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Different Symptoms

RhubarbGranny

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RhubarbGranny Newbie
RhubarbGranny
Posted

Can swelling, itching and tingling in the hands and feet be a symptom of Gluten intolerance or Celiac? I have noticed lately that whenever I get glutened, I also have this problem.

Don't know if it is part of the problem or just a coincidence stemming from something else.

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Marilyn R Community Regular
Marilyn R
Posted

I absolutely had the itching and tingling sensations before being diagnosed, but no swelling. Hair loss too. There are quite a few British medical articles written about neurological deficits and celiac disease.

I had a lot of problems going up and down steps, profound depression and insomnia too. I was diagnosed pretty late in the game. I still have itching and tingling sensations if I accidently or incidently ingest gluten or a few other proteins that bug my system.

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    • trents
      Need Advice on Doctors

      By trents · Posted

      Welcome to the forum, @Jason Hi! First, we need to deal with some squishy terminology. There are two terms which are, unfortunately, used interchangeably and indiscriminately to refer to two different gluten-related disorders. The two terms are "gluten sensitive" and "gluten intolerant". Because these terms are used carelessly we are not certain what you mean when you say your doctor told you that your are likely "gluten sensitive". The actual medical terms for these two gluten disorders are: "celiac disease" and "Non Celiac Gluten Sensitivity" or NCGS for short. The test you had run by the GI doc are intended to check for celiac disease. There is no test for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out.  Because these terms are used by many people interchangeably I'm not sure that your doctor, after running the tests, was intending for you to understand that he believes you have celiac disease or NCGS. So, to clear up the confusion, can you post the results of your blood test, not just the test scores but the reference ranges used by the lab analyzing the blood sample to determine negative/positive or normal/high? The difference between celiac disease and NCGS is that celiac disease damages the lining of the small bowel over time whereas NCGS does not. However, they may share many of the same gastro intestinal symptoms. Both need to be addressed with a gluten free diet but the tax breaks and work place accommodations you speak of would likely only accrue from an official celiac disease diagnosis. So, can you post the blood test results along with the reference ranges and also the endoscopy report. We can help you decipher whether or not the doc was suggesting you may have celiac disease or NCGS if you will do that.
    • Jason Hi
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    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
    • Celiacandme
      Waiting on Blood test results…

      By Celiacandme · Posted

      Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
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