Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me, Please


Googles

Recommended Posts

Googles Community Regular

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.

I'm so sorry :(

I don't typically throw up as a result of a glutening, but the diarrhea sometimes will persist. I take Immodium and that stops it completely for a day or so and acts to "reset" everything (for lack of a better word).

Maybe the Pepto or something else for the vomiting would work similarly?

Jestgar Rising Star

Maybe you're actually sick?

Googles Community Regular

I have considered being sick, but the rest of me feels fine. It is really just my GI track that is having problems. I would make an appointment w/ my doctor, but I worry that they would just say that my guess as to what is wrong is as good as theirs.

ravenwoodglass Mentor

I have considered being sick, but the rest of me feels fine. It is really just my GI track that is having problems. I would make an appointment w/ my doctor, but I worry that they would just say that my guess as to what is wrong is as good as theirs.

I would make an appointment with your doctor. Unless you are being reglutened somehow the D should IMHO be relieved by now. You may instead have food poisoning which can cause just D without you having any 'sick' feelings. You want to rule that out. If you have to take a test take some immodium or call your school or professor and see if the test can be taken another day. If you still have D after taking the immodium then you really should get stool testing done ASAP. I had salmonella once and the immodium would only relieve the D for about an hour or two and then it would return. If you do have a case of food poisoning you may need an antibiotic to clear it up.

Googles Community Regular

I'll call the doctor tomorrow and see when I can get in. I hate being sick. :( The pepto-bismal didn't help, but the imodium did.

ravenwoodglass Mentor

I'll call the doctor tomorrow and see when I can get in. I hate being sick. :( The pepto-bismal didn't help, but the imodium did.

If you wake up today and the D has resolved then things should be okay but if you still have D call the doctor and tell them on the phone that you have had D for an extensive period of time and want to rule out food poisoning. They should be able to let you pick up what you need to have for stool testing today and drop it off at the lab. Then if you have to wait a week or so for your appointment the results will be there when you go. If the results are positive they will usually call you and have you go right in for an antibiotic script.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marz Enthusiast

Shame man, that's terrible :(

It could be illness/food poisoning, if it's been a week please get to the doctor ASAP!

Throwing up in the morning - first thing I thought of was morning sickness, but I'm sure you'd know if that was a possibility :) Don't get offended - my doctor tested me twice when I was suffering from nausea before going gluten-free, even though I told him I was pretty safe ;)

Other possibility is you're taking a medication for the illness, that's not gluten-free. Double check all your medication.

Anything new you're eating? Or something you've started eating/drinking because of the d/vomiting?

Symptoms in addition to vomiting/d? Extreme pain/tenderness/burning feeling in lower right area of abdomen (if you're looking down at your stomach), with fever would indicate possible appendicitis, get you to the doctor very quickly. Stiff neck and bad headache? Also an indication to go to the doc quickly.

Hope you feel better soon!!

Googles Community Regular

Thanks everyone.

I went in to the doctor and they said that it is a stomach virus that is going around and should last 7-10 days. They said since I've had it for a while I should likely be close to the end. I'm slowly starting to feel better. They did tell me that because it was a stomach virus the imodium was the worst thing I could have taken.

I knew they were going to ask me if there was a possibility I am pregnant, but no, not any. No offense taken.

I hate going to the doctor so thanks for convincing me to go.

catsmeow Contributor

Thanks for posting this. It helped me tonight.

I'm so glad your starting to get better. All this crud going around is so miserable!

When I get glutened, I get sinus congestion, migraines and hives (wheat allergy).

Right now, I have had sinus/cold symptoms and a migraine going on for several days.....so for several days I've been looking for what glutened me, but since I read this, I'm thinking I have a darn cold!!! My daughter has one, and her symptoms match mine, I just asked her. I am sure I have not eaten gluten.....so, I think I need to relax and start treating it like a cold. I also have body aches and no joint pain. Being glutened usually gives me joint pain for days.

Thanks again for posting this....I was going crazy.....it's so hard to differentiate between a cold and a glutening....

annegirl Explorer

Thanks for posting this. It helped me tonight.

......

Thanks again for posting this....I was going crazy.....it's so hard to differentiate between a cold and a glutening....

Made me feel better too! I've been going crazy all day trying to figure out what gluten I ate. Even went back to the usually safe Mexican restaurant I ate at last night and made them tell me the ingredients in everything I ate. No gluten. Just too much week and a little cold. >rolls eyes<

It's hard not to be psycho and always think every twinge is gluten for me!

OP - Feel better soon! That sounds like one cruddy virus 7-10 days Wow!

catsmeow Contributor

Made me feel better too! I've been going crazy all day trying to figure out what gluten I ate. Even went back to the usually safe Mexican restaurant I ate at last night and made them tell me the ingredients in everything I ate. No gluten. Just too much week and a little cold. >rolls eyes<

It's hard not to be psycho and always think every twinge is gluten for me!

OP - Feel better soon! That sounds like one cruddy virus 7-10 days Wow!

Psycho! Thats EXACTLY how I've been feeling! I would have gone to the restaurant and done the same thing! LOL!

Your so right when you say that it's hard not to think every little twinge is gluten/wheat.

It feels good to relax.

WitchyWoman Rookie

Hi~~~~~

I am so sorry you are not feeling well...me too :( My Dr put me on Lomotil which is a stronger prescription dose of Imodium for the D and Phenergran pills for the nausea. They really help. You may want to request RX for these meds.

Hope you feel better soon!!

sallyb Newbie

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.

I'm new to gluten free diet, and by that i mean this week i was diagnosed with celiac disease. There is a medication called Lomotil. I take the generic version which is called diphenoxylate-atropine. You might want to ask your Dr. about it. It stops diarrhea and i would not have been able to leave the house without it. I am no expert, but it has helped me with my digestive issues thus far. I have not thrown up becuase of the Celiac Disease, but I am just starting to be able to not wear diapers when i leave the house. Trust me as far as the bathroom issues go I know exactly what you're feeling. I hope this helps.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,836
    • Most Online (within 30 mins)
      7,748

    Art Glassman
    Newest Member
    Art Glassman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @ABP2025, Here's some studies and articles that will help you learn more about thiamin and all... I will write more later. It's possible that your antibiotic for giardiasis has caused thiamine deficiency.   https://hormonesmatter.com/metronidazole-toxicity-thiamine-deficiency-wernickes-encephalopathy/ And... https://hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ and... Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/      
    • DayaInTheSun
      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
×
×
  • Create New...