Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"pretty Much Normal"


canutillo

Recommended Posts

canutillo Rookie

My son's pediatricians office just called with the results of his celiac panel. In the nurse's words, "His results were all pretty much normal." Huh? I asked for the actual numbers and such and was told she could not give them over the phone. I then said I'll come by tomorrow to pick up a copy. She put me on hold, came back and told me there was no need- everything looked fine.

No need for a follow up or to talk to the doctor.

That really annoys me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

You are entitled to receive a oopy of the lab report. Insist on it.

Takala Enthusiast

I would go to the office tomorrow and tell them you are not leaving until you have, in hand, a written copy of the test results. For. The. Record.

I would also tell the nurse's boss if they ever pulled that stunt again, I'd be contacting the state attorney general's office and the insurance company.

You paid for the test via your deductible and/or copay and insurance. You own the results. They must give them to you, upon request.

My current doc's office is nice, they will send me copies if I ask, and they do that.

If you think I'm being a bit pushy, you haven't read what the previous ones did to me, withholding results. I also had another doctor tell me (after waiting 6 weeks for 1st appt, to which I had brought only partial records from a few years back) he could not begin to look at me until he had my complete medical records - when I went to the front desk to start the process, I get told that THAT will take another MONTH for them to send a request to the different office. Then my insurance charges for this, in spite of the fact that they are not supposed to. Good grief. I ended up needing surgery, (went to a different doc) and the surgeon consult was like Oh, My, they blew this off ? :blink:

Delay, deny, duplicate, delay, deny, start over. What a racket.

Oh, and the blood panels are not that perfectly accurate in children (nor adults). Maybe look at an over the counter genetic test and screening to see what's going on.

kareng Grand Master

Just call tomorrow and tell the main desk you need a copy. They will probably send your call to someone who takes care of that. Tell them you need to pick up a copy asap. If they ask why, tell them you need to run them by a Celiac expert/ another doctor or the school nurse. This should work. They may ask you to give them a day. That is reasonable.

Are you in the US? If this doesn't work for some reason, pm me. Medical info law was my best subject & I supervised this in several hospitals. I doubt you will need to get upset. Start out being nice.

ravenwoodglass Mentor

'Pretty much normal' says to me it may be a low positive. I could be wrong of course but do get a hard and complete copy of those tests. When all the tests are done do a trial of the diet no matter what the results.

Takala Enthusiast

LOL. Yeah, I'm pretty ferocious on the internet to motivate people, but I don't yell much in real life, because if you are stubborn enough and polite enough AND know your rights, you can usually get what you need.

But I continue to be amazed at how these people treat your information. When you go for any tests, you have to sign releases and disclaimers that the doctor and testing facility can give the information to almost anyone or anything that requests it, including local and Federal law enforcement, courts, insurance companies, collecting agencies. They do that to increase the chance of successfully suing you if you default on the payment of fees you just guaranteed, or if there is a mistake that results in injury or a lawsuit. You sign away your rights to privacy. But then the medical offices attempt to with hold that same testing result FROM YOU, the patient, by constantly pulling stunts like this.

I see no reason why the insurance companies should know your exact test results, and then be making financial decisions on your future treatment and level of coverage, while you are kept in the dark like a fungus and fed poop !

We won't get medical costs under control until there is more patient accountability. We are trying to do a good thing here, save ourselves illness by possible diet change. We are not here for further subsidizing the heartburn medication or anti depressant industry.

shopgirl Contributor

That's like telling someone they're "pretty much pregnant."

Demand clarification and copies of those reports.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Kwinkle's topic in Coping with Celiac Disease
      7

      I’m so confused…

    2. - knitty kitty replied to Kwinkle's topic in Coping with Celiac Disease
      7

      I’m so confused…

    3. - Scott Adams replied to Kj44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Testing

    4. - Scott Adams commented on Scott Adams's article in Chinese & Asian
      2

      Gluten-Free Ramen: A Comforting Bowl of Japanese Tradition

    5. - trents replied to Kj44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,172
    • Most Online (within 30 mins)
      7,748

    Angie Helms
    Newest Member
    Angie Helms
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
    • Scott Adams
      Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet. 
    • trents
      Have you considered the possibility that you might have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease? They share many of the same symptoms, the difference being that NCGS does not damage the lining of the small bowel. It is 10x more common than celiac disease. There is no test yet available for NCGS. Celiac disease must first be ruled out. In view of your genetic profile, I would give it consideration.
    • Kj44
×
×
  • Create New...