Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dry Eyes, Too?

MEH

By MEH
in Coping with Celiac Disease

Recommended Posts

MEH Apprentice
MEH
Posted

For the first time ever today, I was able to wear contacts without wanting to rip them off of my eyeballs! So, a gluten free diet, (I understand by doing a little research), helps dry eyes, too?!

Am I going to turn into Julia Roberts tomorrow? Do the benefits ever stop?! There are things happening to my body that I didn't even think would happen. The dry eyes thing is a bonus! I hate wearing my glasses all of the time.

Question about testing:

Is there anyway for me to tell if I am a celiac vs. a sensitive? Are there certain clues--certain symptoms that seem to lean towards one vs. the other?

Should I get testing done? Are there benefits to knowing for sure, or is just feeling like a human being for two days in a row enough?

Also, does one just keep feeling better and better the longer they remain gluten free? Will I feel even better two or three months for now?

And how bad are my "ooops, I ate gluten" moments? Getting the hang of this is hard.

Thanks for your patience!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

You are going to be feeling better and better for months.

It is just that good.

Can't help you with the decision about testing.

I wouldn't dream of it. For me feeling good is knowledge enough.

As for your glutening's...they are minor setbacks.

It doesn't undo everything even if it feels really bad until the episode is over.

You are still further along than you were before you knew about gluten.

Just do your best and keep enjoying the nice surprises!

Mari Contributor
Mari
Posted

I did have a Celiac Panel of blood tests when the Dr suspected Celiac Disease. The results were confusing, the alpha gliadin antibodies were elevated but the tissue transglutaminase antibodies were not elevated. I knew that if I tried to eat gluten again I would be very ill so instead had the genetic marker test done. These tests showed that I had a high risk of developing celiac disease because I have a main Celiac gene and the other gene put me at risk for developing another gluten problem, Non-Celiac Sprue (Leaky Gut Syndrome). Now I have test results I can show a Dr and avoid having to eat gluten again for the tests. There are several online labs to order the genetic marker tests from, The 2 marker test is less expensive than the 4 marker test. Some Drs prefer to order a molecular serology test as it can give a little more information (Prometheus Lab). I had the genetic marker test done at enterolab.com, their website has lots of information.

LivesIntheSun Apprentice
LivesIntheSun
Posted

That's great news about your eyes- something similar happened to my sister. She had terrible problems with dry eyes for years and visited a host of doctors, none of whom could help. She just had to suffer with it and use eye drops and wear dark glasses. When she saw the difference going gluten-free made to she she decided to try it for herself and her eyes quickly recovered, and now (several years later) she never even mentions her eyes, and the eye drops and the shades are a thing of the past. She wrote to the eye specialist to tell him what happened but didn't receive a reply.

Gemini Experienced
Gemini
Posted

For the first time ever today, I was able to wear contacts without wanting to rip them off of my eyeballs! So, a gluten free diet, (I understand by doing a little research), helps dry eyes, too?!

Am I going to turn into Julia Roberts tomorrow? Do the benefits ever stop?! There are things happening to my body that I didn't even think would happen. The dry eyes thing is a bonus! I hate wearing my glasses all of the time.

Yes and no. If you have full blown Sjogren's Syndrome and went years without a diagnosis, then the dry eye problem most likely will not be affected by the gluten-free diet. Many people have dry eye but it's not autoimmune based, like Sjogren's. I have Sjogren's and went years before I knew why my eyes were so screwed up. Every other autoimmune problem I have, got a lot better with the gluten-free diet except the Sjogren's. There was too much damage done to my lachrymal and salivary glands for a miracle to happen.

I am happy yours has improved, though! Good for you! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,175
    • Most Online (within 30 mins)
      7,748
    Janice Emmendorfer
    Newest Member
    Janice Emmendorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      I’m so confused…

      By Scott Adams · Posted

      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      I’m so confused…

      By knitty kitty · Posted

      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
    • Scott Adams
      Testing

      By Scott Adams · Posted

      Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet. 
×
×
  • Create New...