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Has Anyone Here Been Diagnosed With Microscopic Colitis?

Bis-quit

By Bis-quit
in Related Issues & Disorders

Recommended Posts

Bis-quit Rookie
Bis-quit
Posted

Hello everyone, I'm brand new to the board, I just now signed up. My name is Lori, I am married with 3 grown kids. I was diagnosed this past August with Microscopic Colitis, it can mimic Celiacs so they did test me for that as well. Fortunately I don't have celiac, but I still had to give up gluten as part of the treatment.

I'm just curious if anyone else here has been diagnosed with Microscopic Colitis, and if so, how is your treatment working? Were you able to get your symptoms under control?

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cyberprof Enthusiast
cyberprof
Posted

Hello everyone, I'm brand new to the board, I just now signed up. My name is Lori, I am married with 3 grown kids. I was diagnosed this past August with Microscopic Colitis, it can mimic Celiacs so they did test me for that as well. Fortunately I don't have celiac, but I still had to give up gluten as part of the treatment.

I'm just curious if anyone else here has been diagnosed with Microscopic Colitis, and if so, how is your treatment working? Were you able to get your symptoms under control?

Yes, there are a few around. Jerseygirl is one that I remember. Hopefully, they'll show up to answer the question. Or you could do a search and then send members Personal Messages with questions.

willabec Contributor
willabec
Posted

Yes, there are a few around. Jerseygirl is one that I remember. Hopefully, they'll show up to answer the question. Or you could do a search and then send members Personal Messages with questions.

what are your symptoms? i have both celiac and mc.....was on prednisone for a brief period (15 days) that helped a little, then tried entocort, things were ok but not as i had hoped, now on entocort and asacol at the same time...things possibly a little better...just started the new treatment about 2 weeks ago, so it may be too early to tell....some meds take a while to work, if they are going to.....

Dixiebell Contributor
Dixiebell
Posted

Does Microscopic Colitis heal or go away? I am asking because my G-mom says she had this years ago and said it was awful.

willabec Contributor
willabec
Posted

Does Microscopic Colitis heal or go away? I am asking because my G-mom says she had this years ago and said it was awful.

it does not go away it can go into remission though...can be days, weeks, months or even years but it can come back in the blink of an eye....i still have not had remission, although i just got diagnosed with it in november......

newgfcali Rookie
newgfcali
Posted

Yep, I have gluten intolerance and had it under control with diet for many months. Then I started having symptoms again and my gastro found that I also had microscopic colitis. Went on a regimen of Asacol for one month and that cleared it up. No recurrences since then, and it's been nearly a year. However, mc means no more NSAID's or aspirin products EVER again. So if you're in pain, Tylenol is your only option.

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    • Jess270
      Bitters for digestion?

      By Jess270 · Posted

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
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