Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Start Eating Gluten Again?


abbyryd

Recommended Posts

abbyryd Newbie

Okay so I'm a twenty year old college student. About a year ago, I started having inexplicable stomach pain and pretty consistent diarrhea (gross). For months I just kind of dealt with it not really acknowledging that it was abnormal. At some point, I realized that my symptoms were pretty consistent with Celiac disease and gluten intolerance, and because I ate bread and other gluten-filled products pretty much every day, I felt like I had found the source of the problem. I decided to stop eating it for a trial period just to see how it went. Almost immediately (within a few days) I felt better. I didn't have the stomach pain anymore and the diarrhea all but went away. I have felt better since cutting gluten out of my diet, but I haven't been officially diagnosed with anything. All of the literature says you should be eating gluten for four weeks before your test to avoid inaccurate results. The thought of eating gluten for a full four weeks is terrifying - the gastrointestinal horror!

So my question is the following: Should I keep doing what I'm doing, or should I bite the bullet and start consuming gluten again? Has anyone had the same problem?

Thanks a lot for any information you guys can give :).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Some Possible outcomes are:

1. Many people try to return to eating gluten for 3 months and find they simply cannot handle the symptoms. Result: They go gluten free and forget the testing.

2. Other people make themselves handle eating gluten for 3 months and feel lousy the whole time and still test negative. Result: They go gluten free and try to forget the lousy months of glutening.

3. Some people test positive and then are told by their Dr. to go gluten free. Result: They go gluten free and try to forget that they already knew that in the first place.

A lot of people have gluten intolerance and won't be able to test positive....but they won't be able to handle eating gluten either.

Eating something with gluten in it is enough to make me very ill and I don't need the Dr. to tell me to stop eating it.

When I asked the Dr. about testing he said, Why? So I can tell you to stop eating gluten? We already know it makes you sick. At the time I was mad, but now I see that he was right.

I'm not trying to tell you what to do, just giving you something to consider.

mushroom Proficient

As eatmeat4good says, you can eat gluten for the recommended two months at the rate of 3-4 slices of bread a day, and still test negative on blood and biopsy, because you have a different form of gluten intolerance than celiac disease, and they don't have any way of testing for this yet. So it is entirely up to you if you want to torture yourself for that period of time to attempt to get a label which may not apply to you :P A diagnosis is nice work if you can get it, without causing yourself too much harm, and if you need it to convince yourself that this is the way you must eat, or if you need it for some other unspecified reason, but if you know that gluten makes you sick, and you are going to eat gluten-free anyway, why bother? That is not to say that gluten is definitely the cause of your problems, but if they do resolve gluten free, then you have your answer. :) I would never go back to eating gluten to get tested. Just as I would never knowingly eat the other things that I don't tolerate. Well, actually I did that last week (because hubs had prepared a special dinner) and boy did I pay the price for eating it.

katiekay Explorer

to abbyryd - thank you for posting this question.

to mushroom and eatmeat4good - thank you for your answers!!! It's funny because I know that I want to go gluten free but for some reason I have felt like I couldn't without a test result. Each time I see answers like these it gets me going in the right direction!! I am curious about the results from the blood test that I took today but I no longer feel like I need the test results. I'm going to immediately go gluten free and get rid of the itchy skin, headaches, tiredness, stomache stuff etc. thanks!

Kre8sioN Newbie

I'm so confused, I go for a test @ 7am tomorrow, not even sure what its for (I'll ask when I get there). I told my doctor I went gluten free and most of my symptoms went away. Gave me another blood test, cant read his writing but it says gluten panel something. Is this a test for the gene or intolerance? as I stopped taking in gluten 3 weeks ago. BTW great post eatmeat4good! :) And I need to ask doc more questions I guess. New here so I guess its time to log in whats going on In my signature....As for taking in gluten again? UGH.

abbyryd Newbie

Thanks so much for your input, everybody :). I've been worrying about this for months but now I feel better!

katiekay Explorer

eee gads... A new day and I'm once again unsure what I'm going to do. I want to be gluten free but I wish I had a diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



abbyryd Newbie

Katiekay, just do it to see if it makes you feel better :). It's really not that difficult - there are tons of "normal" foods you can still eat that don't even have to be made specifically gluten free. Just always check the label! Rice, salad, Chick fil A fries, tortilla chips, steak, tacos, chocolate, potato chips, cheese...

katiekay Explorer

Today we are starting gluten free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,175
    • Most Online (within 30 mins)
      7,748

    Janice Emmendorfer
    Newest Member
    Janice Emmendorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Once you have removed the inflammatories, it is time to focus on the deficiencies.  A lot of them not specific to Celiac, but deficiency in them elicits symptoms associated with Celiac. According to research, celiac disease tends to be more prevalent in urban areas compared to rural areas.  Same is true with airborne viruses.  Because urban residents get less sunlight.  To top it off we use lotion and gear to block the little light there is.  This compremises the vitamin D blood level.  A virus attack further lowers vitamin D and the immune system loses control over the Celiac genes and they go into acute symptoms. 40% to 75% depending depending on country are vitamin D deficient. 50% do not eat the Adequit Intake for potassium (4700 mg a day) 90% do n ot eat the Adequit Intake for Choline. Iodine intake since 1970 had dropped 50%.  The western diet is typically excessive in omega 6 fatty acid compared to omega 3.  Above 14:1 by some estimates.  So they sell us expensive, processed oils to compensate.  Anyway after 10 years gluten free myself,  here is what has helped me in just the past few years; once I realized I was at a healing plateau and just GFD would not cut it, and reallized my deficiencies.  Most recently, I started a statin which I only took for two weeks before it started to cripple me.   Got a prescription for Nicotinic Acid to 2000 and am more flexible now Plus HDL went 29 to 44, eGFR from 55 to 79. I also learned if the pharmacist gets a prescription for Niacin that it is dealer's choice whether you get Nicotinic Acid or Niacinimide.  And it comes out of a regular vitamin manufacturer.   "likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D 500 mg Thiamine or more Choline Iodine – 600 to 1200 mcg of Liquid Iodine Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol. I recently started 2000 mg a day instead of a statin which I cannot tolerate. I the first month my HDL went from 29 to 44. eGFR (kidney function) jumped from 55 ti 75. It also has make my whole body less stiff. The ichy, flushing with the first few doses goes away. The non flush forms of vitamin B3 do not work. It is the relaxing of the capillaries and tendons. 500 mg Pantothenic Acid vitamin B5 Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation Whole Milk Vanilla yogurt to which I add 100 grams of raspberrys, black berries and blueberries has lots of probiotics and makes my tummy and body happy. Red Bull has sugar (not high fructose corn syrup) and the vitamins (B2,3,5,6 need to metabolize to ATP energy and Taurine as an antioxident). It is a good source of energy for me because my genetic hyperlipidemia does not process complex carbs well.        
    • trents
      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
×
×
  • Create New...