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Gluten Free For A Few Days And Not Feeling Great


xxkristin

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xxkristin Apprentice

I was diagnosed with celiac disease a couple days ago and since then I've been eating gluten free, well to my knowledge at least. The past 2 days, I've been hungry constantly. Even after eating a meal, I'll still be hungry. And I get REALLY hungry and have stomach pains sometimes. I also feel a bit weak at times and nauseous, especially when I'm hungry. Is this normal after you cut out gluten? And if so, how long does it usually take to go away? I don't really like feeling hungry and nauseous all the time.


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eatmeat4good Enthusiast

It is very normal. Many people have the extreme hunger and it is like your body is trying to make up for the malnutrition. I don't know how long it lasts, but mine took a few weeks to settle down. Hope you feel better soon. For now, eat as much as you like and can tolerate. Mostly whole foods, not packaged foods. The healing will take a while, but it should get easier. Welcome!

Strawberry-Jam Enthusiast

Definitely normal! I wasn't experiencing it as badly as you did, but after going gluten-free I started getting hungry many times a day and my stomach would actually GROWL. This was a huge step forward for me, since my primary symptoms were never feeling truly hungry, since my stomach emptied so slowly of undigested gluten, or being bloated/full alla time with acid reflux no matter how little I ate.

It should settle down after a while. For now, eat what you can, and make sure you get enough fat and protein, which should help keep you fuller longer.

Brigit Apprentice

Hi,

I've only been gluten free for 3 weeks. And they have been rather rough. Some days, I've been incredibly tired and very sore, and also like you mentioned; nauseous and hungry. But in between those days I've had glimpses of what it's going to feel like to be better, to wake up with no tingling in my hands and have no dizziness during the day. And that's what you need to remind yourself about.

We need to put some hard work in now, emotionally and mentally to help our bodies through a difficult time. You're body is going through change, so it's not going to be easy, but it is going to be worth it.

And yes, eat lots of what you can. Fresh fruit and veggies. Nice fish and meat, nuts and seeds. There are quite a few lovely treats to snack on.

Stick it out, I've been told that you'll start feeling better around 2 or 4 months, that's not to far away. :)

T.H. Community Regular

Hungry all the time - yeah, not uncommon symptom. Mine lasted about 8 weeks, and I was simply hungry every moment of the day. Yeah, that sucked. A lot. But it did go away.

Nausea - sometimes that can be hunger, but sometimes it can be due to intolerances, like dairy. Most of us are lactose intolerant until we've healed. The part of the villi that makes lactase is also the part that our gut attacks when we eat gluten. <_< But for most celiacs, this passes after you've healed, often around 6 months or so, I think?

Emma-Lee Rookie

When I went gluten free (3 weeks ago) I noticed the hunger right away. YES NORMAL. What I did was make sure I was packing myself plenty, I mean plenty of food for work. LOTS of snacks, I ate so much, but I didn't care because I hate being hungry and nauseous....3 weeks later I don't need as much. So I just recommend being accepting of yourself, and knowing that you need to eat more regularly and more often for a while. It was tough, but it takes time. Oh, and that gas can take months to clear. Your GI has to heal....it's been so frustrating for me, but I totally get yah....hang in there, it will pass.=)

AerinA Rookie

For me the nausea turned out to be low blood sugar. I think it was withdrawal/body in starvation mode/"ohmygodwhereismygluten." I think our bodies are trying to make us eat gluten because that's what you're used to and a lot of people do have some form of withdrawal. I was actually hungry all the time PRE-gluten free diet and had vitamin deficiencies, after a few weeks on the diet I'm eating a much more normal diet, by choice, rather than having to force myself to wait for the next meal. Things get better all the time. I'm sure they will for you, too.


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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