Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

One Year Today !

cap6

Recommended Posts

cap6 Enthusiast
cap6
Posted

Today is one year since being diagnosed Celiac and it's all finally starting to fall into place and become more comfortable. And... this has been an entire week of feeling good - no bad days this week. Yeah.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

Congratulations!!

That is wonderful to hear!

I can't wait til I'm at one year too!

Hope your second year brings you double the health and healing!!

ravenwoodglass Mentor
ravenwoodglass
Posted

Happy Anniversary!!!! Glad your feeling better.

lpellegr Collaborator
lpellegr
Posted

Congratulations! You're past the hardest times, and soon all of the things that seemed so difficult about this diet will be so routine you won't even notice until someone asks you to go out to eat. I'm going on 7 years and I still keep count. Isn't it nice to feel better?

cap6 Enthusiast
cap6
Posted
  • Author

I did not believe those who told me that within a year I would be managing this disease with some sort of ease. It does get easier. It does get better. And month by month I feel better. There are times for sure when it is a few steps back but over all - gluten free is good!

Tigercat17 Enthusiast
Tigercat17
Posted

Congratulations Cap6!

That's great! I'm so glad you're feeling better! I too, didn't believe everyone when they told me I would feel better in a year or so. It seemed like it took forever for my body to heal and every morning I would wake up feeling the same. It's definitely not something that can be cured over night. Now, I feel great! I do get the occasional mild gluten reactions when I eat some "gluten free" processed products, but other then that I feel great! Gluten free for 17 months! I wish I was diagnosed with this a long time ago -it would have saved me from so many health problems! Now, I never get a sinus infection or bronchitis- I was getting them 4 times a year for the last twenty years. It used to take me a month to recover and I had so many other health problems. I think I had one cold in the last 17 months & it was gone in 5 days! It's amazing! ;)

I do feel for the people who have been misdiagnosed with other diseases and actually have undiagnosed celiac disease. I do try to spread the word to my family & friends, but a lot of people just don't want to hear it. :huh:

Happy Healing! :)

cap6 Enthusiast
cap6
Posted
  • Author

Tigercat ~ what is with the no cold thing? Everyone around me has been knocked over with colds & I haven't had one in over a year! I say hoo-ray for gluten-free. lol Now, if i could soluve the big C issue I would be a totally happy little camper. :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tigercat17 Enthusiast
Tigercat17
Posted

Tigercat ~ what is with the no cold thing? Everyone around me has been knocked over with colds & I haven't had one in over a year! I say hoo-ray for gluten-free. lol Now, if i could soluve the big C issue I would be a totally happy little camper. :rolleyes:

That's great Cap! I'm so glad you haven't gotten a cold in a whole year! That's awesome! I think it's because our bodies were so busy fighting the gluten all the time that it couldn't fight off colds and other infections. Also we weren't absorbing vitamins, nutrients and minerals as well as we are now. I know I've had to decrease my thyroid hormone dose to almost half the amount since going gluten free. So just image that my body wasn't absorbing almost half of what I was eating. :blink: That's probably true for a lot of us.

Did you try to drink more water and add more fruit to your diet for the big "C" your having? I've that problem too, but if I add more fruit and water to my diet it helps a lot. Also exercise helps, too - just walking will help. ;)

cap6 Enthusiast
cap6
Posted
  • Author

That's great Cap! I'm so glad you haven't gotten a cold in a whole year! That's awesome! I think it's because our bodies were so busy fighting the gluten all the time that it couldn't fight off colds and other infections. Also we weren't absorbing vitamins, nutrients and minerals as well as we are now. I know I've had to decrease my thyroid hormone dose to almost half the amount since going gluten free. So just image that my body wasn't absorbing almost half of what I was eating. :blink: That's probably true for a lot of us.

Did you try to drink more water and add more fruit to your diet for the big "C" your having? I've that problem too, but if I add more fruit and water to my diet it helps a lot. Also exercise helps, too - just walking will help. ;)

I drink almost a gallon of water a day. Cart my jug everywhere with me. :rolleyes: And a lot of fruit & veggies. Walking hasn't been top on my list but it about to advance!!

AngieH Newbie
AngieH
Posted

Well done on a full year living gluten free! Good on you for celebrating, we need those milestone markers to keep up moving forward. I am celebrating alongside you!

Angie.

Korwyn Explorer
Korwyn
Posted

Congratulations Cap6! That first year anniversary is awesome isn't it? You look back at all the bad days and realize that you really are getting better!

Marilyn R Community Regular
Marilyn R
Posted

Tigercat ~ what is with the no cold thing? Everyone around me has been knocked over with colds & I haven't had one in over a year! I say hoo-ray for gluten-free. lol Now, if i could soluve the big C issue I would be a totally happy little camper. :rolleyes:

I relate the to "no cold" thing too. I used to get two horrible colds a year. I haven't had one in eighteen months.

