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Recent Activity
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- trents commented on Jefferson Adams's article in Gluten-Free Foods & Beverages22Is Ka'Chava Gluten-Free?
I contacted the company and they explained that the barley ingredient is taken from barley sprouts, not the mature grain head seeds. The sprouts do not contain gluten. Gluten production comes at a later stage in the plant's development. This is science. Some of you who are reacting to this product may be reacting to other ingredients and not gluten or...- gluten-free
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- Dulcita replied to Nantzie's topic in Food Intolerance & Leaky Gut45Tapioca Intolerance?
Celiac, and sensitive to latex, kiwi, avocado, bananas and tapioca. After having a reaction to another Amy’s product (canned chili) which is labeled gluten-free and has no listed tapioca ingredients, I have realized that for those of us who are sensitive to tapioca, it may be even worse than I thought. Not sure if I’ve got this right, but I do know that com... -
- Carolewez commented on Jefferson Adams's article in Gluten-Free Foods & Beverages22Is Ka'Chava Gluten-Free?
I found this comment section somewhat toxic by a few of the folks. My family has been consuming Ka’chava for the last two years. I am the only one with celiac in our house. I would enjoy a smoothie twice a week, only because every time it would rip apart my guts. I figured it was due to some of the greens, etc in the blend. As various products/supplements w...- gluten-free
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- Katya773 posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Wholefoods 365 Organic Wheatgrass Powder
Hi Everyone, I recently purchased this wheatgrass not realizing that it wasn’t gluten free. I had two servings before I got really sick. Abdominal cramps , diarrhea and horrible nausea. My daughter read the label and told me it wasn’t labeled gluten free. I thought this was safe because supposedly it’s healthy. I called WholeFoods and they told ... -
- emily 1 replied to emily 1's topic in Coping with Celiac Disease8Black Pepper Reactions
Yes, unfortunately I was diagnosed about 15 years ago. Some of us I guess the gut never heals and from what I've learned you can actually have a setback which is probably the stage I am at where I actually have become more sensitive to more items.
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Celiac, and sensitive to latex, kiwi, avocado, bananas and tapioca. After having a reaction to another Amy’s product (canned chili) which is labeled gluten-free and has no listed tapioca ingredients, I have realized that for those of us who are sensitive to tapioca, it may be even worse than I thought. Not sure if I’ve got this right, but I do know that companies that focus on gluten-free foods use a lot of tapioca. If a certain product doesn’t have any tapioca ingredients, they see no reason to list tapioca or its relatives in the “known allergens” or the “produced in a facility that also uses …..” statement — because it hasn’t been designated a known allergen. They probably don’t even feel it necessary to apply the kind of Best Practices protocols (extra cleaning) to a production line that may have used tapioca in a previous product. So we may be ingesting tapioca when we are eating something, seemingly tapioca free, produced in a gluten-free dedicated facility. Really discouraging. -
Hi Everyone, I recently purchased this wheatgrass not realizing that it wasn’t gluten free. I had two servings before I got really sick. Abdominal cramps , diarrhea and horrible nausea. My daughter read the label and told me it wasn’t labeled gluten free. I thought this was safe because supposedly it’s healthy. I called WholeFoods and they told me that they can find out more about the product and email me when it was picked and harvested. I was diagnosed back in 2019 and I really should know better! Anyone else had a reaction to wheatgrass powder?
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Yes, unfortunately I was diagnosed about 15 years ago. Some of us I guess the gut never heals and from what I've learned you can actually have a setback which is probably the stage I am at where I actually have become more sensitive to more items.
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Hi Emily! I was just diagnosed a year ago and could not touch nuts, corn (or anything with corn-based ingredients), lactose, or black pepper in the first 8 or so months. Otherwise I had a lot of abdominal discomfort, dizziness/vertigo (especially with corn and pepper) and inflammation throughout the body. I was pretty much eating plain cooked veggies and chicken for the first few months because they were safe and reliable. Over time, I have slowly started to tolerate some of the no-no foods, but my system is still sensitive to the pepper and has a limit to corn/lactose before symptoms occur. When you’re first diagnosed, you will likely be sensitive to a lot of other foods because your gut is healing from the damage and your body needs to reset. I find that keeping a food diary and only slowly introducing other foods back into your diet over time is helpful. It is frustrating to feel so limited, but give it some time and patience. It can take the gut years to fully heal in many cases.
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Hi there, I am 30 and was diagnosed with celiac almost a year ago after a series of severe “unexplained” abdominal episodes. Everything is improving and I am feeling so much better overall except my cycle is worse. Has anyone else had a similar experience? I got my period as a pre-teen and my cycles have been regular for as long as I can remember: every 21 days, lasting 5 days. My periods were heavy and I always had severe cramping at the start that subsided after the first two days. I went gluten-free immediately when I was diagnosed in February. At first, my cycles were the same but around July, I started noticing very crazy symptoms around that time of the month: chills all over the body, severe headaches, some hot flashes, dry mouth and then cramps starting a few days earlier than usual. My cycles also started happening later and later. This time around, I’m on Day 35 and no period so far, but still cramping/abdominal pain/nausea on and off for the past week. It has been feeling like it’s about to happen any minute but nothing. I even get the pelvic contractions/pains but nothing after. I cannot sleep from all the hormonal fluctuations and chills. I can confirm I am not pregnant. I’ve seen the endocrinologist, OBGYN, primary, and multiple gastro doctors throughout the year. No IBD ( but possible IBS), thyroid panel normal, thyroid ultrasound normal, negative for Hashimoto’s. I had a full vitamin panel and all levels normal (no anemia or vitamin B deficiency). After some testing, the gyn thinks PCOS is highly unlikely and that my body is “still adjusting” to going gluten-free. I’ve been strict gluten-free for nearly a year though. All of my regular labs are normal and my antibodies are on a downward trend. I am really confused because more of my research points to the gluten-free diet resulting in better cycles rather than the opposite. While my cycles are not as heavy, they’re more unpredictable and uncomfortable with all these new symptoms.
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