Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Sensitivity Not Celiac

nmthommy

By nmthommy
in Coping with Celiac Disease

Recommended Posts

nmthommy Rookie
nmthommy
Posted

I'm gluten sensitive NOT Celiac. Do I need to be concerned with small amounts of gluten? Cross contamination?

What's the difference between being sensitive and having Celiac?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ElseB Contributor
ElseB
Posted

I heard a doctor speak about this issue recently. He said that people with non-Celiac gluten intolerance usually do have a threshold of tolerance, such that they can eat some gluten (unlike celiacs). BUT there's nothing to prevent these people from developing celiac in the future.

How do you know you're not celiac? Did you have just the blood test, or the biopsy too? False negatives on the blood test isn't uncommon, which is why the biopsy is needed. My understanding is that the biopsy can also show false negatives (even if the person has been eating gluten), but its quite rare.

nmthommy Rookie
nmthommy
Posted
  • Author

I had tests done at EnteroLab and it showed negative for the Celiac gene.

ravenwoodglass Mentor
ravenwoodglass
Posted

I had tests done at EnteroLab and it showed negative for the Celiac gene.

I don't carry the celiac associated genes either. So some doctors would thus call me gluten intolerant. If you think that is less serious read my signature.

nmthommy Rookie
nmthommy
Posted
  • Author

I don't carry the celiac associated genes either. So some doctors would thus call me gluten intolerant. If you think that is less serious read my signature.

Wow, you've been through a lot. I have been really sick since 1/04 after a miscarriage. Tested positive for Epstein-Barr. I have had a hard time getting well and continue to have new symptoms. I found a great doctor that could tell what my issues were even though I had tested negative with blood tests.

I am greatful for her. She is literally saving my life.

she's Alexa Parker at Parker Wellness in the Sarasta/Bradenton Florida area.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,702
    • Most Online (within 30 mins)
      7,748
    MadReg60
    Newest Member
    MadReg60
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Royal Caribbean Only, Please

      By AuntieAutoimmune · Posted

      Thanks,Scott. Yes, I had already seen those 
    • Scott Adams
      Colonoscopy with large area of inflammation

      By Scott Adams · Posted

      Unless your blood antibody levels are 10x the celiac disease positive level they usually do an endoscopy to confirm the diagnosis.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • growlinhard1
      Colonoscopy with large area of inflammation

      By growlinhard1 · Posted

      I haven't had any of this blood work and my GI doctor immediately scheduled the endoscopy with biopsy based on the large area of inflammation found during my colonoscopy and me relating all the other symptoms I'm experiencing. If the blood testing is positive do you still have to have the endoscopy with a positive biopsy to be definitively diagnosed with celiac? Seems like a waste of money and risk to do it backwards 😕 
    • Scott Adams
      glutened?

      By Scott Adams · Posted

      Many super sensitive celiacs do have issues with this, especially if they work in a bakery or area where flour may be in the air. Some even seem to have issues being in areas where bread is being baked. Here are some threads here on this:    
×
×
  • Create New...