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Gluten Free For A Few Days And Not Feeling Great

xxkristin

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xxkristin Apprentice
xxkristin
Posted

I was diagnosed with celiac disease a couple days ago and since then I've been eating gluten free, well to my knowledge at least. The past 2 days, I've been hungry constantly. Even after eating a meal, I'll still be hungry. And I get REALLY hungry and have stomach pains sometimes. I also feel a bit weak at times and nauseous, especially when I'm hungry. Is this normal after you cut out gluten? And if so, how long does it usually take to go away? I don't really like feeling hungry and nauseous all the time.

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eatmeat4good Enthusiast
eatmeat4good
Posted

It is very normal. Many people have the extreme hunger and it is like your body is trying to make up for the malnutrition. I don't know how long it lasts, but mine took a few weeks to settle down. Hope you feel better soon. For now, eat as much as you like and can tolerate. Mostly whole foods, not packaged foods. The healing will take a while, but it should get easier. Welcome!

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

Definitely normal! I wasn't experiencing it as badly as you did, but after going gluten-free I started getting hungry many times a day and my stomach would actually GROWL. This was a huge step forward for me, since my primary symptoms were never feeling truly hungry, since my stomach emptied so slowly of undigested gluten, or being bloated/full alla time with acid reflux no matter how little I ate.

It should settle down after a while. For now, eat what you can, and make sure you get enough fat and protein, which should help keep you fuller longer.

Brigit Apprentice
Brigit
Posted

Hi,

I've only been gluten free for 3 weeks. And they have been rather rough. Some days, I've been incredibly tired and very sore, and also like you mentioned; nauseous and hungry. But in between those days I've had glimpses of what it's going to feel like to be better, to wake up with no tingling in my hands and have no dizziness during the day. And that's what you need to remind yourself about.

We need to put some hard work in now, emotionally and mentally to help our bodies through a difficult time. You're body is going through change, so it's not going to be easy, but it is going to be worth it.

And yes, eat lots of what you can. Fresh fruit and veggies. Nice fish and meat, nuts and seeds. There are quite a few lovely treats to snack on.

Stick it out, I've been told that you'll start feeling better around 2 or 4 months, that's not to far away. :)

T.H. Community Regular
T.H.
Posted

Hungry all the time - yeah, not uncommon symptom. Mine lasted about 8 weeks, and I was simply hungry every moment of the day. Yeah, that sucked. A lot. But it did go away.

Nausea - sometimes that can be hunger, but sometimes it can be due to intolerances, like dairy. Most of us are lactose intolerant until we've healed. The part of the villi that makes lactase is also the part that our gut attacks when we eat gluten. <_< But for most celiacs, this passes after you've healed, often around 6 months or so, I think?

Emma-Lee Rookie
Emma-Lee
Posted

When I went gluten free (3 weeks ago) I noticed the hunger right away. YES NORMAL. What I did was make sure I was packing myself plenty, I mean plenty of food for work. LOTS of snacks, I ate so much, but I didn't care because I hate being hungry and nauseous....3 weeks later I don't need as much. So I just recommend being accepting of yourself, and knowing that you need to eat more regularly and more often for a while. It was tough, but it takes time. Oh, and that gas can take months to clear. Your GI has to heal....it's been so frustrating for me, but I totally get yah....hang in there, it will pass.=)

AerinA Rookie
AerinA
Posted

For me the nausea turned out to be low blood sugar. I think it was withdrawal/body in starvation mode/"ohmygodwhereismygluten." I think our bodies are trying to make us eat gluten because that's what you're used to and a lot of people do have some form of withdrawal. I was actually hungry all the time PRE-gluten free diet and had vitamin deficiencies, after a few weeks on the diet I'm eating a much more normal diet, by choice, rather than having to force myself to wait for the next meal. Things get better all the time. I'm sure they will for you, too.

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

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    • Maura Gissen
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      By Maura Gissen · Posted

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
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      By trents · Posted

      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
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      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
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      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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