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Self-diagnosis - Is It Cd? Please Help

kati

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kati Newbie
kati
Posted

I stumbled onto this forum and was hoping someone might be able to help me self-diagnose. I have been to a couple of different holistic Docs who tested me and said I was allergic to wheat, barley, corn, etc etc. Anyway, I suffered through a 2 year long bout of gas, gurling tummy, stomach pains and loose bm's... it cleared up for a while once I went ot an allergist who told me to avoid the wheat and stuff... anyway in November my stomach problems came back with a vengence... and it has been constant since then - just terrible. I do not want a diagnosis mentioning any "disease" on my medical records as we are really close to completing an international adoption and that would look bad on our medical reports... so I picked up a magazine in Sprouts on Saturday and it described exactly what I was going through.... so I guess what I am looking for is confirmation of sorts that this could be the answer to my problems.... any advice, information etc would be great.. thanks

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angel-jd1 Community Regular
angel-jd1
Posted

This website along with the message board has a plethora of information. You might want to try looking on the site and searching the message board for the great information.

-Jessica :rolleyes:

SadiesMomma Apprentice
SadiesMomma
Posted

What sorts of things are you allergic to?

I too am allergic to corn, wheat, dairy, soy, nuts, eggs.. you name it its probably on my forbidden list.

Were all here to help... The site is wonderful and can help you learn a LOT about Celiac. Good luck. and congrats on the new soon to be kiddo in your lives!

kati Newbie
kati
Posted
  • Author

SadiesMomma - I sound like you.... I am allergic to bananas, potatoes, corn (in any form) pectin, brocolli, cauliflower, buckwheat, wheat, soy, dairy, and the list goes on...... in reality I seriously think I have celiac disease, apparently my Mother said we were all allergic to milk when we were kids (all 6 of her kids) grrr she only told me this on Sunday.... I still eat bannana's and some of the veggies, even though the allergist told me that I am allergic to them, its just that there is a limit to not eating... lol... I am going to avoid gluten from now on, and dairy of course.. "rice milk is my friend" I will see how it goes.... I am fairly certain that I can control my "IBS" like symptoms this way....

Thanks for the congrats on the kiddies...

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      Celiac Test Results - Thoughts?

      By hmkr · Posted

      The IGA tests 5 years ago were: Transglutaminase IGA (EMY IGA) (CENT-tTG), <2 Immunoglobulin A (CENT-IGA), 246 IgA Quantitative was done last month, that was 261. Is that the one you mean?  
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      Celiac Test Results - Thoughts?

      By trents · Posted

      When you say a GI doc did an IGA five years ago and it was negative, which IGA measure do you speak of. There are several possibilities. Do you refer to the tTG-IGA? Have you had a total IGA test done? It isn't a test for celiac per se but can establish whether or not you are IGA deficient. If you are IGA deficient, it will drive individual IGA test scores down and can result in false positives. The tTG-IGA should always be accompanied by a total IGA test. When people are IGA deficient and actually do have celiac disease we often see it detected by the IGG tests. The same can be said if they have been skimping on gluten previous to the blood draw and, IMO, negatives in the IGA test spectrum with positives in the IGG spectrum can also point to NCGS or NCGS transitioning to celiac.
    • Scott Adams
      Celiac Test Results - Thoughts?

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    • hmkr
      Celiac Test Results - Thoughts?

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    • Kiwifruit
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      That’s good to know. Might be time to head back to my gastrointestinal doctor then.
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