Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Develop Other Food Allergies Besides Gluten?


Juls

Recommended Posts

Juls Newbie

Since I have become diagnosed with Celiac, (two weeks ago), and started eating gluten free I have noticed that dairy is as bad as gluten for me now. Is this common for others? Regular milk, even soy, is affecting my entire system. Is this something else I should be avoiding? I really can't afford to lose any more weight, so any suggestions would be very welcoming! I am so new at this, and it is very frustrating. Being hungry almost all of the time makes me near impossible to live with!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Newly diagnosed celiacs often have to avoid dairy. The enzyme to digest lactose (milk sugar) is produced in the villi--the same part of the small intestine that is damaged by the autoimmune reaction in celiac disease. Many of us are able to resume eating dairy products once the villi heal. Some of us have an issue with casein (milk protein) and must stay dairy-free.

mushroom Proficient

And yes, some of us have issues with soy as well. There are lots of different milks out there - almond, hemp, rice (but not Rice Dream - processed with barley).

sa1937 Community Regular

I use Lactaid milk (100% lactose free) and have for the past 10 months. I'm not casein intolerant. One of these days I'm going to test the lactose theory again...probably with a pint of Ben & Jerry's!

shopgirl Contributor

When I first went gluten-free, I was fine with dairy. About two months later, lactose intolerance kicked in. I think I had started to just overdo it with the dairy and my body said, "Okay, no more of that." I kicked out soy at the same time because I don't like the things I've read about it.

I miss dairy and hope to get it back at some point but I love the Silk Pure Almond milks that I drink. Delish. :)

Juls Newbie

When I first went gluten-free, I was fine with dairy. About two months later, lactose intolerance kicked in. I think I had started to just overdo it with the dairy and my body said, "Okay, no more of that." I kicked out soy at the same time because I don't like the things I've read about it.

I miss dairy and hope to get it back at some point but I love the Silk Pure Almond milks that I drink. Delish. :)

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

cahill Collaborator

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

I understand, I was vegan or vegetarian for most of my adult life.My body at this point is unable to tolerate those sources of non meat protein I have depended on in the past. I also am not a meat eater but because meat,veggie and fruits are what my body can currently tolerate that is what I eat..I hope that after my gut has healed to be able to reintroduce dairy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shopgirl Contributor

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

I've struggled with this too. A lot of us here have.

In addition to making sure I have enough things to eat in a well-rounded diet, I've been working on my mind at the same time: trying to minimize the importance of food in my life. Until I'm able to enjoy the things I want when I want them, I'm trying to train myself to view food as a necessary nuisance and focus on other things.

I'm not sure how successful I've been at this point but I'm working on it.

Lalama Apprentice

The same thing just started happening to me. Over the last month I began breaking out in hives while eating eggs and a couple of other foods that have never bothered me before. I am still trying to pinpoint what other foods I need to stay away from. I think I am going to start a rotation diet and plan what I am going to have each day to so I can more easily figure it out. I am going to have to go very bland and simple and simple. It's not going to be easy but I know I have to do it, so I can try to heal this leaky gut issue. It definitly does give you a new mindset...no more looking to food to satisfy but rather to nurture and fuel the body-that's how I should be looking at it anyhhow ;)

cahill Collaborator

The same thing just started happening to me. Over the last month I began breaking out in hives while eating eggs and a couple of other foods that have never bothered me before. I am still trying to pinpoint what other foods I need to stay away from. I think I am going to start a rotation diet and plan what I am going to have each day to so I can more easily figure it out. I am going to have to go very bland and simple and simple. It's not going to be easy but I know I have to do it, so I can try to heal this leaky gut issue. It definitly does give you a new mindset...no more looking to food to satisfy but rather to nurture and fuel the body-that's how I should be looking at it anyhhow ;)

I agree it definitely gives you a new perspective :P

I have found that by going very,(very,very :lol: ) basic and simple that foods taste amazing. I am tasting and enjoying food as I never have before.. It is as if without gluten and the others problem foods in my diet I am ACTUALLY tasting food for the first time. :D

Lalama Apprentice

I agree it definitely gives you a new perspective :P

I have found that by going very,(very,very :lol: ) basic and simple that foods taste amazing. I am tasting and enjoying food as I never have before.. It is as if without gluten and the others problem foods in my diet I am ACTUALLY tasting food for the first time. :D

I totally agree with you! It's like tastebud heightened sensitivity has kicked in :D

jenngolightly Contributor

Me too. I went on my elimination diet last May and introduced one food every 4-7 days. Since I found that I'm intolerant to many of the "staples" of my previous diet, I've been trying foods that I've never had before. I used to be a really picky eater, but since I'm forced to try new foods, I'm learning to enjoy the experience and the tastes of things that I didn't know existed. There are a lot of interesting tastes out there!

