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Antibodies Are Down!


Tigercat17

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Tigercat17 Enthusiast

Hi everyone!

I just wanted to share the good news! I just got back my results on my Tissue Tranglutaminase IgA blood work. Finally they are down to 18! I know it could be a little lower, but this is the lowest it has been for me since going gluten free 18 months ago! Eating gluten free is so much hard work! I feel like I should be rewarded or at least get a metal for all this!..... But, I guess having good health will be my reward and hopefully nothing else falls a apart :P I'm so excited! I feel like doing cartwheels! :D

Thanks everyone for all your help! I know I couldn't have done it without the people on this forum! You all are the best! :)


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ravenwoodglass Mentor

Fantastic news! Glad to hear things are going well.

Tigercat17 Enthusiast

Fantastic news! Glad to hear things are going well.

Thanks Ravewoodglass!

You are like a little angel here on this forum! You've helped me soooo much! Thank-you!!!! You really inspire me! :)

ravenwoodglass Mentor

Thanks Ravewoodglass!

You are like a little angel here on this forum! You've helped me soooo much! Thank-you!!!! You really inspire me! :)

Glad I was able to be helpful. If I could hand you a medal through the computer I would do so. It is hard but you are doing great. Make sure you do something to celebrate.

Tigercat17 Enthusiast

Glad I was able to be helpful. If I could hand you a medal through the computer I would do so. It is hard but you are doing great. Make sure you do something to celebrate.

Thanks Ravenwoodglass! :) That's a Great idea! I think I might go to P.F. Chang's for dinner this weekend! I've heard so many great things about them and it's a place I used to eat at often before I went gluten free. I've learned how to make their lettuce wraps at home. They're good, but they don't tastes exactly the same. Having the Real ones will be such a treat! :)

IrishHeart Veteran

Lisa!

This is FANTASTIC news!! Good for you, kiddo!!

YAAAAAAAAAAAAYY!

Here's a cyber cheer of joy!! Do celebrate your good health and continue to feel well! You inspire ME!! :)

Tigercat17 Enthusiast

Lisa!

This is FANTASTIC news!! Good for you, kiddo!!

YAAAAAAAAAAAAYY!

Here's a cyber cheer of joy!! Do celebrate your good health and continue to feel well! You inspire ME!! :)

Thanks so much IrishHeart!!! :) Hopefully you'll hear the good news soon, too!

I was a little nervous going to P.F. Chang's, but the food was so good and the waiter was very knowledgeable about gluten. He made me feel a little better. And so far so good! I don't have any reactions. I don't think I got any CC, so it will be another place that I can add to my favorite restaurants. Yay! :D


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IrishHeart Veteran

That's great! I am still too raw in the GI tract for eating out just yet, but will keep PF Chang's in mind when I am ready.

Again, I am happy for you and wish you continued good health!!!!!! :)

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    • trents
      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
    • trents
      Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
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