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- Scott Adams replied to Kwinkle's topic in Coping with Celiac Disease7I’m so confused…
For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out. -
- knitty kitty replied to Kwinkle's topic in Coping with Celiac Disease7I’m so confused…
Hello, @Kwinkle, How are you doing? Have you tried adding a Magnesium supplement? The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1. Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating. Thiamine deficiency symptoms also include loss of appetite and fatigue... -
- Scott Adams replied to Kj44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Testing
Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet. -
- Scott Adams commented on Scott Adams's article in Chinese & Asian2
Gluten-Free Ramen: A Comforting Bowl of Japanese Tradition
Definitely, I have ramen regularly as Costco sells an excellent brown rice & buckwheat gluten-free ramen (just the noodles--they also sell a GF chicken soup stock in jars that works well to make ramen). -
- trents replied to Kj44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Testing
Have you considered the possibility that you might have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease? They share many of the same symptoms, the difference being that NCGS does not damage the lining of the small bowel. It is 10x more common than celiac disease. There is no test yet available for NCGS. Celiac disease must first be ruled out...
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By Scott Adams · Posted
For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out. -
By knitty kitty · Posted
Hello, @Kwinkle, How are you doing? Have you tried adding a Magnesium supplement? The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1. Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating. Thiamine deficiency symptoms also include loss of appetite and fatigue. My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...). I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety. Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy. If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts. For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat. Let us know how you're doing! -
By Scott Adams · Posted
Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet. -
Have you considered the possibility that you might have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease? They share many of the same symptoms, the difference being that NCGS does not damage the lining of the small bowel. It is 10x more common than celiac disease. There is no test yet available for NCGS. Celiac disease must first be ruled out. In view of your genetic profile, I would give it consideration.
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