Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Develop Other Food Allergies Besides Gluten?

Juls

By Juls
in Food Intolerance & Leaky Gut

Recommended Posts

Juls Newbie
Juls
Posted

Since I have become diagnosed with Celiac, (two weeks ago), and started eating gluten free I have noticed that dairy is as bad as gluten for me now. Is this common for others? Regular milk, even soy, is affecting my entire system. Is this something else I should be avoiding? I really can't afford to lose any more weight, so any suggestions would be very welcoming! I am so new at this, and it is very frustrating. Being hungry almost all of the time makes me near impossible to live with!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Newly diagnosed celiacs often have to avoid dairy. The enzyme to digest lactose (milk sugar) is produced in the villi--the same part of the small intestine that is damaged by the autoimmune reaction in celiac disease. Many of us are able to resume eating dairy products once the villi heal. Some of us have an issue with casein (milk protein) and must stay dairy-free.

mushroom Proficient
mushroom
Posted

And yes, some of us have issues with soy as well. There are lots of different milks out there - almond, hemp, rice (but not Rice Dream - processed with barley).

sa1937 Community Regular
sa1937
Posted

I use Lactaid milk (100% lactose free) and have for the past 10 months. I'm not casein intolerant. One of these days I'm going to test the lactose theory again...probably with a pint of Ben & Jerry's!

shopgirl Contributor
shopgirl
Posted

When I first went gluten-free, I was fine with dairy. About two months later, lactose intolerance kicked in. I think I had started to just overdo it with the dairy and my body said, "Okay, no more of that." I kicked out soy at the same time because I don't like the things I've read about it.

I miss dairy and hope to get it back at some point but I love the Silk Pure Almond milks that I drink. Delish. :)

Juls Newbie
Juls
Posted
  • Author

When I first went gluten-free, I was fine with dairy. About two months later, lactose intolerance kicked in. I think I had started to just overdo it with the dairy and my body said, "Okay, no more of that." I kicked out soy at the same time because I don't like the things I've read about it.

I miss dairy and hope to get it back at some point but I love the Silk Pure Almond milks that I drink. Delish. :)

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

cahill Collaborator
cahill
Posted

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

I understand, I was vegan or vegetarian for most of my adult life.My body at this point is unable to tolerate those sources of non meat protein I have depended on in the past. I also am not a meat eater but because meat,veggie and fruits are what my body can currently tolerate that is what I eat..I hope that after my gut has healed to be able to reintroduce dairy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shopgirl Contributor
shopgirl
Posted

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

I've struggled with this too. A lot of us here have.

In addition to making sure I have enough things to eat in a well-rounded diet, I've been working on my mind at the same time: trying to minimize the importance of food in my life. Until I'm able to enjoy the things I want when I want them, I'm trying to train myself to view food as a necessary nuisance and focus on other things.

I'm not sure how successful I've been at this point but I'm working on it.

Lalama Apprentice
Lalama
Posted

The same thing just started happening to me. Over the last month I began breaking out in hives while eating eggs and a couple of other foods that have never bothered me before. I am still trying to pinpoint what other foods I need to stay away from. I think I am going to start a rotation diet and plan what I am going to have each day to so I can more easily figure it out. I am going to have to go very bland and simple and simple. It's not going to be easy but I know I have to do it, so I can try to heal this leaky gut issue. It definitly does give you a new mindset...no more looking to food to satisfy but rather to nurture and fuel the body-that's how I should be looking at it anyhhow ;)

cahill Collaborator
cahill
Posted

The same thing just started happening to me. Over the last month I began breaking out in hives while eating eggs and a couple of other foods that have never bothered me before. I am still trying to pinpoint what other foods I need to stay away from. I think I am going to start a rotation diet and plan what I am going to have each day to so I can more easily figure it out. I am going to have to go very bland and simple and simple. It's not going to be easy but I know I have to do it, so I can try to heal this leaky gut issue. It definitly does give you a new mindset...no more looking to food to satisfy but rather to nurture and fuel the body-that's how I should be looking at it anyhhow ;)

I agree it definitely gives you a new perspective :P

I have found that by going very,(very,very :lol: ) basic and simple that foods taste amazing. I am tasting and enjoying food as I never have before.. It is as if without gluten and the others problem foods in my diet I am ACTUALLY tasting food for the first time. :D

Lalama Apprentice
Lalama
Posted

I agree it definitely gives you a new perspective :P

I have found that by going very,(very,very :lol: ) basic and simple that foods taste amazing. I am tasting and enjoying food as I never have before.. It is as if without gluten and the others problem foods in my diet I am ACTUALLY tasting food for the first time. :D

I totally agree with you! It's like tastebud heightened sensitivity has kicked in :D

jenngolightly Contributor
jenngolightly
Posted

Me too. I went on my elimination diet last May and introduced one food every 4-7 days. Since I found that I'm intolerant to many of the "staples" of my previous diet, I've been trying foods that I've never had before. I used to be a really picky eater, but since I'm forced to try new foods, I'm learning to enjoy the experience and the tastes of things that I didn't know existed. There are a lot of interesting tastes out there!

