Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared Out Of My Mind


Newtoitall

Recommended Posts

Newtoitall Enthusiast

Alright so basically first post, hopefully in the right section, wasn't to sure, BUT anyways A short idea of my issue is facing the unknown, I got positive bloodwork for celiac they said it was at 18 or something, which I find high considering I hate bread lol and am due for a gastroanterologist on march 1st (on P.E.I it takes bloody forever, as I got diagnosed like a month before xmas) but basically all my life I was fine, never would have known about celiac, but come my 20th birthday, the head rash/acne thing(which now sounds like Hepatitus dermaformus) I had on my scalp went balistic and spread to my face, which ended in nodular acne, and that devested me, the pain was nothing compared to how it made me feel, so on I went with acutane, which I now know thanks to those lawyer commericals can cause all sorts of intestinal issues -.- (yes bare with me I have a point to all this) This all culminated into depression, anexity, and all the lovely bits that go with that, thing was, long after acutane, the depression and anexity stuck, so stupid little me, thinking depression was the worst thing ever (haha) goes hey, y'know I'm tired of surviving each day, I want to live each day, and on I went to Celexa, The Drug From Hell. I knew SSRI's were dangerous, but I figured only because it could mess with your mind, never would have seen what it was going to do comming, 3 weeks into it I had a rather spicy BM, didn't think to much of it, then the next day, took the pill, and my god, I have never been in so much pain in my entire life, it was horrific, and I believe the drug made my anexity trip out, so there I was bearing unbearable pain (not fun) thinking omg, soon this will be over, I have a new appreciation for the little lame problems I had, real pain > mental pain. Thing is, my stomach never really got back to normal, almost every damn BM causes me some kind of distres or pain or SOMEthing, even when it looks normal, and the weirdest part, is I'm somehow staying regular, everyday, even though it ain't much, I am not consuming hardly any fiber, so I really wonder, when I have a BM it usually feels like a mix of constipation and the big bad D as far as burning and stomach pain(a while after I go my lower stomach hurts like in between my pelvic bones), now it isn't THAT bad, but still, hardly comfortable, and I've been (as far as I know) gluten free since xmas, and for at least like two maybe three weeks soy free as well, I'm starting to worry fruit is doing it.. (the small amounts that I do have, not to contradict myself) which is why I find that hard to believe I don't eat that much but.. I had a bowl of blueberries, next day, stomach hurt all day, likely it was something else I had but still, maybe it was contaminated or I have some fructose intolerance?

So in conclusion if you made it through all of that, I applaude you, and prey that SOMEone went through this, or can at least give me an idea of what the heck is wrong with me.

Is this part of the increasing long healing process?

Will I ever get better?

or do I need to see a shrink I.E (hypervigilance of the instestinal tract) or just all in my head.

so tired of being scared to take a number two -.-

again sorry for the length.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am so sorry you are going through all this. Please be aware that if you are not eating gluten your celiac tests with the GI doctor will be negative. That said if you are still having issues even after being gluten free until then it is a good idea to see one. If you want him to formally diagnose you celiac you do need to go back on gluten right away though.

It is not uncommon for celiacs to have issues with anxiety and/or depression. The antibodies can effect the brain. Some newer research is advising doctors to test for celiac in patients that don't respond to antidepressants. I suffered from depression off and on for most of my life but thankfully that resolved after I had been gluten free for a bit. No antidepressant ever helped me,in fact most made me worse. I do have anxiety issues that did not resolve though. Finally I got a doctor to listen and stop giving me antidepressants or combo antidepressant and antianxiety meds and give me a straight antianxiety and the difference has been incredible. I also go to therapy and now am on just a minimal dose.

If your GI track is still giving you problems it might be a good idea to cook your fruits and veggies before you eat them as it will make them easier to digest. Do go with as much whole food as you can and stay away from alcohol until you are well healed as that is tough on the system also.

