Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Develop Other Food Allergies Besides Gluten?


Juls

Recommended Posts

Juls Newbie

Since I have become diagnosed with Celiac, (two weeks ago), and started eating gluten free I have noticed that dairy is as bad as gluten for me now. Is this common for others? Regular milk, even soy, is affecting my entire system. Is this something else I should be avoiding? I really can't afford to lose any more weight, so any suggestions would be very welcoming! I am so new at this, and it is very frustrating. Being hungry almost all of the time makes me near impossible to live with!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Newly diagnosed celiacs often have to avoid dairy. The enzyme to digest lactose (milk sugar) is produced in the villi--the same part of the small intestine that is damaged by the autoimmune reaction in celiac disease. Many of us are able to resume eating dairy products once the villi heal. Some of us have an issue with casein (milk protein) and must stay dairy-free.

mushroom Proficient

And yes, some of us have issues with soy as well. There are lots of different milks out there - almond, hemp, rice (but not Rice Dream - processed with barley).

sa1937 Community Regular

I use Lactaid milk (100% lactose free) and have for the past 10 months. I'm not casein intolerant. One of these days I'm going to test the lactose theory again...probably with a pint of Ben & Jerry's!

shopgirl Contributor

When I first went gluten-free, I was fine with dairy. About two months later, lactose intolerance kicked in. I think I had started to just overdo it with the dairy and my body said, "Okay, no more of that." I kicked out soy at the same time because I don't like the things I've read about it.

I miss dairy and hope to get it back at some point but I love the Silk Pure Almond milks that I drink. Delish. :)

Juls Newbie

When I first went gluten-free, I was fine with dairy. About two months later, lactose intolerance kicked in. I think I had started to just overdo it with the dairy and my body said, "Okay, no more of that." I kicked out soy at the same time because I don't like the things I've read about it.

I miss dairy and hope to get it back at some point but I love the Silk Pure Almond milks that I drink. Delish. :)

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

cahill Collaborator

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

I understand, I was vegan or vegetarian for most of my adult life.My body at this point is unable to tolerate those sources of non meat protein I have depended on in the past. I also am not a meat eater but because meat,veggie and fruits are what my body can currently tolerate that is what I eat..I hope that after my gut has healed to be able to reintroduce dairy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shopgirl Contributor

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

I've struggled with this too. A lot of us here have.

In addition to making sure I have enough things to eat in a well-rounded diet, I've been working on my mind at the same time: trying to minimize the importance of food in my life. Until I'm able to enjoy the things I want when I want them, I'm trying to train myself to view food as a necessary nuisance and focus on other things.

I'm not sure how successful I've been at this point but I'm working on it.

Lalama Apprentice

The same thing just started happening to me. Over the last month I began breaking out in hives while eating eggs and a couple of other foods that have never bothered me before. I am still trying to pinpoint what other foods I need to stay away from. I think I am going to start a rotation diet and plan what I am going to have each day to so I can more easily figure it out. I am going to have to go very bland and simple and simple. It's not going to be easy but I know I have to do it, so I can try to heal this leaky gut issue. It definitly does give you a new mindset...no more looking to food to satisfy but rather to nurture and fuel the body-that's how I should be looking at it anyhhow ;)

cahill Collaborator

The same thing just started happening to me. Over the last month I began breaking out in hives while eating eggs and a couple of other foods that have never bothered me before. I am still trying to pinpoint what other foods I need to stay away from. I think I am going to start a rotation diet and plan what I am going to have each day to so I can more easily figure it out. I am going to have to go very bland and simple and simple. It's not going to be easy but I know I have to do it, so I can try to heal this leaky gut issue. It definitly does give you a new mindset...no more looking to food to satisfy but rather to nurture and fuel the body-that's how I should be looking at it anyhhow ;)

I agree it definitely gives you a new perspective :P

I have found that by going very,(very,very :lol: ) basic and simple that foods taste amazing. I am tasting and enjoying food as I never have before.. It is as if without gluten and the others problem foods in my diet I am ACTUALLY tasting food for the first time. :D

