Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On Celiac Diet For A Year, Now I Have Joint Pain

imracin68j

By imracin68j
in Doctors

Recommended Posts

imracin68j Rookie
imracin68j
Posted

My 7 year old daughter was diagnosed with Celiac disease and my 50 year old mom died of intestinal cancer a year ago. I don't know if she had Celiac disease but alot of her symptoms lead me to getting my daughter tested. I have dealt with stomach issues for a while so I went gluten free along with my daughter. Many if not all of my symptoms have left but I have obtained joint pain. I feel like I'm getting joint deteriation. My wife has noticed joint issues as well, maybe not quite as bad as mine. She is gluten free now as well. Is there something in bread or flour that our joints/cartilage depends on? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

My 7 year old daughter was diagnosed with Celiac disease and my 50 year old mom died of intestinal cancer a year ago. I don't know if she had Celiac disease but alot of her symptoms lead me to getting my daughter tested. I have dealt with stomach issues for a while so I went gluten free along with my daughter. Many if not all of my symptoms have left but I have obtained joint pain. I feel like I'm getting joint deteriation. My wife has noticed joint issues as well, maybe not quite as bad as mine. She is gluten free now as well. Is there something in bread or flour that our joints/cartilage depends on? Thanks.

I would encourage you and your wife to have a full metabolic panel, if you have not done that. Your primary doctor can do that.

I assume that you know that being gluten free, will not render accuracy in testing. And gene testing can only indicate a pre-disposition. But, that can be a piece of the puzzle.

I have have joint and fluid issues in my joints, but dont' attribute those to Celiac. Not all road lead there.

But you have a history. I would contact a medical professional who is informed.

GFinDC Veteran
GFinDC
Posted

.... Is there something in bread or flour that our joints/cartilage depends on? Thanks.

I don't think there is anything in gluten that our joints depend on. If there were, every gluten-free person on this board would be having joint pain. I have had joint pain but it stopped when I got off nightshades. Other people have reported joint pain from nightshades also.

cassP Contributor
cassP
Posted

no, in fact- i believe that WGA (wheat germ agglutin- another troublesome protein in wheat, not gliadin)- actually plaques up the joints- and Glucosamine helps to bind up WGA- this may be why people find relief when taking glucosamine.

your new joint pain could be from other food intolerances- such as dairy, potatoes, corn, nightshades, or soy...

ORRRRR you could have a vitamin D deficiency- which is common these days- and even more common in those with gluten intolerance.

i just found out i am vit. d deficient... i get muscle spasms- and some joint stiffness- hoping my new supplements will make a difference.- go get tested

mushroom Proficient
mushroom
Posted

no, in fact- i believe that WGA (wheat germ agglutin- another troublesome protein in wheat, not gliadin)- actually plaques up the joints- and Glucosamine helps to bind up WGA- this may be why people find relief when taking glucosamine.

your new joint pain could be from other food intolerances- such as dairy, potatoes, corn, nightshades, or soy...

ORRRRR you could have a vitamin D deficiency- which is common these days- and even more common in those with gluten intolerance.

i just found out i am vit. d deficient... i get muscle spasms- and some joint stiffness- hoping my new supplements will make a difference.- go get tested

OORRR it is entirely possible that not eating gluten or nightshades or corn or soy, will not make the slightest bit of difference to your joint pain. I am gluten intolerant, and avoid all of the foregoing because I am also intolerant of them, but if I quit my Humira injections my rhematoid/psoriatic arthritis (with the psoriasis) comes roaring back, unfortunately. Maybe I got to it too late, maybe it is separate, maybe who knows???..... Maybe I am just unlucky? :(

GFinDC Veteran
GFinDC
Posted

Low thyroid, (hypothryroiditis) can also cause joint pain. I forgot the soy, that does a number on my joints too.

T.H. Community Regular
T.H.
Posted

There's nothing in bread or flour that joints depend on, to my knowledge. However, most gluten products are vitamin fortified and most gluten free bready products are not, so there could be some vitmin or nutrient that you WERE getting that you are now not.

However, I'm another who had joint pain AFTER going gluten free. For myself, it happens if I am getting low levels of gluten that aren't causing other issues - and that level has become lower the longer I'm gluten free - or I am eating some of the foods I'm allergic to.

