Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused About Casein

rogue

By rogue
in Food Intolerance & Leaky Gut

Recommended Posts

rogue Rookie
rogue
Posted

After being gluten free for nearly 6 years, it turns out that I'm still having problems absorbing vitamins and found out that I don't absorb zinc or folic acid, along with my malabsorption of B12. It caused a sluggish thyroid, among other problems. It might be that I have a problem with dairy. After a 3-month trip to China, my digestion improved ten-fold and I realized that I don't consume milk products there, aside from chocolate. So I cut most dairy from my diet and my digestion improved, though I'm not yet sure about the malabsorption. But I'm confused as to the root of the problem. My main symptom with dairy appears to be constipation- but I'm having severe fatigue issues as well (though that might be my battle with the thyroid.)

I suppose my main questions are:

1. Can casein cause a similar immunological reaction in the same way gluten would for Celiacs (meaning only needs to be absorbed into my bloodstream) or is it more like an intolerance and must go through my digestive tract?

2. My sublingual vitamins use lactose as a binder. Is it possible to separate lactose from casein?

I suppose I'm just confused about why Celiacs go on a casein-free diet to begin with if it doesn't cause a similar immune response. Is it merely an intolerance or is it something a little more sinister? I have several other food intolerances but they don't usually bother me unless I eat a lot of it. But I only need to lick an envelope with gluten on it to get sick.

I'm confused! Help!

  • 1 month later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kitchen-chemist Newbie
kitchen-chemist
Posted

After being gluten free for nearly 6 years, it turns out that I'm still having problems absorbing vitamins and found out that I don't absorb zinc or folic acid, along with my malabsorption of B12. It caused a sluggish thyroid, among other problems. It might be that I have a problem with dairy. After a 3-month trip to China, my digestion improved ten-fold and I realized that I don't consume milk products there, aside from chocolate. So I cut most dairy from my diet and my digestion improved, though I'm not yet sure about the malabsorption. But I'm confused as to the root of the problem. My main symptom with dairy appears to be constipation- but I'm having severe fatigue issues as well (though that might be my battle with the thyroid.)

I suppose my main questions are:

1. Can casein cause a similar immunological reaction in the same way gluten would for Celiacs (meaning only needs to be absorbed into my bloodstream) or is it more like an intolerance and must go through my digestive tract?

2. My sublingual vitamins use lactose as a binder. Is it possible to separate lactose from casein?

I suppose I'm just confused about why Celiacs go on a casein-free diet to begin with if it doesn't cause a similar immune response. Is it merely an intolerance or is it something a little more sinister? I have several other food intolerances but they don't usually bother me unless I eat a lot of it. But I only need to lick an envelope with gluten on it to get sick.

I'm confused! Help!

From what I've read, the protein structure of casein is similar enough to gluten to cause an immune response in some people. Considering that individuals make unique antibodies and not everyone reacts as severely, not all Celiac sufferers have a problem with dairy. Unfortunately, it seems that I do. I'm new to the the world of Celiac's, but I have a degree in chemistry, a minor in bio, and I'm in graduate school for medicinal chemistry. It helps being able to understand the molecular biology aspect. Lactose is a milk sugar that can be refined and, yes, separated from the protein portion of milk. Lactose intolerance is common among Celiac patients b/c of the damage to the small intestines, where the enzyme lactase is made. Some people, like my son, regain the ability to drink milk after going gluten-free. For me, lactose free/gluten-free dair still produced gluten-like symptoms, albeit milder than those from wheat.

So, in creative lay-man's terms:

Your antibodies are skeleton keys that match to gluten. If you are unlucky, then your key may also fit casein, but maybe not as well.

Not all casein is the same either. (cow, sheep, goat, etc) I haven't tried goat's milk or cheese yet, but plan to. I rather hope it's okay, b/c I'm very fond of dairy.

I hope this helps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    2. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover...
    3. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    4. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    5. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748
    kygirlsusan
    Newest Member
    kygirlsusan
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.