Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Canker Sores?

hannahm

Recommended Posts

hannahm Newbie
hannahm
Posted

My name is Hannah, and I am 14. I was just recently diagnosed in October 2010 with Celiac disease, and I have been gluten free ever since. Most of my stomach pain has gone away, but I still get the occasional cramp where I always got my Celiac pain. With my case, I also got diarrhea and bad gas. Most of this has gone away, but occasionally I will relapse back into it. The one problem I always have is canker sores. I have had canker sores about the size of a dime, and they usually come in a group of 2-4. Ever since my diet, the canker sores have slowly seemed to go away, but I am very prone to getting them for other reasons. For example, I just got my braces taken off, and my retainer has caused two extremely painful sores in the past couple days. Is there anything I could take that would make me less likely to contract a sore? Or am I stuck with these for the rest of my life? Should I consult my doctor?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kat70R Rookie
Kat70R
Posted

Hi Hanna, I too get horrible canker soars, they are so painful! swirl with salt water, it hurts a bit but really helps. Also, a bit of good probiotic yogurt every day really helps to control breakouts. I now only eat the soy yogurt as I am lactose intolerant.

Good Luck!

Kat

Dixiebell Contributor
Dixiebell
Posted

Welcome to the forum hannahm.

Do your parents also eat gluten-free also? Do you share the same toaster, cookware, baking pans, cutting board, nut butters, jams, mayo, butter, etc.? If you are you could be getting cross contaiminated (CC) by the foods that they eat. Do your personal care products have gluten in them? If you are eating a lot of gluten-free processed foods you might want to cut back on them and eat naturally gluten-free foods, fruits, veggies, meats, nuts, etc. and see if that helps.

hannahm Newbie
hannahm
Posted
  • Author

Thanks guys!

Dixiebell: Actually, yes my family does use some of the same products. Would that mean my mom would have to buy a separate cookware set for gluten free food also? I do use separate peanut butter on gluten free toast roasted in the oven, but that's all.

Kat70R: I've been using salt and hydrogen peroxide periodically throughout the day, and it really has helped. I plan on continuing this until it heals :)

Dixiebell Contributor
Dixiebell
Posted

It is recommended to have your own pots for gluten-free because the gluten from other foods can be stuck in scratches and seams. You should only need a couple of pots for your foods. And a pasta strainer. Cookie sheets can be lined with foil to prevent CC. You probably need to get your own condiments, things that a knife are dipped into, and mark them as gluten-free so everyone knows not to use them. When someone who is not gluten-free uses the butter for example, dips the knife and spreads it on their bread and dips it again to spread some more, the butter is now CC'ed. If your family puts frozen pizza or their regular bread on the oven rack that can CC you too. It is a learning curve, and most Dr.'s don't know about all this or just don't think it is important.

Emsstacey Rookie
Emsstacey
Posted

I have suffered with canker sores for as long as I can remember. Mine had gotten almost continuous when I had a positive celiac panel. I read in Prevention magazine a tiny article about the benefits of sublingual B12. It stated that in a trial, 99% of people had complete remission of canker sores by taking 1000 mcg of B12 daily and sublingually. I bought some at Wal Mart for about $5 and started using it. I have not had a canker sore since and that was almost 2 years ago.

It has been a miracle for me. I think I must have been deficient and since B12 is a common deficiency for Celiac's... maybe that is why it is associated with canker sores?

Just an idea but it worked for me!

hannahm Newbie
hannahm
Posted
  • Author

That sounds like a great idea!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hannahm Newbie
hannahm
Posted
  • Author

And actually, I went to my dentist the other day. He saw the affected tissue and gave me some Peridex mouthwash, and it has really improved things too!

cap6 Enthusiast
cap6
Posted

Hi Hannah ~ I had really bad canker sores before going gluten-free, as many as 8 or 9 at a time. It took awhile but since going gluten-free they are for the most part gone. Once in awhile I will get one but it never gets to the painful ulcer point. I did get a mouth wash from my dr and I believe it was called miracle mouth that was a numbing agent that really helped. But please check to be sure that it is gluten-free as I used it before going gluten-free. Good luck to you Hannah and it will get better. Honest!!! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,187
    • Most Online (within 30 mins)
      7,748
    zahera
    Newest Member
    zahera
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Alpine Brand Spiced Cider

      By WednesdayAddams13 · Posted

      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      Family education

      By trents · Posted

      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Family education

      By Rogol72 · Posted

      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Supplements for those Diagnosed with Celiac Disease

      By peg · Posted

      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Cycle of dermatitis herpetiformis

      By Hopeful1950 · Posted

      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...