  • 2 weeks later...
kitchen-chemist Newbie

I don't have an official diagnosis. I tested negative for top 2 Ab, and it would cost a ton of money to run the whole panel and do the biopsy. My grandmother WAS officially diagnosed, as was her sister. Both my sister and myself share similar symptoms, but mine had progressed to the point where I was nearly always nauseous, bloated, and chronic stomach cramps. I eliminated gluten and felt loads better. Personally, I have no doubt. Accidentally eating a granola bar with wheat and barley and w/in 30min I was sick to my stomach. My question regards cheese. I've known for years that I don't make much lactase (the enzyme that metabolizes milk sugar). A little lactose free milk with cereal doesn't seem to bother me. I eat yogurt all the time with no problem, and as long as I've not pissed off my innards by accidentally ingesting wheat, I can even eat a small bowl of ice cream w/o taking a lactase pill. I will get gassy if I over-do. 2x now I've eaten Chipolte flavored white cheddar (Kroger's Private selections) and it's caused a gluten-like reaction. It isn't as severe as if I went and ate a piece of bread, but still all the same symptoms. Wheat isn't listed and no other suspect ingredients, so I'm flummoxed. I REALLY HATE being ill. Until I went gluten free, it was a whole year of intestinal roller coaster that had only gotten worse and worse. Do I avoid all cheese for awhile? Stick to the white cheeses? How would I find out if I have a casein cross-allergy?

cahill Collaborator

2x now I've eaten Chipolte flavored white cheddar (Kroger's Private selections) and it's caused a gluten-like reaction. It isn't as severe as if I went and ate a piece of bread, but still all the same symptoms. Wheat isn't listed and no other suspect ingredients, so I'm flummoxed. I REALLY HATE being ill. Until I went gluten free, it was a whole year of intestinal roller coaster that had only gotten worse and worse. Do I avoid all cheese for awhile? Stick to the white cheeses? How would I find out if I have a casein cross-allergy?

do you react to plain cheddar cheese?? Do you react to nightshades ?( chipolte chile in the cheddar cheese )

  • 2 weeks later...
kitchen-chemist Newbie

I've seen my lactase production decrease over the past decade, and used lactase pills or lactase free products to compensate. No doubt, this was due to the damage the Celiacs was causing, of which I was unaware. I've been gluten free for about a month (a couple of glutenation incidents aside) and realized that even with gluten free/lactose free dairy products (other than yogurt...seems not to bother me), I'd still feel like I'd been mildly glutenated. Generally, I'm fine by the next day, but it's still unpleasant. So, I decided to ditch dairy for awhile after reading about other folks how were sensitive to the casein. I think that's my problem. :( Soy milk plus a certified gluten free granola cereal and I'm fine. The same cereal plus lactose free milk gives me a mild nauseous feeling and gas.

I decided, since I'm very fond of cheese and ice cream, that I'd give it up for Lent (2 birds, one stone) lol. So, it'll be awhile before I can test goat cheese to see if it is different enough that my body doesn't see it as antibody target. I hope so, b/c life w/o cheese would be very sad. Next question I'll have to test is whether I can handle frozen yogurt, or if that too is off limits now. :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Parkrunner commented on Scott Adams's article in Spring 2025 Issue
      1

      How Celiac Disease Impacts Bone Health: What You Need to Know

    2. - trents replied to Ben Cohen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      How much gluten do I need to eat prior to testing?

    3. - Ben Cohen replied to Ben Cohen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      How much gluten do I need to eat prior to testing?

    4. - Jmartes71 posted a topic in Dermatitis Herpetiformis
      0

      Skin issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,041
    • Most Online (within 30 mins)
      10,442

    MuddinMumsie
    Newest Member
    MuddinMumsie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Thanks for the update, Ben. If you will be having an endoscopy/biopsy to confirm the results of the blood testing - and this would be the normal protocol - you will still need to continue the gluten challenge until that is done.
    • Ben Cohen
      Update on how things went. To meet my daily quantity of gluten I had a measured amount of gluten flour with my breakfast and 2 slices of bread later in the day. I still had discomfort but it wasn't debilitating. My blood tests results came back this week and they were positive so I've been referred to a specialist.
    • Jmartes71
      Hello, Ive been to the dermatologist ( two different ones) and now made appointment, soonest is NOVEMBER. Ive been dealing  with skin issues for a while and its getting  worse because nothing has worked.I feel the bumps, gently squeeze and a itty bitty hard thing is coming out.I took a picture and did close up and in the MANY pictures ive taken this past few days, there's a " string" type thing at the end. I FEEL IT COMING OUT.... At first few pic it looks like hair, its not.Its  part of what ever is in my skin...I did call my Dr yesterday and will be seeing him this Monday. What test should I request to see what the hell is causing my skin to have?I don't know what to call it.I do sleep with my indoor cats.I also have an inheritance cat two years ago who took to sleeping with me as well.I also was on topiramate but had to stop because of speech issues, memory and it can affect those with  kidney stones. I did suffer kidney stones in past.So i had to completely stop.Since freaking out of what i KNOW what I saw, i took matters in my own hands and decided to eat several whole cloves a day.Since doing so, though im not to eat garlic.My skin is actually clearing up sloooooooooowly.but then again I just started 4 days ago and already notice a difference. My husband thinks im seeing things.I know what I see and feel. what test is there to ask doctor about what is in my skin? Husband thinks im seeing things, because of the meningioma and stopping meds.i know what i saw.
    • trents
      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
×
×
  • Create New...