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A Need For Some Kind Of Answer To What Is Wrong

Dragonflymama

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Dragonflymama Newbie
Dragonflymama
Posted

Hi,

I have spent a lot of time over the past week reading as much about Celiac Disease as possible. A co-worker who has had it all her life suggested I talk to my doctor after having years of problems. In 2006 following the birth of my daughter I had random stomach problems and then suddenly one day had severe D and ended up in the doctors taking medication to get it under control. I was instantly put on a low residue diet which basically meant I ate nothing but chicken broth and some veggies. They tested me a few weeks after and it was negative. They had me eventualy introduce food items and dairy was one of the first and I instantly was ill. So they said that was it I was lactose Intol. The gastro problems of excess gas, bloating, D, Constipation, mucus and so forth continued and my doctor said it was IBS. After researching recently, I'm finding my canker sores, kidney stones, headaches, gas, bloating,D, stomach noise, lactose Intol, etc. and even my lack of weight gain could all be connected. I have an appointment with a gastro dr on March 14th. I'm terrified that I won't get any answers and this is controlling my life. Am I jumping to too many conclusions with connecting my symptoms to this?

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gphx Newbie
gphx
Posted

I have known I'm lactose intolerant for most of my adult life. Six months or so ago I decided, instead of minimizing dairy, to cut it out of my diet completely. Some of my symptoms were gone but most, to my surprise, remained. Like you I became curious about gluten sensitivity because it explained the remaining symptoms perfectly.

A month ago I went totally gluten free. In just a few weeks the horrible bloat of my abomen is gone. I'm no longer eating antacids by the bottle. The mental fog I've been in for so long is lifting. I feel better in a few short weeks than I have in a long time.

Remember, doctors don't own this. You don't need their permission to get better. You can cut gluten from your diet and see if you feel better. That's what I did. I have no formal diagnosis from a doctor because I'm getting better now instead of worse and that's all I care about. In the end the only one who can make the change is you.

cahill Collaborator
cahill
Posted

If you are planing on having any kind of testing for celiacs I would suggest having the testing BEFORE you go gluten free.

cahill Collaborator
cahill
Posted

Remember, doctors don't own this. You don't need their permission to get better. You can cut gluten from your diet and see if you feel better. That's what I did. I have no formal diagnosis from a doctor because I'm getting better now instead of worse and that's all I care about. In the end the only one who can make the change is you.

I agree with this

However, I consider it very important to rule out any other possible causes before deciding the only treatment is a gluten free diet

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree with this

However, I consider it very important to rule out any other possible causes before deciding the only treatment is a gluten free diet

A person should of course keep in mind that other issues could be present in addition to celiac. Some of those other issues could also be related directly to celiac though. After celiac testing is done no matter what the results a trial of the diet is in order. Eating gluten free will only effect the outcome of celiac testing and if problems continue then the person should seek out their cause. There is no reason not to try the diet after testing for celiac is finished though as it may clear problems that people don't realize are gluten related, like migraines, ulcers, skin issues, mood issues etc.

cahill Collaborator
cahill
Posted

A person should of course keep in mind that other issues could be present in addition to celiac. Some of those other issues could also be related directly to celiac though. After celiac testing is done no matter what the results a trial of the diet is in order. Eating gluten free will only effect the outcome of celiac testing and if problems continue then the person should seek out their cause. There is no reason not to try the diet after testing for celiac is finished though as it may clear problems that people don't realize are gluten related, like migraines, ulcers, skin issues, mood issues etc.

Exactly :)

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  • Posts

    • Scott Adams
      I’m so confused…

      By Scott Adams · Posted

      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
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      I’m so confused…

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      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
    • Scott Adams
      Testing

      By Scott Adams · Posted

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    • Kj44
      Testing

      By Kj44 · Posted

      Yes
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