  • 2 weeks later...
kitchen-chemist Newbie
kitchen-chemist
Posted

I don't have an official diagnosis. I tested negative for top 2 Ab, and it would cost a ton of money to run the whole panel and do the biopsy. My grandmother WAS officially diagnosed, as was her sister. Both my sister and myself share similar symptoms, but mine had progressed to the point where I was nearly always nauseous, bloated, and chronic stomach cramps. I eliminated gluten and felt loads better. Personally, I have no doubt. Accidentally eating a granola bar with wheat and barley and w/in 30min I was sick to my stomach. My question regards cheese. I've known for years that I don't make much lactase (the enzyme that metabolizes milk sugar). A little lactose free milk with cereal doesn't seem to bother me. I eat yogurt all the time with no problem, and as long as I've not pissed off my innards by accidentally ingesting wheat, I can even eat a small bowl of ice cream w/o taking a lactase pill. I will get gassy if I over-do. 2x now I've eaten Chipolte flavored white cheddar (Kroger's Private selections) and it's caused a gluten-like reaction. It isn't as severe as if I went and ate a piece of bread, but still all the same symptoms. Wheat isn't listed and no other suspect ingredients, so I'm flummoxed. I REALLY HATE being ill. Until I went gluten free, it was a whole year of intestinal roller coaster that had only gotten worse and worse. Do I avoid all cheese for awhile? Stick to the white cheeses? How would I find out if I have a casein cross-allergy?

cahill Collaborator
cahill
Posted

2x now I've eaten Chipolte flavored white cheddar (Kroger's Private selections) and it's caused a gluten-like reaction. It isn't as severe as if I went and ate a piece of bread, but still all the same symptoms. Wheat isn't listed and no other suspect ingredients, so I'm flummoxed. I REALLY HATE being ill. Until I went gluten free, it was a whole year of intestinal roller coaster that had only gotten worse and worse. Do I avoid all cheese for awhile? Stick to the white cheeses? How would I find out if I have a casein cross-allergy?

do you react to plain cheddar cheese?? Do you react to nightshades ?( chipolte chile in the cheddar cheese )

  • 2 weeks later...
kitchen-chemist Newbie
kitchen-chemist
Posted

I've seen my lactase production decrease over the past decade, and used lactase pills or lactase free products to compensate. No doubt, this was due to the damage the Celiacs was causing, of which I was unaware. I've been gluten free for about a month (a couple of glutenation incidents aside) and realized that even with gluten free/lactose free dairy products (other than yogurt...seems not to bother me), I'd still feel like I'd been mildly glutenated. Generally, I'm fine by the next day, but it's still unpleasant. So, I decided to ditch dairy for awhile after reading about other folks how were sensitive to the casein. I think that's my problem. :( Soy milk plus a certified gluten free granola cereal and I'm fine. The same cereal plus lactose free milk gives me a mild nauseous feeling and gas.

I decided, since I'm very fond of cheese and ice cream, that I'd give it up for Lent (2 birds, one stone) lol. So, it'll be awhile before I can test goat cheese to see if it is different enough that my body doesn't see it as antibody target. I hope so, b/c life w/o cheese would be very sad. Next question I'll have to test is whether I can handle frozen yogurt, or if that too is off limits now. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jane02
      - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread.
    2. Jane02
      - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores).
    3. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

      This sounds very similar to the neuropathic pain I experienced with type two diabetes. Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6. These are vitamins frequently found to be low in people with pre-diabetes and diabetes. Remember that blood tests...
    4. trents
      - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

      Welcome to the celiac.com community, @Amiah! First of all, you would do well to post your question in one of the appropriate community forums rather than in a blog. It will get more attention that way. Now as to your question, there are some other things that can cause elevated igg antibodies besides celiac disease. Various infections, mostly. For...
    5. Scott Adams
      - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748
    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      Reverse Osmosis (RO) Water

      By Scott Adams · Posted

      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.