I do hope your feeling better soon.

applegirl03 Rookie

First off I am so sorry this is happening to you. I have been there and back, so I know how hard it is. Before the celiac diagnosis I was having severe anxiety, they put me on lexapro and let me tell you the worst 4 days of my life. I got this symptom most people refer to as "brain zaps" where you feel like you are seriously being struck by lighting in the head. Anyway, being sick and having no answers besides Doctors throwing meds and me for 2 years I would say my anxiety reached an all time high. I finally found a doc who ran not just test for Celiac but also other food intolerances. Turns out I have many more than just gluten, so that is why I did not heal after eliminating gluten. So I followed the diet and felt great for about 6 months until I all the sudden started having bathroom issues. I went from major diarehea to severe fecal impactions. Well I went back to the doc and she tested my stool and we found out I had a yeast infection that was off the charts high. She said she had never seen someone with levels that high. I explained my symptoms and told her about my severe anxiety. She told me that the yeast release an endotoxin that goes straight to your brain and causes your symptoms. So turns out I am not totally crazy! lol..well I am 3 weeks into the treatment to get rid of this yeast infection and I am fine some days and other days I am so anxious I just want to crawl in a hole. My doctor recommended I try Ashwagandha twice a day and that should help. I am more willing to try something like that over these SSRI's. I had bad post partum depression after my son was born 6 years ago and I went on Effexor XR. It did work, but after a year I decided to come off of it. I titrated down under doctor supervision and it was still the worst month of my life. The withdrawl was awful. If you do need an anti-anxiety med that is totally fine, but I would really try a natural remedy first and see if that helps. The worst thing that can happen is that it doesnt help, then you move on to the next thing. I am picking up some natural herbs today to help curve the anxiety, and I will let you know how they work. Also, you may want to consider doing an all natural cleanse that can get rid of excess yeast in your system. I know its worked wonders for me already. Good luck and please know there are people out there who are experiencing the same things as you and we are all here you for! :)

Newtoitall Enthusiast

First off I am so sorry this is happening to you. I have been there and back, so I know how hard it is. Before the celiac diagnosis I was having severe anxiety, they put me on lexapro and let me tell you the worst 4 days of my life. I got this symptom most people refer to as "brain zaps" where you feel like you are seriously being struck by lighting in the head. Anyway, being sick and having no answers besides Doctors throwing meds and me for 2 years I would say my anxiety reached an all time high. I finally found a doc who ran not just test for Celiac but also other food intolerances. Turns out I have many more than just gluten, so that is why I did not heal after eliminating gluten. So I followed the diet and felt great for about 6 months until I all the sudden started having bathroom issues. I went from major diarehea to severe fecal impactions. Well I went back to the doc and she tested my stool and we found out I had a yeast infection that was off the charts high. She said she had never seen someone with levels that high. I explained my symptoms and told her about my severe anxiety. She told me that the yeast release an endotoxin that goes straight to your brain and causes your symptoms. So turns out I am not totally crazy! lol..well I am 3 weeks into the treatment to get rid of this yeast infection and I am fine some days and other days I am so anxious I just want to crawl in a hole. My doctor recommended I try Ashwagandha twice a day and that should help. I am more willing to try something like that over these SSRI's. I had bad post partum depression after my son was born 6 years ago and I went on Effexor XR. It did work, but after a year I decided to come off of it. I titrated down under doctor supervision and it was still the worst month of my life. The withdrawl was awful. If you do need an anti-anxiety med that is totally fine, but I would really try a natural remedy first and see if that helps. The worst thing that can happen is that it doesnt help, then you move on to the next thing. I am picking up some natural herbs today to help curve the anxiety, and I will let you know how they work. Also, you may want to consider doing an all natural cleanse that can get rid of excess yeast in your system. I know its worked wonders for me already. Good luck and please know there are people out there who are experiencing the same things as you and we are all here you for! :)

oh dayum, I didn't know how I was going to make it a few more weeks, you put up with these things so long =O, It's funny I was just reading about that yeast thing and SIBO and I was thinking well, worrying that it's some kind of damage from the celexa, like it tore up my intstinal tract some how, y'know like burn off some lining or something =o, because as it stands, It seems like I'm gluten sensitive, soy sensitive, diary sensitive AND fructose, seems a bit excessive right?

stupid question this yeast infection, all I know of yeast infections is women get them..down thur =p

men can get this yeast infection of the stomach right? dumb questions must be asked lol

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,884
    • Most Online (within 30 mins)
      7,748

    Mpshipman
    Newest Member
    Mpshipman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • emily 1
      Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow.   
    • Barcino
      I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. 
    • trents
      I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases-conditions/canker-sore/symptoms-causes/syc-20370615 Are you observing a strict gluten free diet? You might also look into reducing iodine consumption as that is known to help with herpetiformis dermatitis. Perhaps it will help with your canker sores as well. 
    • knitty kitty
      Do you wear an M-95 mask left over from the pandemic when you handle flour? Do you eat out in restaurants? Do you take vitamins?  
    • knitty kitty
      These articles are helpful.
×
×
  • Create New...