I had no idea I was allergic to any foods before going gluten-free, and I was gluten-free a while before I started having symptoms. Most of them are NOT hives, but they do give me symptoms, and I tested positive on the allergy test to them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mcc0523 Newbie
mcc0523
Posted

With Ehlers-danlos syndrome, which causes joint pain, it's not uncommon to also develop Celiac/gluten-intolerance (I'm a member of several chronic illness message boards, and it's surprising the people who have both EDS and Celiac). If you have a history of being hypermobile/flexible in your joints (even if they aren't now... ironically hypermobility can turn into extremely stiff joints later in life due to joint damage and wear), and also have skin issues, like it is stretchy, very soft, and you get atrophic or cigarette paper scars, you should look further into this. There are further complications that can sometimes occur with EDS.

dilettantesteph Collaborator
dilettantesteph
Posted

Sometimes we get more sensitive to gluten when we stop eating it. Sometimes we notice symptoms which we didn't notice before. I had joint pain before diagnosis which went away gluten free. It comes back fairly easily when I get trace gluten consumption. It is possible that there is still enough gluten in your diet to be causing joint pain.

GFinDC Veteran
GFinDC
Posted

hey, thanks for the advice .. You really help me here to find out he problem.

Welcome to the site Anneparker! :)

  • 2 weeks later...
Marilyn R Community Regular
Marilyn R
Posted

My 7 year old daughter was diagnosed with Celiac disease and my 50 year old mom died of intestinal cancer a year ago. I don't know if she had Celiac disease but alot of her symptoms lead me to getting my daughter tested. I have dealt with stomach issues for a while so I went gluten free along with my daughter. Many if not all of my symptoms have left but I have obtained joint pain. I feel like I'm getting joint deteriation. My wife has noticed joint issues as well, maybe not quite as bad as mine. She is gluten free now as well. Is there something in bread or flour that our joints/cartilage depends on? Thanks.

I had a follow up visit with my PCP today for results on blood tests that my new endocrinologist ordered. One test was an ENA Screen which was ordered in conjunction with an ANA Screen. (It was to rule out Lupus and RA, according to the endo.) My PCP told me I have above normal RNP Antibodies, which means that I have Mixed Connective Tissue Disease. (MCTD.) They want me to consult with a Rheumatologist.

Anyway, I looked up MCTD when I got home and usually Joint Pain is a chief complaint. I haven't had joint pain, but thought you might want to request that bloodwork from your physician. ANA (Antinuclear antibodies) Screen, DNA, ENA Screen. I was more impressed with this Endocrinoligist than my first one, who is affiliated with one of those prestigious medical clinics.

The first Endo didn't order these tests, so I don't know if going gluten-free had any impact. I did a perfunctionary search to see if the two were related in medical studies but didn't come up with anything showing a correlation.

Hope this helps. I'm so sorry you lost your mom at such an early age, and wish the best for you and your family.

Marilyn R Community Regular
Marilyn R
Posted

Oops. I didn't search the forum before I posted my response. I highly recommend doing so...I'm not sure if I'll schedule the Rheumy appt. now. I refused to have my PCP office schedule it, because I wanted to check it out some more. Anyway, search "Mixed Connective Tissue Disorder" on the forum. Everything I've read supports the gluten-free diet. :)

applegirl03 Rookie
applegirl03
Posted

I was having a lot of the symptoms your describing...mine ended up being a massive yeast infection in my digestive tract (Candida) after a month of diflucan I felt much better and my joint pain was gone. I know you are seeing a Rhuemotologist, but doing an all natural yeast cleansing couldn't hurt at this point. You can pick them up at your local natural food store, really helped my symptoms, hope it helps you!

  • 1 month later...
BoppinRobin Newbie
BoppinRobin
Posted

Remember that just eating gluten free is not enough. I couldn't figure out why I would still have bouts of gut pain, joint pain, lethargy and D... Even after 10 yrs of eating gluten free (nothing processed- all whole, home made by me) a friend pointed out my cleaning products and personal care items were not gluten-free. This is my 6 th week of TOTAL gluten-free and I'm feeling much better!

Toss any product that does not say gluten-free on the label. Shampoo, soap, laundry items, cleaners. Make-up too.

psawyer Proficient
psawyer
Posted

Toss any product that does not say gluten-free on the label. Shampoo, soap, laundry items, cleaners. Make-up too.

I would respectfully suggest that this is an extreme position. Most non-food products that are, in fact, gluten-free are not labeled as such. That doesn't mean they are not suitable for use by us.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      26

      What should I do with these test results?

      Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure.
    2. Jack Common
      - Jack Common replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      26

      What should I do with these test results?

      I haven't seen any information there are other genes which trents wrote but what if I spend money to do this test and the results show I have these genes. It will mean nothing. I can have these genes and not have celiac disease if I know it right. Because biopsy is not available, unfortunately, the most reliable methods are blood tests, in my opinion...
    3. cristiana
      - cristiana commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      The first symptoms I had of coeliac disease were migraines. I think your doctor needs to test you for coeliac disease. The fact you are having migraines at night is interesting, but I never used to drink enough and my headaches were worse when I woke up in the morning. Dehydration was also a big cause for me.
    4. trents
      - trents commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      I'll ask the same question that knitty kitty asked? On what basis did your Dr arrive at the conclusion that you have gluten intolerance? But let's be clear about terminology because the terms "gluten intolerance" and "gluten sensitivity" are typically used interchangeably out there in the wild and both are used indiscriminately to speak of two different...
    5. Brandy969
      - Brandy969 replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      26

      What should I do with these test results?

      Thank you! I didn’t know this!
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,806
    • Most Online (within 30 mins)
      7,748
    dublin555
    Newest Member
    dublin555
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      What should I do with these test results?

      By trents · Posted

      Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure.
    • Jack Common
      What should I do with these test results?

      By Jack Common · Posted

      I haven't seen any information there are other genes which trents wrote but what if I spend money to do this test and the results show I have these genes. It will mean nothing. I can have these genes and not have celiac disease if I know it right. Because biopsy is not available, unfortunately, the most reliable methods are blood tests, in my opinion. So I'm gonna eat gluten for another two months and then do the test again. It will be 12 weeks eating food with gluten so some symptoms might appear. Now, I don't have any except fogginess but I'm a software developer so it could be normal for me. Talking about how much food containing gluten to eat, I'm eating 6 slices of wheat bread per day (each slice weighs around 35 grams). I think it's much more than other people eat doing a gluten challenge. Before a gluten free diet I had symptoms like some food intolerance, diarrhea, bloating, belching. However, I also had giardiasis and after treating it I started a gluten free diet so it's unclear whether I had this symptoms because of eliminating gluten or this parasite. The symptoms for both are very similar. So I think it was this parasite because two years ago and before I didn't have these symptoms and I always ate gluten freely. Am I thinking okay or should I consider/do something else? I appreciate any suggestions.
    • Brandy969
      What should I do with these test results?

      By Brandy969 · Posted

      Thank you! I didn’t know this! 
    • knitty kitty
      Night time migranes

      By knitty kitty · Posted

      Welcome to the forum, @Debado, Migraines at night can be caused by high levels of histamine.  Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine.  Our bodies make histamine, an important neurotransmitter.  Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles.   Some foods like gluten and nuts contain high histamine themselves or trigger our bodies to produce more histamine.  A low histamine diet is helpful, cutting out high histamine foods and histamine-release triggering foods.   Our bodies can breakdown a certain amount of histamine, but sometimes our bodies cannot keep up with the amount of histamine needing to be broken down, and can be overwhelmed by the amount of histamine resulting in Histamine Intolerance and health problems like migraines.   Vitamins C, B12, Pyridoxine B6 and thiamin B1 help lower histamine levels.  Our bodies use these vitamins to make an enzyme DOA (diamond oxidase) that breaks down histamine.  DAO from beef or pork kidney is an over-the-counter supplement that can be taken.   Riboflavin B2 is very helpful for relieving migraines.   Have you been diagnosed with Celiac Disease or suspect you have it?   Happy Holidays!
    • knitty kitty
      Guidance on next steps after the lab tests

      By knitty kitty · Posted

      @ABP2025, Have you thought about having a DNA test to check for known Celiac genes?    I do hope you will make sure that you are getting sufficient gluten to provoke an autoimmune response strong enough that the antibodies can be measured in the blood.  See article below. Celiac disease affects the absorption of nutrients,  including vitamins and minerals.  Your symptoms may be associated with thiamine deficiency.   Migraines and peripheral neuropathy, phimosis (yes, even this), and white spots on the brain are seen in thiamine deficiency.  Celiac disease disrupts the absorption of all the essential nutrients, but thiamine can be quickly depleted, in as little as three days.  Thiamine deficiency can occur even if blood tests show normal levels.  Thiamine deficiency can affect antibody production.      
×
×
  • Create New...