (prior to blood tests) my daughter has complained about an itchy back. She complained more often as the weeks progressed. Before I could not see any rash or bumps, now I do. It is mostly along the sides of her back. We have now been gluten-free for about 6 days. I see a HUGE improvement in many of her symtoms but not this. I would actually say it has gotten worse....more rashy/bumpy looking. Some bumps are looking sore. The picture here is not great. I had to take it with my cell phone.

Is this DH?

When will it get better?

What will make it feel better/take away the itch. If I put anything on it she says it stings. Thanks :)

sspx0202_picnik.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Try removing all iodine from your daughter's diet--with DH, many of us need to do that. It takes BOTH gluten and iodine to cause DH is many cases (if not all), so eventually you can add the iodine back in. However, for me, I still break out in an odd rash that is chronic on my back from my thyroid medication, which contains iodine. Although this chronic rash is not at all like DH, it is intensely itchy. So...remove the iodine--she might just be sensitive to it.

eatmeat4good Enthusiast

There is an ointment that I use for the itch and pain. It is Walgreens brand of Pain Relieving Ointment which contains only Benzocaine but helps a great deal.

Also, the literature says the rash will take 6 months to 2 years to heal on a strict gluten free diet. I have read that others improve more rapidly. I am on the fourth month and still have sores. It takes very little to activate the lesions. Any tiny CC or iodine (including fish) activate the sores for me.

Children seem to improve more rapidly and to heal faster than adults. But there is very little literature on DH in children other than to say that DH is extremely rare in children. My son's DH cleared up rapidly in about 2 months.

I hope this helps.

Also, the sunburn sprays may help her if it is on her back. I can't use them as my sores are on my face, so I use the ointment.

itchy Rookie

Hopefully it will clear up quickly if you have a very strict gluten free diet. Aside from the iodine suggestions (and you can't really eliminate iodine long term without affecting your health) nothing else is likely to make it better, in my experience at least.

I experience the stinging most intensely during the evening and early morning. Those are the times she may be most willing to accept some help to ease the annoyance. In my experience anything that softens the skin is helpful.

Also, the periods of intense stinging/itching seem to be associated with periods of healing, so I've come to see them as harbingers of better times ahead.

Finally, (and others may wish to comment on this) I haven't noticed that the lesions become infected. Perhaps the immune system is very active at this point and fights off microbes? Is there something to this, or have I just been lucky?

cassP Contributor

Try removing all iodine from your daughter's diet--with DH, many of us need to do that. It takes BOTH gluten and iodine to cause DH is many cases (if not all), so eventually you can add the iodine back in. However, for me, I still break out in an odd rash that is chronic on my back from my thyroid medication, which contains iodine. Although this chronic rash is not at all like DH, it is intensely itchy. So...remove the iodine--she might just be sensitive to it.

my forearms have been having horrible allergic type reactions since ive been on Synthroid. but i dont have an iodine allergy- altho, i had DH on my stomach, and what i thought were DH bumps on my forearm. but this time- my forearms are not itchy at all.... but they're horribly bumpy & so RED it looks like ive got chemical burns..... and they burn too... is it possible to have DH and not have it itch??? so strange

eatmeat4good Enthusiast

My sores never seemed to itch. I have read they are intensely itchy for others but mine are more like seecond degree burns. The burning sensation is intense and maddening. So I don't think all DH has to itch.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Xravith's topic in Related Issues & Disorders
      2

      Do Gluten Enzymes actually work?

    2. - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Not validated

    3. - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      My Journey Continues some notes

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

    5. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Your approach makes a lot of sense — focusing on balanced meals and being cautious about cross-contamination is smart, especially when you’re traveling or unsure of a kitchen’s gluten-free practices. Many GF foods do lean toward higher sugar or processed ingredients, so prioritizing whole foods (lean protein, fruits, veggies, healthy fats) at meals can help keep energy steady. For snacks that fill you up, look for protein bars with simple ingredients, higher protein, and lower added sugars — reading labels is key on GF bars since “gluten-free” doesn’t always equal healthy. Pairing a salad with a quality protein bar when you’re unsure about a restaurant’s GF safety is a great strategy to avoid symptoms while still feeling nourished. 
    • Scott Adams
      I agree, unfortunately a gluten challenge means intentional gut damage and inflammation to those with celiac disease, and taking lots of AN-PEP enzymes could potentially decrease this and skew the results, although I've not seen specific studies on this idea.
    • Scott Adams
      I’m really sorry you’re going through this — what you’re describing is, unfortunately, something many long-term celiac patients encounter. A negative blood test after decades gluten-free does not rule out biopsy-proven celiac disease, and it’s frustrating that your documented history isn’t being taken seriously. Being dismissed while you’re dealing with menopause-related changes, neurological concerns, and recovery from a demanding job would exhaust anyone, and it’s understandable that this is affecting your mental health. You deserve care that looks at the full picture, not quick conclusions, and it’s okay to keep advocating for yourself or seek a provider who truly understands complex autoimmune cases. You’re not imagining this, and you’re not alone.
    • Scott Adams
      It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating out, avoiding places that can’t confirm safety, and planning ahead for travel is exactly how many people stay well long-term. It’s also very common to discover that even “certified” or restaurant GF pizza doesn’t agree with you, so trusting that pattern makes sense. Overall, this reads like progress, not restriction—and the fact that you’re feeling better most of the time suggests you’re on the right path.
    • Scott Adams
      Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.