Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination?


heather Goble

Recommended Posts

heather Goble Rookie

I recently stopped eating gluten. I have dealt with annoying symptoms all my life that I just brushed off as just annoying stuff that happens. It wasn't until I was finally completely frustrated by them that I looked into what may be causing them. Extreme fatigue (from as far back as I can remember), horrible memory and lack of focus, bad coordination, stomach aches, gas, bloating, small weird things like tingling in my arms, numb fingers and toes and those are the ones I can remember for now. Anyway, upon looking all of these up I kept coming to the same conclusion- that they are all symptoms of gluten intolerance. So I ran all of them by my doctor and he did a basic blood work. I asked him to add a celiac test too, to which he replied, well you most likely don't have that. The blood work all came back fine, leaving me frustrated. A year passed and I am even more tired of being tired all the time, tired of the constant headaches and other symptoms. I found this forum and was surprised at the amount of people who test negative but still have legitimate gluten intolerances, so I decided to eliminate gluten. That was a month ago.

The first week was great. No headaches, no falling asleep on the couch after dinner, or nodding off after lunch, no more tingling in my arms or numb toes. Then I had a small piece of cake, which led to itching all over and shortness of breath. The following week I ate out avoiding obvious foods, but knowing there was most likely cross contamination- miserable with migraine headache. Drank a couple of vodka and tonics the next night (since I read that vodka was ok) ended up puking my brains out the next day, nauseous all day and arm tingling (didn't drink enough to have a hangover as this is not an uncommon drink and they were spaced out over hours). Turns out Grey Goose doesn't claim to be gluten free.... I work at an elementary school and we are doing standardized testing and offer the students those red and white round mints while they are testing, didn't really think about it and popped one in my mouth. Within 30 minutes I was itching all over and and had diarrhea. No one else in my house is gluten free which probably makes it hard to avoid cc. I am guessing this is what is happening? It seems like every reaction I have is worse than the one before.... I am getting so frustrated! I haven't been back to the doctor since going gluten free, but am considering contacting him about further testing or advice. Any advice would be greatly appreciated.

As for last years test results, this is what came back in the report. Am I wrong in thinking that this isn't the full test for celiac?

deamidated Gliadin Abs, IgA, which was 2.2

deamidated Gliadin Abs, IgG, which was 0.7

Thanks for any advice


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



iamsarar Rookie

I was having a problem with CC in my kitchen. I finally made one cupboard for my husband and one for me did they same thing with our freezers one has gluten, one is gluten free. counters too, He uses one, I use the other. Any food I prepare for us is always gluten free. We had 4 friends over for dinner, 6 people total and I fixed a gluten free meal for everyone including dessert. Everyone loved it and were surprised it was gluten free....and vegan! Cook for your health. others will like it too. Also don't forget to check your pills, lipstick/gloss, shampoo and so on. I found gluten in my makeup and lip gloss as well as my shampoo and some of my vitamins. It was also in my generic nasal spray, the very thing I was taking for congestion was making it worse!!

I decided anything that was by my month (makeup) or on my hands (hand soap and lotion) had to be gluten free. After changing my pills, makeup, lip gloss, lip balm and shampoo I feel so much better. Look at everything in your life from head to toe!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,651
    • Most Online (within 30 mins)
      7,748

    Joanne Jordan
    Newest Member
    Joanne Jordan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • misslemon
      Hi, I'm hoping to get some advice on how to handle Mass as a new Catholic.  I'm looking to take the Mass for the first time in March.  I've been told that the church has a "low gluten" option that is 0.01% gluten.  Is this safe, especially to do every week?   I also read that taking the wine instead could be more of a problem if it gets contaminated with regular crumbs.   I found this information online:  "The Benedictine Sisters of Perpetual Adoration in Clyde, Missouri, have developed a Communion host that is extremely low in gluten. The host is made from gelatinized wheat starch. The Sisters report the hosts test to a level of 0.01% gluten. At that level, the lowest that could be tested, no gluten was detected. This means that there is less than 0.01% gluten in one of these hosts. The Secretariat for the Liturgy of the United States Conference of Catholic Bishops has stated that these hosts meet the requirements of the Code of Canon Law (924 §2) and may be validly used at the celebration of the Eucharist with permission of the person's pastor. The Catholic with celiac disease can now fully participate in Holy Communion with the whole parish family. Catholic celiacs may choose to receive consecrated wine at a regular communion station if their parish offers communion under both species. There is greater risk for contamination using this option. The fraction rite may allow small, yet dangerous crumbs to be in the cup." Thank you for any guidance!
    • Jenn D
      My son was diagnosed with Celiac Disease is April 2023. His ttg antibody was over 100 at the time of diagnosis. Now it is at 3 (which is considered negative), but his endomysium antibody iga is still coming up positive. There is no specific number just positive or negative so I'm not sure if he's getting better or not. I'm getting nervous that something else is going on and I was just looking for some advice or an understanding what this "postive" actually means. He gets tested every 6 months. Thank you so much for any responses😊 Attached is a picture of his bloodwork from August 2024
    • trents
      @JenFur, if this is microwave popcorn you are using, check for added ingredients that could be causing a reaction such as flavorings which might be hidden sources of gluten.
    • trents
      Welcome to the forum, @JenFur! You must be relatively new to the celiac journey. I wish it were as simple as just having to cut out gluten and all our gut issues magically disappear. It is very common for those with celiac disease to develop intolerance/sensitivity to other foods. Often it is because the protein structure of some other foods resembles that of gluten. Sometimes it is because damage the damage done to the gut lining by celiac disease wipes out cells that produce enzymes needed to break down those foods. Sometimes it is because the "leaky gut syndrome" associated with celiac disease causes the immune system to incorrectly identify other food proteins as threats or invaders. The two most common non-gluten foods that cause trouble for a lot of celiacs are dairy and oats. But soy, eggs and corn are also on that list. Sometimes these non-gluten food intolerances disappear with time and the healing of the villous lining of the small bowel.
    • JenFur
      I love popcorn but it doesn't love me.  Right now my gut hurts and I am bloated and passing gas.  Am I just super sensitive. I thought popcorn was gluten free 🤔 
×
×
  • Create New...