Lalama Apprentice

I agree it definitely gives you a new perspective :P

I have found that by going very,(very,very :lol: ) basic and simple that foods taste amazing. I am tasting and enjoying food as I never have before.. It is as if without gluten and the others problem foods in my diet I am ACTUALLY tasting food for the first time. :D

I totally agree with you! It's like tastebud heightened sensitivity has kicked in :D

jenngolightly Contributor

Me too. I went on my elimination diet last May and introduced one food every 4-7 days. Since I found that I'm intolerant to many of the "staples" of my previous diet, I've been trying foods that I've never had before. I used to be a really picky eater, but since I'm forced to try new foods, I'm learning to enjoy the experience and the tastes of things that I didn't know existed. There are a lot of interesting tastes out there!

  • 2 weeks later...
kitchen-chemist Newbie

I don't have an official diagnosis. I tested negative for top 2 Ab, and it would cost a ton of money to run the whole panel and do the biopsy. My grandmother WAS officially diagnosed, as was her sister. Both my sister and myself share similar symptoms, but mine had progressed to the point where I was nearly always nauseous, bloated, and chronic stomach cramps. I eliminated gluten and felt loads better. Personally, I have no doubt. Accidentally eating a granola bar with wheat and barley and w/in 30min I was sick to my stomach. My question regards cheese. I've known for years that I don't make much lactase (the enzyme that metabolizes milk sugar). A little lactose free milk with cereal doesn't seem to bother me. I eat yogurt all the time with no problem, and as long as I've not pissed off my innards by accidentally ingesting wheat, I can even eat a small bowl of ice cream w/o taking a lactase pill. I will get gassy if I over-do. 2x now I've eaten Chipolte flavored white cheddar (Kroger's Private selections) and it's caused a gluten-like reaction. It isn't as severe as if I went and ate a piece of bread, but still all the same symptoms. Wheat isn't listed and no other suspect ingredients, so I'm flummoxed. I REALLY HATE being ill. Until I went gluten free, it was a whole year of intestinal roller coaster that had only gotten worse and worse. Do I avoid all cheese for awhile? Stick to the white cheeses? How would I find out if I have a casein cross-allergy?

cahill Collaborator

2x now I've eaten Chipolte flavored white cheddar (Kroger's Private selections) and it's caused a gluten-like reaction. It isn't as severe as if I went and ate a piece of bread, but still all the same symptoms. Wheat isn't listed and no other suspect ingredients, so I'm flummoxed. I REALLY HATE being ill. Until I went gluten free, it was a whole year of intestinal roller coaster that had only gotten worse and worse. Do I avoid all cheese for awhile? Stick to the white cheeses? How would I find out if I have a casein cross-allergy?

do you react to plain cheddar cheese?? Do you react to nightshades ?( chipolte chile in the cheddar cheese )

  • 2 weeks later...
kitchen-chemist Newbie

I've seen my lactase production decrease over the past decade, and used lactase pills or lactase free products to compensate. No doubt, this was due to the damage the Celiacs was causing, of which I was unaware. I've been gluten free for about a month (a couple of glutenation incidents aside) and realized that even with gluten free/lactose free dairy products (other than yogurt...seems not to bother me), I'd still feel like I'd been mildly glutenated. Generally, I'm fine by the next day, but it's still unpleasant. So, I decided to ditch dairy for awhile after reading about other folks how were sensitive to the casein. I think that's my problem. :( Soy milk plus a certified gluten free granola cereal and I'm fine. The same cereal plus lactose free milk gives me a mild nauseous feeling and gas.

I decided, since I'm very fond of cheese and ice cream, that I'd give it up for Lent (2 birds, one stone) lol. So, it'll be awhile before I can test goat cheese to see if it is different enough that my body doesn't see it as antibody target. I hope so, b/c life w/o cheese would be very sad. Next question I'll have to test is whether I can handle frozen yogurt, or if that too is off limits now. :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    2. - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    3. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    4. - Maura Gissen replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods

    5. - trents replied to Maura Gissen's topic in Food Intolerance & Leaky Gut
      5

      Autoimmune Reaction to SO many foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,982
    • Most Online (within 30 mins)
      7,748

    warrn8x
    Newest Member
    warrn8x
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
×
×
  • Create New...