Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting The Diet...need A Little Help


zebaldwin

Recommended Posts

zebaldwin Explorer

Did you feel gradually better or was it most noticeable after the 2 weeks?? Like, a day or 2 into it did you know it was helping?

(sorry, It's definitely not everyday I get to pick the brain of someone who can at least relate to what's going on in my head!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MsCurious Enthusiast

Diet may get rid of the headaches without the anti depressants. Beware of such, they are addictive and cannot be gone off of an on without care, plus some of them also have restrictions as to what you can EAT at the same time you are taking them.

By coincidence many of the side effects of said drug can mimic a gluten reaction (drowsiness, nausea, dizziness, insomnia) so if you add it at the same time you go gluten free you may mask your reaction to going gluten free.

From my experience it works best to eat simply as possible at first and then add in new foods slowly to gauge your reaction. Meat, vegetables, fruit, nuts, good oils, maybe some rice.

Anything that goes into your mouth needs to be gluten free.

To find if an item is gluten free, google gluten free name of item and it will usually pull up a discussion where you can then find the latest manufacturer's info. Beware old info as this tends to change.

I don't use gluten bearing cosmetics, but this is because I have longer hair and women tend to use a lot more of this stuff anyway and we tend to not keep our fingers away out of our hair. No way do I want to be spreading residues from hair conditioners around. My skin is super sensitive and my eyes will weep and blur if I use makeup that has it. ( I also have a dog with a wheat allergy, not the same thing, but you never want to use human shampoo with wheat or oats on an allergic dog- really a bad idea :ph34r: ) My husband glutenned me a few times by using hand lotion, and then bare hands on ice cubes and while making salads, which is when we switched him over to gluten free stuff also.

Others report that they have no problems with topicals, so this may not affect you.

OMG.... I never thought of that! But I have the same thing with makeup, and could never figure out why it would make my eyes water, etc. That could be it!

AerinA Rookie

Did you feel gradually better or was it most noticeable after the 2 weeks?? Like, a day or 2 into it did you know it was helping?

(sorry, It's definitely not everyday I get to pick the brain of someone who can at least relate to what's going on in my head!)

Pick my brain any time. :)

I started to feel my energy level climbing after about 3 days. Of course I still felt kind of lousy from withdrawals and I thought it was the placebo effect, and maybe it was, but things have continued to improve at a pretty steady pace since I started the diet. I feel more "normal" all the time. I had another migraine this weekend, from rain, and again was able to take some excedrin and it totally went away, I didn't even have to lie down. And I have been able to stay up until 12:30 or 1 am and still get to work and be fine the next day... before I would have to be in bed at 10:30 (and that was pushing it) or I wouldn't be able to get up, and I'd feel like I needed a nap all day. All in all it's a MAJOR improvement, and it has only been about 6 weeks.

Definitely feeling optimistic.

zebaldwin Explorer

Awesome.

I hope I can be in that boat soon!

(Can't imagine what it would feel like to be clear again..)

GFinDC Veteran

Hey Zack,

From what I've read here, neuro symptoms like ataxia can be kinda slow to go away. So, don't expect them to clear up in two weeks. They may improve tho. When you want to check a product, try Google like was suggested, and you can also check the nutrition info on the manufacturers site. Or the FAQ which often has a blurb about gluten content.

I eat Planters peanuts and don't have a problem with them. Planters will label any gluten in their products. So if you check their labels and it doesn't list any gluten ingredients, then you should be ok. I suggest you avoid soy also, as that is a problem for many of us. At least to start out with for a few months. Dairy is often a problem for people new to the diet also.

You might want to get some GFCFSF vitamins to take also. B-vitamins are supposed to be good for nerve health. Sub-lingual B-12 is often recommended as being easier to absorb.

Gaucamole can be made and has lots of protein. There are some soy free ships available, like UTZ gluten-free chips and some versions of Food should Taste Good chips. Hellman's canola oil cholesterol free mayo is soy free, only main stream one that is. Most natural or organic peanut butters are soy-free also, but check the labels always.

zebaldwin Explorer

Thanks GfinDC!

I'm just afraid that somehow I'm not doing the whole diet right and that I won't get results (even if I should)

Didnt realize how hard it would be living on campus! But I'm trying to get the hang of it.

And ya, I have heard that neurological problems take longer. And it will definitely be worth the wait if this is the solution...more than worth the wait!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Kwinkle's topic in Coping with Celiac Disease
      7

      I’m so confused…

    2. - knitty kitty replied to Kwinkle's topic in Coping with Celiac Disease
      7

      I’m so confused…

    3. - Scott Adams replied to Kj44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Testing

    4. - Scott Adams commented on Scott Adams's article in Chinese & Asian
      2

      Gluten-Free Ramen: A Comforting Bowl of Japanese Tradition

    5. - trents replied to Kj44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,172
    • Most Online (within 30 mins)
      7,748

    Angie Helms
    Newest Member
    Angie Helms
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
    • Scott Adams
      Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet. 
    • trents
      Have you considered the possibility that you might have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease? They share many of the same symptoms, the difference being that NCGS does not damage the lining of the small bowel. It is 10x more common than celiac disease. There is no test yet available for NCGS. Celiac disease must first be ruled out. In view of your genetic profile, I would give it consideration.
    • Kj44
×
×
  • Create New...