I relate to the "C" too. This is the world's best natural gluten-free intervention when you can't poop, and feel cruddy.

Heat 2 oz. of Prune Juice. Drink it, then heat about a tablespoon of honey, in water, (make a honey tea), and drink it. Hope that helps. (It usually takes 2-3 hours.)

cap6 Enthusiast
cap6
Posted
  • Author

Marilyn ~ ahh, I tried that for 2 weeks and not a single change. Blah! That stuff is nasty! I thought cold prune juice was bad... but warm??? Blaaah!! :rolleyes:

Angie ~ congrats to you too! :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Tigercat ~ what is with the no cold thing? Everyone around me has been knocked over with colds & I haven't had one in over a year! I say hoo-ray for gluten-free. lol Now, if i could soluve the big C issue I would be a totally happy little camper. :rolleyes:

Are you consuming soy products? I ask because soy does that to me. It binds me up for days with gas and stomach pain and 'relief' is not pleasent. If you do consume soy you might try eliminating it and see if it helps. Also are you having pain, bloating etc with the C? If not and the C means you just go like every other day that could be the norm for your body.

cap6 Enthusiast
cap6
Posted
  • Author

Are you consuming soy products? I ask because soy does that to me. It binds me up for days with gas and stomach pain and 'relief' is not pleasent. If you do consume soy you might try eliminating it and see if it helps. Also are you having pain, bloating etc with the C? If not and the C means you just go like every other day that could be the norm for your body.

cap6 Enthusiast
cap6
Posted
  • Author

goofed on the last post...

Ravenwood - No soy in the diet. you are the one (thank you!!!) who told me that Burt's Bees has soy and that is what was probably what was making my lips break out. (it was!) I cut out all soy as figured if it made my lips bad it could be hurting something else.

As for the regular thing - well, we're talking up to 3 or 4 days & by then I am in misery. I found a tea, Smooth Move (what a name lol ) that helps but the dr isn't real happy about me taking it regular as it is a laxative. sigh!!!

ravenwoodglass Mentor
ravenwoodglass
Posted

goofed on the last post...

Ravenwood - No soy in the diet. you are the one (thank you!!!) who told me that Burt's Bees has soy and that is what was probably what was making my lips break out. (it was!) I cut out all soy as figured if it made my lips bad it could be hurting something else.

As for the regular thing - well, we're talking up to 3 or 4 days & by then I am in misery. I found a tea, Smooth Move (what a name lol ) that helps but the dr isn't real happy about me taking it regular as it is a laxative. sigh!!!

As long as you are watching for any bad side effects and aware of possible contraindications IMHO it isn't going to do you any harm. It is in many script or OTC drugs for constipation. Here is some info on it from the NIH along with a list of script and OTC drugs that have senna in it. Do you like sweet potatoes or yams? If you do you could try some baked or boiled every day or two and see if that helps. Oriental medicine uses them as a bowel regualtor as they contain both soluable and insoluable fiber.

Open Original Shared Link

cap6 Enthusiast
cap6
Posted
  • Author

Thanks - at this point I'll try anything. If I could drink warm prune juice (blaah!)then you know I'll try anything!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,825
    • Most Online (within 30 mins)
      7,748
    HTamagni
    Newest Member
    HTamagni
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Guidance on next steps after the lab tests

      By trents · Posted

      The only vegetable sources of B12 are some fermented bean products using a certain microbiotic culture. It is next to impossible to get adequate B12 from vegetable sources without supplementation. Same with D3. Some mushrooms can make D3 when exposed to UV light. Are you vegetarian or vegan? Do you do dairy and eggs or no animal products at all? Low B12 and D3 could definitely cause or contribute to many of the symptoms you have been experiencing but would not cause celiac disease. It is more likely the other way around, especially if you are a vegetarian eating no animal products. Many of your symptoms seem neurological in nature. The B vitamin complex and D3 is vital to neurological health. https://pmc.ncbi.nlm.nih.gov/articles/PMC9820561/
    • trents
      Grain fed cow milk vs 100% Grass fed cow milk

      By trents · Posted

      Russ, can you link an article supporting your assertion that small amounts of gliadin are detectable in human breast milk? Not doubting you but it would be nice to have the whole text for reference.
    • trents
      Years of testing - no real answers

      By trents · Posted

      See attachment which is excerpted from this article:   
    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      Got it. Thanks Scott. I'll set up an appointment with a GI after the holidays and get all the celiac disease screening done. Thanks to this amazing forum and to all who have answered my question, I now know what my next steps are.
    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      Aah it sucks that there's no definitive way to confirm NCGS or celiac. I've found a GI clinic that is covered by my insurance and I'll contact them after the holidays to setup an appointment. I hope to get some sort of clarity with further tests. 
×
×
  • Create New...