Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Spaced Out

ndw3363

By ndw3363
in Coping with Celiac Disease

Recommended Posts

ndw3363 Contributor
ndw3363
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


love2travel Mentor
love2travel
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

Me, too! I've been strictly gluten-free about 18 or so days and am not myself. I felt much better on gluten as I did not feel ill at all and now I do. Not bad, just yucky. Plus my short-term memory is atrocious - I struggle frequently to find a word when I am speaking. Sooooo unlike me. Hope this ends soon as it is sort of disconcerting!

IrishHeart Veteran
IrishHeart
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

Boy, I know that spacey feeling and it is very scary and depressing. I had it for 2 years and am happy to say it is disappearing!!. (I used to say to my husband that I felt like my brain was dipped in vaseline :unsure:) I had a really hard time with all that. Thought I was going mad sometimes.

It took me about 3-4 weeks to start to see that sensation diminish and I am greatly relieved and encouraged! I am not as sharp as I once was YET, but I hope that returns in time. Everyone on here says it will and to be patient.

As for the feeling worse after going gluten-free---I did too. It's withdrawal and it passes, too. Drink a lot of water -- hydration is essential. Try to exercise, take walks and clear your head. I couldn't really walk I was so bad before, so I just kept going outside and putting my face up to the sun. Stick to pure, whole foods. Try to relax. Soak in a tub. Be good to yourself. Your body is healing.

... Everyone is different and symptoms go when they go...I know, it stinks.

I never thought I'd be this clear again--I was fumbling for words and my short term memory suffered greatly and I was terrified I would never read and comprehend anything ever again, but I do now!! Hang in there!

pondy Contributor
pondy
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

I don't feel like myself either! I also get that "spaced out" feeling - plus zero motivation, memory lapses, extreme fatigue & anxiety.

I saw my GP today - when I told her these symptoms, she said that they are likely due to very poor absorption of essential nutrients. Doc also said that it can take 6 month to 2 years or so to heal.

My blood test confirmed my Celiac just about 1 week ago. I haven't been gluten free for long & they tell me not to expect instant results. I'm trying hard to be patient with my body & do it no further harm.

Just a note on the body lotions, etc... - I should change those too? I had no idea! Can anyone recommend some safe brands?

I know there is hope and that we will heal, and I agree that this forum is a great place to find support! I thank all here as well!

IrishHeart Veteran
IrishHeart
Posted

I don't feel like myself either! I also get that "spaced out" feeling - plus zero motivation, memory lapses, extreme fatigue & anxiety.

I saw my GP today - when I told her these symptoms, she said that they are likely due to very poor absorption of essential nutrients. Doc also said that it can take 6 month to 2 years or so to heal.

My blood test confirmed my Celiac just about 1 week ago. I haven't been gluten free for long & they tell me not to expect instant results. I'm trying hard to be patient with my body & do it no further harm.

Just a note on the body lotions, etc... - I should change those too? I had no idea! Can anyone recommend some safe brands?

I know there is hope and that we will heal, and I agree that this forum is a great place to find support! I thank all here as well!

Hi Pondy--I think I talked with you on another post!!

I use Savonnerie gluten free products. Check the Internet. But that's because I have some problems with soy (often in beauty products) and I cannot seem to figure out what I am reacting to (I have burning, red skin and itching).

AVOID shampoo and hair spray with HYDROLYZED WHEAT PROTEIN.

There are some threads on here that have "safe"beauty products listed. Mostly I find, some people think you have to change all the beauty products, others don't. (I do because I am sensitive to them.)

Hang in there. It really does get better!! :)

healinginprogress Enthusiast
healinginprogress
Posted

Pretty glad to read that others are feeling like this...the foggy-head, memory loss...yeah, just all around not feeling like myself! Really can't wait for things to get better.

With regards to shampoo... I guess I should really change mine. The thing is, I JUST dyed my hair pretty much platinum blonde, so I'm using a purple shampoo so it doesn't get brassy...and I have a pretty strong feeling that nobody makes a gluten-free purple shampoo lol. But maybe if I used gluten-free most of the week and then the purple just once a week and be very careful?

IrishHeart Veteran
IrishHeart
Posted

Pretty glad to read that others are feeling like this...the foggy-head, memory loss...yeah, just all around not feeling like myself! Really can't wait for things to get better.

With regards to shampoo... I guess I should really change mine. The thing is, I JUST dyed my hair pretty much platinum blonde, so I'm using a purple shampoo so it doesn't get brassy...and I have a pretty strong feeling that nobody makes a gluten-free purple shampoo lol. But maybe if I used gluten-free most of the week and then the purple just once a week and be very careful?

um...I'm not sure. I know some people use the Garnier line?

I had to stop coloring my hair because my hair fell out and my scalp was peeling and had sores on it...this nasty disease! anyway, I am happy you have good hair!!

I pray mine returns and I can look pretty once more... :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


healinginprogress Enthusiast
healinginprogress
Posted

um...I'm not sure. I know some people use the Garnier line?

I had to stop coloring my hair because my hair fell out and my scalp was peeling and had sores on it...this nasty disease! anyway, I am happy you have good hair!!

