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New To Celiac From Texas


kington

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kington Newbie

We are getting ready to go to a pedi gastric doctor. My daughter has been sick for 2 years and finially i think I am getting answers. I have been looking for a support group close to home. I haven't had any luck yet.

I am nervous about what we will find out Monday. Will it show neg, will it show positive. I am ready for the positive, but if it shows negative what will be my next step?

I am so thankful for the web sites and all the information about this one word that I just heard a month ago, "CELIAC".


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Dixiebell Contributor

Welcome to the forum kington!

Is she getting the blood tests or the biopsy or both? If the results are negative, it is advised that gluten-free be tried for several months after all of the testing is done.

larry mac Enthusiast

Texas is a big state.

best regards, lm

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    • trents
    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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