Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So, You Think You're Gluten Free?


bridgeofsighs

Recommended Posts

bridgeofsighs Apprentice

I'm sure this has been discussed on the forum before, so please forgive me...

In the following video, this Dr. Osborne fella is telling us that ALL grains contain their own forms of gluten and (may?) need to be avoided by those who have a gluten sensitivity. After watching this video, what is your take on the idea of the "true gluten free diet"?

Open Original Shared Link

-Thoroughly Cornfused in Ohio


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mothering3 Apprentice

I'm sure this has been discussed on the forum before, so please forgive me...

In the following video, this Dr. Osborne fella is telling us that ALL grains contain their own forms of gluten and (may?) need to be avoided by those who have a gluten sensitivity. After watching this video, what is your take on the idea of the "true gluten free diet"?

Open Original Shared Link

-Thoroughly Cornfused in Ohio

He'd have to make a pretty strong case that other grains are a problem in order to convince me to go grain-free. I didn't think he made that case. It seems like what he did was talk about many diseases that can be associated with gluten intolerance (as we know), and he brought up some studies that show other grains can have inflammatory action too (which we also know...many people with Celiac cannot tolerate corn or other grains.)

But seriously, I do not want to give up wheat gluten, and I am to save my health. I am currently on a diet of very restricted grains (rice, quinoa, amaranth) while I am healing, and I DO NOT wish to give up all grains forever.

Whats strange to me about this video is that he does not talk about how the majority of people with celiacs get drastically better after removing wheat-gluten from their diet. If they were all needing to be grain-free, wouldn't they see no improvement until they did so? Seems fishy to me. If even trace amounts of wheat gluten make us extremely ill, how could we go on eating rice and corn every day and feeling better than ever?

However, I would agree that American diets are overly grain-based. I have really tried to reduce grains in our house and eat more veggies, fruits, meats, nuts, and seeds because grains are too low in nutrients and I think we should eat smaller portions of them.

dilettantesteph Collaborator

I am sensitive to very low levels of gluten. I do react to a lot of gluten free grains, but not if I sort them and wash them carefully first. Some are contaminated with gluten, but they don't contain gluten themselves, or at least not the kind of gluten which harms celiacs. Gluten is a term used for storage protein of cereal grains. I think the guy is wrong. Also, I went through and read the references which he gives for why gluten free grains are harmful. Some which he used to say that they were harmful, actually said that they were not harmful. They were studies in which corn and rice were used as controls because they caused no harm. Another one was for corn which was contaminated with something like 80 ppm gluten. I don't have that number quite right, but it was around there.

salexander421 Enthusiast

I know some people do have problems with other grains, I think I probably don't do as well if I eat a lot of grains but I don't get the same obvious symptoms as when I eat gluten. So, I would say it might be the case for some, but certainly not all.

cassP Contributor

a lot of members on here do not like that guy or his site.... now i dont know if what he's saying is true. BUT i DO know that some of us feel better grain free or mostly grain free.... or free from certain grains. i think to some extent- his ideas may be true for some of us..

i for example get gluten symptoms from corn products... but others on here.. (& famous food bloggers) are completely okay with corn. some members on here cant do OATS- even certified gluten-free oats- but i can.

i also react badly to potatos and tapioca starch and most of the flours in gluten free substitutes.

im fine with rice HOWEVER- i feel better really only having rice 2 or 3 times a week.

the LESS grains i eat the BETTER i feel!!!! and i dont know if it has to do with gluten or similar "glutens" ... or if some of us were simply not designed to consume & digest grains

Mothering3 Apprentice

a lot of members on here do not like that guy or his site.... now i dont know if what he's saying is true. BUT i DO know that some of us feel better grain free or mostly grain free.... or free from certain grains. i think to some extent- his ideas may be true for some of us..

i for example get gluten symptoms from corn products... but others on here.. (& famous food bloggers) are completely okay with corn. some members on here cant do OATS- even certified gluten-free oats- but i can.

i also react badly to potatos and tapioca starch and most of the flours in gluten free substitutes.

im fine with rice HOWEVER- i feel better really only having rice 2 or 3 times a week.

the LESS grains i eat the BETTER i feel!!!! and i dont know if it has to do with gluten or similar "glutens" ... or if some of us were simply not designed to consume & digest grains

I'm not sure why other people on the site don't like him, but personally he did not strike me as a trustworthy source of information. He had that guruey, pyramid scheme style of communication. You know, throwing out a bunch of facts, out of context, not really developing them to make his case, etc. He obviously has some things to say that are very much true, and I certainly don't doubt that there are people who need to avoid consuming grains, as there are of any food. Grains are more commonly a problem I think, because of their relative newness. But couldn't you make a similar case for any food? Especially the part about pesticides. Like, I know that is true, but that is not just true of grains! Its in all our non-organic foods! Seems like this guy is doing one of those fear-based ________ food is eeeeeviiiiiil kind of cases. Just like the ____ food is the miracle that is going to make you invincible and immortal case. I don't buy it. I don't even think that is true of wheat, even though it is clearly bad for a number of people, even to the point of poisoning them (such as myself). I imagine there are people for whom whole wheat is a healthy source of nutrition....wish I was among them. sigh.

GFinDC Veteran

I think he has a point. If we all just assume the world is flat, we may never even think to check for a curve in the surface. So, if we all just assume there is no problem with any grain besides Wheat, rye, barley and oats, we may miss something about the whole situation. I think it would be good if some enterprising scientist-head did a study on other grains and how they affect people, especially celiacs and gluten sensitive people.

Probably that list of problem grains was "decided" decades ago, and it may be time for a re-evaluation.

I don't have much problem with other grains myself, except for white rice. But there are several of people with corn issues here. And some have problems with quinoa, which bothers me some too.

I have been looking up cross-reactions and allergies some late lately, and there are a number of allergens that have been associated with causing cross-reactions in people with IgE responses. They say that the protein in wheat, rye and barley and oats is very similar. I wonder how it compares to these other grains though?

I like his talk about gluten sensitivity causing a whole range of other conditions/symptoms also. It looks like this video was made in 2009. The only thing that bothered me was when he said ataxia is dizziness. It is actually much more serious than that. I think it is a good video. I liked his discussion of testing also, and how it is not very complete generally.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,685
    • Most Online (within 30 mins)
      7,748

    Janahawk
    Newest Member
    Janahawk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
    • trents
      Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
    • BoiseNic
      I have the same problem. No matter what I eat, I seem to get a break out every 1 to 2 months. I do not do oats, citrus fruits, apples, onions and other foods also, as those cause reactions. The only time I have zero problems is when I fast. The only staple grain I have is quinoa, as that doesn't seem to cause me issues. I have linked mine to a microbiome imbalance. I am currently on month 3 of Skinesa. It's supposed to take 3 months before seeing results. I guess we'll see.
×
×
  • Create New...