Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Till I Heal?


chili

Recommended Posts

chili Apprentice

I was diagnosed 2 months ago. The majority of my symptoms have gone away. I still do get the occasional symptom. tingling in the hands and feet, or even heart palpitations. even bowl movements are still not normal..alot better than before? how long does it take for everything to back to normal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

They say children heal the fastest and adults can take 6 months to 2 years to fully heal.

It takes a while.

Brigit Apprentice

Hi,

it's wonderful that you've started seeing improvement. I've heard that you will start seeing results between 2 - 4 months, but like mentioned above it's going to take a lot longer for your body to build up it's vitamin and mineral stores again and for your body to heal and work effectively.

It'll be worth it!

All the best!

chili Apprentice

Hi,

it's wonderful that you've started seeing improvement. I've heard that you will start seeing results between 2 - 4 months, but like mentioned above it's going to take a lot longer for your body to build up it's vitamin and mineral stores again and for your body to heal and work effectively.

It'll be worth it!

All the best!

Thank you very much!! sometimes I feel that gluten is creeping into my diet!! I try very hard to be gluten free, although I have small children, and I handle bread on a regular basis. I try to sanitize but sometimes I feel it is not enough,

gailc Newbie

I hope you get resultsd quickly.

I guess I am lucky, or maybe it is not celiac disease. I had experienced 6 different kinds of pains in my intestines and nausea. They went away immediately. I was shocked. I expected maybe two weeks or 2-3 years as I read somewhere for complete healing.

I had food sensitivities before, beef and eggs, and after the waiting period of a week or so the only change was the 1 1/2 years of diahreah quit cold turkey. I noticed no other changes.

Eliminating wheat has changed a lot of things, dry eye-very painful is almost gone and nose stopped running. Also rice does not bother me now, it was a problem before.

I hope this is not celiac, would be nice to have a piece of wedding cake or something good in a restaurant.

gailc

gfreecarboholic Rookie

First, let me start by saying I am so thrilled to have found this forum. I am about as newbie as they come. I started eating gluten-free on Tuesday so I've only been on the diet a few days. I already feel better but yesterday I started having symptoms again. My question is, is this normal or have I glutened myself? I felt so great for the first couple of days. It was really frustrating to suddenly have a pounding headache and stomach pains again. Should I not have these symptoms anymore?

mushroom Proficient

First, let me start by saying I am so thrilled to have found this forum. I am about as newbie as they come. I started eating gluten-free on Tuesday so I've only been on the diet a few days. I already feel better but yesterday I started having symptoms again. My question is, is this normal or have I glutened myself? I felt so great for the first couple of days. It was really frustrating to suddenly have a pounding headache and stomach pains again. Should I not have these symptoms anymore?

At this point it is hard to know if you have been glutened. It IS normal to have ups and downs, our good days and bad days, when we first start the diet. Or you could have gotten some cross-contamination somewhere, which is easy to do - especially if you haven't had much experience at avoiding gluten :) Hope you are feeling better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chili Apprentice

Maybe you got some cross contamination...I am feeling pretty crappy for the last couple of days, all my symptoms are back..I got sick from taking a multivitamin that claimed it was gluten free..I have been paying for it...when I get glutened it takes me a good week to recover. Is that normal? does anyone else take that long...I feel like I have no energy to move. I have 3 small children and find that I am dragging my butt around... I just want to feel better!!

gfreecarboholic Rookie

Thanks Mushroom and Chili! I appreciate the words of wisdom. I am starting to wonder if my medication is making me sick. I've been on Synthroid for about 7 years now and I just ran across a website last night that said it could contain gluten. I tend to feel worse at night which leads me to believe that it may be something I am taking regularly (I take Synthroid every morning). I am going to talk to my doctor about switching to the generic that is gluten-free.

Thanks again!

TSA Rookie

Thanks Mushroom and Chili! I appreciate the words of wisdom. I am starting to wonder if my medication is making me sick. I've been on Synthroid for about 7 years now and I just ran across a website last night that said it could contain gluten. I tend to feel worse at night which leads me to believe that it may be something I am taking regularly (I take Synthroid every morning). I am going to talk to my doctor about switching to the generic that is gluten-free.

Thanks again!

gfreecarboholic,

I'm new to this forum too! I found out that I was celiac back in Nov 2010, at first it was difficult but now its getting easier. They say it takes awhile to heal. I was sick for a year before I found out, so I'm wondering if it will take another year to be back to normal, if theres such a thing anymore. I wish I would've joined sooner. Good luck and I hope you find your answers!

Tammy

Marilyn R Community Regular

I'm almost at the one year gluten-free point. I feel so much better than before, but not up to the level I used to be.

I've been to multiple specialists and they've all run oodles of blood tests. Based on what I'd read on this forum, I recently requested that my endocrinoligist check my Vitamin D level. It's really low, even though I live in the sub-tropics and don't use sunscreen. (I also asked for a B-12 and Iron, those were normal, but other forum members have had results below the normal range.)

The specialist copped an attitude with me about asking for blood tests but I was insistent. She told me being soy intolerant could just be in my mind. When I told my boyfriend about that, he said, "Don't you wish you could just wiggle your finger at her to give her diarreah? You could ask her if that was in her mind or in her PANTS?"

I guess I'm keeping the dear Irish BF, thinking about ditching the doctor. (Her office hasn't called me about my blood tests, I only learned about them because I picked up a copy of them up myself today. They were drawn on 3/15/11.

My advice is to read (especially from this forum), search symptoms, and become a pitt bull in your doctor's office visits. Hope that helps, and hope you feel better soon!

chili Apprentice

Thanks for all the advice, 4th day of my CC and I am starting to feel better!! Have to really watch what I am intaking....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,208
    • Most Online (within 30 mins)
      7,748

    Emily H
    Newest Member
    Emily H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...