I pray mine returns and I can look pretty once more... :)

Wow, that's terrible, I hope it does, too! I had only been gluten-free for about 4 days when I got it dyed and it was blindingly painful, my scalp was soooooo sensitive and I ended up with scabs and dry scalp...I hear that can happen with bleach sometimes...but I can put up with a lot of pain and it was pretty much unbearable. If I don't start feeling better on the very limitied diet that I'm on now then I imagine I won't be dying again and will be changing shampoos and scrubbing my house from top to bottom I guess :P

Not only is this disease nasty, painful, and a lot of time just plain gross...it is also a LOT of work!!! :blink:

IrishHeart Veteran
IrishHeart
Posted

Wow, that's terrible, I hope it does, too! I had only been gluten-free for about 4 days when I got it dyed and it was blindingly painful, my scalp was soooooo sensitive and I ended up with scabs and dry scalp...I hear that can happen with bleach sometimes...but I can put up with a lot of pain and it was pretty much unbearable. If I don't start feeling better on the very limitied diet that I'm on now then I imagine I won't be dying again and will be changing shampoos and scrubbing my house from top to bottom I guess :P

Not only is this disease nasty, painful, and a lot of time just plain gross...it is also a LOT of work!!! :blink:

That's what happened to me. I have been coloring my hair for years, no problems, but during the last year, my scalp went crazy. Sores, beet red, itchy, peeling...gosh, I hope yours "behaves" for you. the real bummer is...it grew in gray/white :blink: YUCK and it's so thin right now from malabsorption...I'm not happy about it at all.

I hear you. I just had to eliminate MORE foods. Pretty soon, I'll be down to lettuce and water. :angry:

This disease sucks.

I try to focus on how much better I'm going to feel in the coming months after years in agony... :unsure:

Anything will be better than the way I was! :)

Fire Fairy Enthusiast
Fire Fairy
Posted

I had that spaced out feeling for years. Thankfully mine is gone now that I've been gluten free. I hope yours passes soon.

That's what happened to me. I have been coloring my hair for years, no problems, but during the last year, my scalp went crazy. Sores, beet red, itchy, peeling...gosh, I hope yours "behaves" for you. the real bummer is...it grew in gray/white :blink: YUCK and it's so thin right now from malabsorption...I'm not happy about it at all.

I hear you. I just had to eliminate MORE foods. Pretty soon, I'll be down to lettuce and water. :angry:

This disease sucks.

I try to focus on how much better I'm going to feel in the coming months after years in agony... :unsure:

Anything will be better than the way I was! :)

One of my friends thought a picture of me with my new natural hair color was a photo of my mom (she's in her 70's I'm in my 30's). Another friend said, "When are you going to dye your hair again, you look old?" Oh well at least now I don't feel old! :)

IrishHeart Veteran
IrishHeart
Posted

I had that spaced out feeling for years. Thankfully mine is gone now that I've been gluten free. I hope yours passes soon.

One of my friends thought a picture of me with my new natural hair color was a photo of my mom (she's in her 70's I'm in my 30's). Another friend said, "When are you going to dye your hair again, you look old?" Oh well at least now I don't feel old! :)

The spacey thing is gradually subsiding for me...thanks for telling me it has gone away you-- :) it's encouraging! As for the hair, I can learn to accept the grey/white thing IF it would just grow in some more!!...sigh...

and yes, I am all for not feeling like I'm older than my very active Mom (she's 84 and still goes to the gym 3X a week, cardio kick boxes, uses a stair master & lifts weights!!.. ):blink: ..I'm so weak I can't lift a bag of potatoes and climbing stairs is exhausting....oh well, time will heal me!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,219
    • Most Online (within 30 mins)
      7,748
    LookingForAnswers101
    Newest Member
    LookingForAnswers101
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Abscesses on legs

      By plumbago · Posted

      Hi there, Can you describe them a little more? Do they ooze? Do they itch? Do they spread like a rash or appear like a "boil?" Has a doctor / dermatologist looked at them? Are they big? Do they seem like they could get infected if not careful? Do they disappear? (You say you get them "2/3" months, assuming you meant "2 to 3" - so have the ones that came 2-3 months beforehand disappeared?) Have you noticed what triggers them? Etc. Welcome!
    • LookingForAnswers101
      Abscesses on legs

      By LookingForAnswers101 · Posted

      Hello, gluten free community! Thank you so much for welcoming me into your space. I'd like to ask if anyone has had a similar experience. 5 years ago, when I was 26, I started getting abscesses on my lower buttcheek every 2/3 months. There have been a lot of them in the past few years! Now for the last year or so, I keep getting absesses on the back of my thighs. I read online that gluten sensitivity can cause skin issues, and I read that it can cause perianal abscesses, but I have not seen anything about abscesses in other locations--has anyone else had this experience? Could this be gluten-related? Much love
    • trents
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By trents · Posted

      Scott, I know full well that celiac disease is an autoimmune disorder and gluten sensitivity is not. And I agree that there is inconsistency in the use of the terms. But my contention is that "gluten intolerance" should not be used of NCGS since "gluten sensitivity" is actually found in the gluten disorder known as Non Celiac Gluten Sensitivity and, therefore, "gluten intolerance" should be reserved as a common/nonmedical equivalent for celiac disease. It also seems to me that "intolerance" implies something more severe than does "sensitive". And it just seems to me that, though there is still a lot of inconsistency in the use of these terms, there is a movement toward using "gluten intolerant" to refer to celiac disease rather than NCGS. But that is just my opinion and perhaps, to be honest, a bit of a personal crusade. Actually, we would all be better off if we quit using the those informal terms "intolerance" and "sensitivity" and just speak of celiac disease and NCGS.
    • Jason Dyer
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By Jason Dyer · Posted

      Wow. I mean, I REALLY don't want to give up beer, but I NEVER cheat. I get caught (glutenized in my vernacular), but I never cheat. I didn't even know that was a thing...
    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      I wonder why they put dextrose in it?
×
×
  • Create New...